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What To Watch Out For

bod116

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bod116 Newbie
bod116
Posted

I just got diagnosed in February..... what are the things to stay away from on labels of food?

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IronedOut Apprentice
IronedOut
Posted

Check out the home page of this site for the a geat list of the stuff not to have. There is also a list of lots of mainstream products that are gluten free.

Open Original Shared Link

More stuff than you ever thought you'd need to be wary of. I was so overwhelmed at first, but things have evened out a little. Still have my mistake moments, though. <_<

Browse through the section on products. It will give you a good idea of the do's and the do not's.

And when you're uncertain or down, check in with this gang. So much knowledge and it's all gluten free!!

elonwy Enthusiast
elonwy
Posted

https://www.celiac.com/st_main.html?p_catid...-46106001680.ff

This has ingredient lists and forbidden things, its a bunch of good info, from this site.

i printed these out and walked around with them at the grocery store for the first couple months, now I don't need them because I remember, but its helpful when trying to figure something out, and somewhat smaller than the entire delphi lists.

The Delphi lists are super handy too though.

Elonwy

flagbabyds Collaborator
flagbabyds
Posted

The forbidden list is really helpful. ALso with the new labeling lay, that helps a lot with the wheat but

just remember that wheat free does not mean gluten free there are so many just wheat free products with barley as their main ingredient. Just take the forbidden lists with you and look around. If you are not sure, you can always call the company and they should be able to tell you .

plantime Contributor
plantime
Posted

The labeling law helps cut my shopping time a bit, since I can look for wheat in bold print before reading the rest of the label.

Guest cassidy
Guest cassidy
Posted

A couple of tips that helps speed up my shopping:

I keep the forbidden list in my purse.

On the back I have a list of the companies that don't hide gluten (you can search and find it on several posts here).

I also write down products that I verified are gluten-free but only use occasionally, and may forget that I already checked on them.

When I'm making my grocery list I write the gluten-free brands next to a product if it is something that I don't get often.

Also, when I'm walking throug a store if there is something that I want to check on, I write the name on my current grocery list. When I get home, I check the product's status and write it on my next list if it is safe.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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