Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Help For A Newbie


jaimi alderson

Recommended Posts

jaimi alderson Enthusiast

Hi! I have been asked by several family members what happens to me if I accidentally eat gluten. The nurse said I do not have to go for zero tolerance as far as a gluten-free diet goes. How do I know if that is true (she did not know much about treating celiac disease only diagnosing it)? Are there varying degrees of celiac disease? Do I just wait & see what happens if I do have it in a hidden source? Or does my risk of cancer skyrocket if I am not 100%gluten-free?

Also, can it be really true that Kraft Jello Pudding is gluten-free if no wheat is mentioned? It has modified food starch, caramel coloring & artificial flavor but truly they say it will be labeled with wheat if its in there?

THANK YOU!!!!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
Hi! I have been asked by several family members what happens to me if I accidentally eat gluten. The nurse said I do not have to go for zero tolerance as far as a gluten-free diet goes. How do I know if that is true (she did not know much about treating celiac disease only diagnosing it)? Are there varying degrees of celiac disease? Do I just wait & see what happens if I do have it in a hidden source? Or does my risk of cancer skyrocket if I am not 100%gluten-free?

Also, can it be really true that Kraft Jello Pudding is gluten-free if no wheat is mentioned? It has modified food starch, caramel coloring & artificial flavor but truly they say it will be labeled with wheat if its in there?

THANK YOU!!!!!!!!!!!!

Hi Jaimi--The nurse was mistaken--it is important to be as close to 100% gluten-free as you can. There are not varying degrees of Celiac, although there are varying degrees of symptoms. Some people are sick for years with debilitating illnesses, and there are Celiacs who have no or very mild symptoms. But the treatment for all Celiacs is the same. The reason that you want to be careful is because even very small amounts of gluten can add up to damage over time. Kraft is a company that you can trust to clearly label any gluten ingredients. With Kraft, all you need to do is read the label--

penguin Community Regular

About the Jello, BELIEVE IT!!!! If it doesn't say wheat, barley, rye, or oats, it's gluten-free! I've never had a problem. You'll come to nealy worship Kraft for allowing an iota of normalcy into your life!

I'm in the zero-tolerance camp, mostly because I get sick as a dog from a molecule of gluten since being gluten-free. I also feel lots better, generally.

I think it's hard for a doctor to "sentence" someone to a zero tolerance of anything diet, however, it's really easy for someone without Celiac to say "cheating is ok sometimes." I hate being sick, ergo, I hate gluten.

Also, any amount of gluten, especially over time, is going to do damage, the problem is that you can't go by symptoms. You may get away with a little gluten here and there, but eventually, it'll make you sick. Damage can be done and your risks can be higher, so why risk it? Does that make sense?

Welcome aboard the board! :)

jkmunchkin Rising Star

Unfortunately like the others have said, the nurse was mistaken. There are no degrees of celiac. While yes some of us may get more or less sick (or not sick at all) when accidentally ingesting gluten; regardless of your reaction you need to be 100% gluten free all the time.

It may seem very overwhelming right now but you will quickly learn which brands (such as Kraft) are more "friendly" to our needs and which brands to just stay away from.

We're all here to help and answer any and all questions.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.