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Pain, But Not Gluten


sspitzer5

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sspitzer5 Apprentice

Hi,

I've been gluten free for a little over a year. Occasionally, I get major abdominal pain that is not related to gluten (as far as I can tell - no diaherra or other typical gluten symptoms). The pain isn't from gas or bloating either. It feels almost like a cramp or as I've described it before, "like I'm digesting a piece of glass". Ouch. Anyway, my lower back and my hip joints ache badly when this happens. It only seems to happen every few months and lasts 2 to 3 hours. I was thinking it had something to do with digesting hard to digest stuff like steak, but now I'm not so sure because I didn't eat anything like that lately and have had major pain today.

Anyone have any ideas as to what this might be?

Thanks!

S


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penguin Community Regular

I get that kind of pain, although in my case, it's only my stomach that hurts. It feels like my stomach is trying to eat itself. It's awful and lasts at least a full day. I don't get D, but I'll usually throw up. Bentyl helps sometimes, but usually it takes at least 2 doses of phenergan to get rid of it totally.

The doctors are dumbfounded as to why, but my doctor said it was pyloric spasms, like getting a charley horse in your stomach muscle.

I've noticed the last 2 times I got glutened, I got the pain a few days later, totally seperate from any other gluten symptoms. I don't know if they're necessarily related, though. There seems to be no rhyme or reason to it.

Guest Robbin

Are you female? If so, it might be ovarian related. Or, it could be another food intolerance. I am finding out not only gluten, but corn and tapioca is getting to me. Same kind of pain-feels like glass going through the digestive tract. Then, I feel "flu-ey" and get the big D. Hope you get to the bottom of it.

sspitzer5 Apprentice

Thanks for the replies! It doesn't seem to correspond with my cycle, seems more digestive in nature, but it's hard to tell for sure.

S

julie5914 Contributor

I get that too. I think mine is either acid or a medication I've taken (like if I take some cold meds that have ibuprofen). Feels like something is cutting into my stomach.

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      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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