Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kids Testing

jaimi alderson

Recommended Posts

jaimi alderson Enthusiast
jaimi alderson
Posted

I was diagnosed 2 weeks ago so I am taking my kids today to get their blood drawn. I do not want to do this repeatedly over the next year so I am asking to have them tested for the genetic test (HLA/DQ2/DQ8), the celiac panel & a cmp to check for any nutrition problems. Does anyone have any advice on other tests that should be done with their blood while we are already poking them? The celiac panel will prob not be accurate on my son who is only 16 months but want to check anyway since we are drawing blood. Has anyone ever had all of these tests done for their kids? I want to make sure I am doing all the testing I can. Luckily they have no symptoms, except irritability in my 4yo (could be just her age!) and reflux in my son (this is not a black/white celiac symptom as he is HUGE weight wise-50%-which is very big for our fam!) Anyway, any advice on these tests and/or the blood draw would be much appreciated. Ped. is putting topical anesthetic patches on their little arms so hopefully that will help!

thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
I was diagnosed 2 weeks ago so I am taking my kids today to get their blood drawn. I do not want to do this repeatedly over the next year so I am asking to have them tested for the genetic test (HLA/DQ2/DQ8), the celiac panel & a cmp to check for any nutrition problems. Does anyone have any advice on other tests that should be done with their blood while we are already poking them? The celiac panel will prob not be accurate on my son who is only 16 months but want to check anyway since we are drawing blood. Has anyone ever had all of these tests done for their kids? I want to make sure I am doing all the testing I can. Luckily they have no symptoms, except irritability in my 4yo (could be just her age!) and reflux in my son (this is not a black/white celiac symptom as he is HUGE weight wise-50%-which is very big for our fam!) Anyway, any advice on these tests and/or the blood draw would be much appreciated. Ped. is putting topical anesthetic patches on their little arms so hopefully that will help!

thank you!

Prbly should ask for a BMP (basic metabolic panel) and might as well check normal stuff like Anemai (Iron Levels) and basic vitaman/nutrient levels. If they have celica, they are likly to be deficient in somthing so might as well find out now. Assuming your INS will cover all that of course. :D

I am told that in some European countires its standard practice to screen all first degree blood relatives if any one of htem has Celiac.

nikki-uk Enthusiast
nikki-uk
Posted
I am told that in some European countires its standard practice to screen all first degree blood relatives if any one of htem has Celiac.

I think I can safely say it's not England! :lol:

jerseyangel Proficient
jerseyangel
Posted

I have read they do this in Italy, for sure.

marja Newbie
marja
Posted
I have read they do this in Italy, for sure.

I've heard and read that in Holland they have the bloodtest and after that a bioptie and that's the only way to get the cleiac disease answer from a doctor...

I have to check it here for aruba...

Our son ,almost 2 ,is having problems from 4 monthts old, we were thinking that it was something from the vacinations because tit started directly after his DTP . it started with the diarree,changed formula,did all the lab test ,bloodtest for infections etc ...only his iron was low and sometimes they saw infections...We started very late with 'normal'food because of his pain and diarree and checked everything for the response on it. He has fever attacks coming and going (only for one or two days)mood swings...a bigger than normal baby tummy and a lot of gas in it (thats what the PD also told us) A couple of weeks ago we dicided to skip all the heavy carbs and that was better for him but still there were nights with a lot of pain and screaming and moodswings in the morning. Now for 4 days we've started with the gluten-free diet and he is doing great! Yesterday he was eating patatoes and special apple sauce:he was so happy and of course we were so afraid for the night but:nothing and his diaper was pretty normal! Now we have to go to the PD next week and we are going to ask the question:could it be Celiac disease...we have allready decided that we do not want to have very heavy testing because we are to happy that he is happy and he is so small...and we want to wait with the haevy testing untill he is able to talk about his feelings and that we can explain something to him. But I am only struggling with one thing:is it not dangerous to put him on a gluten-free diet without diagnosed? He loves the food and he can eat with this diet more than with is other diet....Is there anybody with some answers?

We also want to put are other son on the gluten-free diet becasue of the positiv stories about gluten-free for autistic kids.

thanks for all the help in :) this forum!

i've forgot to tell that he is allready lactose intolerant..so he is drinking soya formula because the PD is still afraid to give him something else and we also!

:rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      They both do. The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less...
    2. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    3. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    4. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    5. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,267
    • Most Online (within 30 mins)
      7,748
    Alan Tack
    Newest Member
    Alan Tack
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.