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Weird Symptom

ebrbetty

By ebrbetty
in Coping with Celiac Disease

Recommended Posts

ebrbetty Rising Star
ebrbetty
Posted

Hi Guys, I've been having terrible pain for the last 7 days, I must have been glutened, anyway, while I'm having the terrible stomach pain, my feet get very sweaty, they feel cold, but get sweaty and really feel weird..also my toes on just the left get tingly and kinda numb..when the pain calms down so does the feet thing :blink: its like night sweats but only on my feet

weird, right!!?? anyone else?

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Carriefaith Enthusiast
Carriefaith
Posted

Tingling and numbness is a symptom of celiac disease.

Open Original Shared Link

Before I was first dignosed, I would get some tingling on my right side, mostly near my neck.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thanks..its the weird, cold sweaty feet that I don't understand..plus last night my while body broke out in a cold sweat, and I thought I was going to throw up, came on very fast, lasted about an hour then it calmed down...my dinner was safe, I know, I cooked it lol

jerseyangel Proficient
jerseyangel
Posted

Betty--I get the cold sweating in my feet and hands. I don't connect mine to gluten, but it does happen when my stomach is upset. I get stomach upset often, even though I know I am not getting any gluten. I had a great deal of tingling and numbness--from my face all the way down my left side and both lower legs and feet. Gradually, over months, it got better--although I still get it in my face and arm. Are you feeling any better at all?

ebrbetty Rising Star
ebrbetty
Posted
  • Author

oh thanks, I thought someone would know what I was dealing with..I know my dinner was safe!

I'm a little better, but not good...I keep telling myself to call my Gastro and make an appt. to get a colonoscopy, its the only GI related test I have not had, too scared and embarrassed. does anyone know what they look for and what can be found with a colonoscopy? I don't want to do it at all!

I think all this stomach pain is from being glutened last week, I seem to do Okay for a couple weeks, then I'm down again..no rhyme or reason sometimes

hugs...

dlp252 Apprentice
dlp252
Posted
I'm a little better, but not good...I keep telling myself to call my Gastro and make an appt. to get a colonoscopy, its the only GI related test I have not had, too scared and embarrassed. does anyone know what they look for and what can be found with a colonoscopy? I don't want to do it at all!

I just had mine on Monday. In my case they were looking for anything out of the ordinary. I think GIs have a routine list of things they look for. I have pain in my left side...he said that is a symptom of IBS, so I think in addition to many other things he was looking to rule out anything more serious. He was looking for cancer, diverticula, ulcers (colitis, crohn's, etc). I was asleep during my procedure so don't remember anything about it...I also had an endoscopy at the same time...both procedures together took probably around 30 minutes. The worst part of the colonoscopy is the prep work you'd have to do...the colon needs to be squeaky clean, so you basically have to drink stuff that makes you have D, lol. They put in an IV when I got to the surgicenter, and that wasn't bad either. I don't remember much else except waking up in a recovery area and being loopy for a long while afterwards...had a good nap though.

LAUSTIN Newbie
LAUSTIN
Posted

Donna's right about the colonoscopy and endoscopy. Be sure you have someone drive you home.

My first symptoms were numbness and tingling in my hands and feet. Eventually ataxia set in. Neurologists were going nuts! Finally a rhumatologist found the celiac. Odd, huh? It's funny I told them about the D but they didn't connect it. Thank God for the rhumatologist. Please, be sure to let ALL your doctors know about the numbness and tingling. Take care!

Laustin

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ravenwoodglass Mentor
ravenwoodglass
Posted

You may also want to add a gluten free sub-lingual B12 tablet to your vitamins. It disolves under the tongue and bypassess the GI tract where it is often not being adequately absorbed. A low B12 level often causes these sensations so you may want your doctor to check those levels.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thanks donna :D

I bought sub-lingual B12 last week at traders, but when I got home I noticed it has lactose in it..I'm lactose intolerant..though I don't think there would be enough to bother me...it doesn't go into my belly anyway does it?

KaitiUSA Enthusiast
KaitiUSA
Posted

Could be that you got glutened. How long have you been gluten free? Definite symptom that is associated with celiac.

Guest stef 4 dogs
Guest stef 4 dogs
Posted
Hi Guys, I've been having terrible pain for the last 7 days, I must have been glutened, anyway, while I'm having the terrible stomach pain, my feet get very sweaty, they feel cold, but get sweaty and really feel weird..also my toes on just the left get tingly and kinda numb..when the pain calms down so does the feet thing :blink: its like night sweats but only on my feet

weird, right!!?? anyone else?

It sounds like your talking about peripheal neuropathy. It is an associated problem with Celiac. I've been to a neurologist, and my GI doc, both have said its an effect of being glutened. Sometimes, its so bad for me, I can't hold things! I also get tongue numbness.

Stef 4 Dogs

ebrbetty Rising Star
ebrbetty
Posted
  • Author

I've been gluten free 3 months, thought I'd be much better by now, but lots of great members here have told me it can take up to a year

Its an awful feeling, having it again now :blink:

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      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
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