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Omg...i Might Be On To Something

Rachel--24

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AndreaB Contributor
AndreaB
Posted

Rinne,

I'll look forward to an update on Thursday after your product's launch. I assume you'll be able to tell us what it is then too. :)

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NoGluGirl Contributor
NoGluGirl
Posted

Dear Rinne,

We are pulling for our resident taifun in Rachelville! ;) We will be anxious to hear what is going on! I am sure it will be a success! This is exciting! Let us know how it goes Thursday!

Dear Everybody,

Guess what? There is an article about gluten intolerance making people fat in Woman's World magazine this week! It is so exciting! The also mention Celiac disease briefly! :) This is great!

I thought you guys would like to know!

Sincerely,

NoGluGirl

miamia Rookie
miamia
Posted
miamia Rookie
miamia
Posted

Rinne-

What is it that you make - I am so curious- Good luck with it.

Carla-

I love that you caught that bowel/ bowl slip it shows how much brain fog the rest of us have that no one else caught- maybe thats another positive sign that you are getting better!!!

miamia Rookie
miamia
Posted
This is what I was wondering too. I've been to the sauna at the gym so many times and never got nauseus at all. I know the infrared is different and instead of just heating up the area...it actually heats up your tissue and draws toxins out that way.

It sounds silly but I was wondering if toxins could have gotten pulled out and ended up in my stomach...causing me to throw up. :unsure:

I dont know that I could ever totally behave myself. :P

I am lucky to have her as a friend though....dont know how I would have made it through the darkest days without her. So yeah...even if she does take incredibly delicious brownies from me....I think I can let it slide. :)

Or....I can just be quicker and more sneaky. :P

I'm gonna try to do some research later and see if the sauna could do something like that.

Obviously we all know how much I love the high temps. :P

The funny thing is....the first year that I got sick....I was not handling the heat well at all. :(

I was not liking cold either....my body seemed to have trouble with getting warm when it was cold and with cooling off when it was hot. I wasnt do well and was either freezing or sweating profusely. :huh:

I felt tortured during that first summer and I actually welcomed the winter months!!! :blink:

I remember hanging out with people and always worrying about the sun getting me too hot and looking for shady spots or all the windows in the car had to be down in order to cool me off. I was overheating for some reason...and this was after they killed my thyroid even!! :blink:

I was sad because I had always loved the summer but I remember being afraid for the weather to start heating up.....that I would be miserable and not be able to go outside. Especially since I live where the temps get into the 100's.

Obviously all thats changed....I think it had alot to do with all the mercury being released at that time because I dont have problems with heat since I got all the metals removed. I enjoy the summer months more than ever now!! :)

Now I just have problems with cold....but I'm sure its mainly due to candida and other infections. My head gets colder than the rest of my body. :(

The pizza sounds delicious!! I'm soooo hoping that I'll be able to eat regular pizza again...and spaghetti and everything else!! Even homemade gluten-free pizza would be great for me...ANY pizza would be great!! :D

My main problem is definitly with the cold!!! I thrive in warm weather but it seems as I have gooten sicker extremem temps either way affect me I still would take an 100 degree over a 30 degree one any day!!

Rachel you probably could eat my pizza (ok it has more then your 5 ingredients) but it dosen't have much. I can't handle much as you know!! I wish I could eat regular pizza of course or a premade gluten free one - god anything premade would be nice. I am so tried of cooking everything!!!! The good thing I did was I made a bunch of little pizza doughs and froze them- I do this with alot of the stuff I make at least it makes things alittle bit easier- but not much!

Oh yeah by the way I am so with you on the chips any kind of chip baked, or fried or whatever kills me - not only do I get GI symptoms my mouth always gets blistered and cut up- I recently tried soy chips I don't know why- and by the time I went to bed my mouth was so sore it hurt to talk. It sucks I don't really crave sweets -(except ice cream) but I am a big salty food eater so things like corn chips are definitly a temptation for me. But I always regret it.

dlp252 Apprentice
dlp252
Posted

Hey Rachel...

How many blood vials did they draw for the lyme testing? Was it done there at Dr. S's office or did you have to go to a lab? That wasn't what Nurse Cratchett did is it, lol?

CarlaB Enthusiast
CarlaB
Posted
Carla-

I love that you caught that bowel/ bowl slip it shows how much brain fog the rest of us have that no one else caught- maybe thats another positive sign that you are getting better!!!

No, it doesn't prove anything ... I am like the Rainman when it comes to grammar and spelling! :lol: It's OCD type behavior, probably aggravated by Lyme ... Lymetoo says OCD is caused/aggravated by Lyme. I would have caught it before ... but I am feeling a lot better.

We went to a dinner last night at a really nice steak place. The vendor Adam sells for took Adam's company's best customer (so one of the best customers in the nation for them) out to dinner. There were three couples from that family. We got a private room for about 16 of us, and they weren't going to spend enough to justify the room ... so they ordered $475 bottles of wine :o:o ! I had one sip of Adam's! I resisted having a whole glass, not worth the risk.

I happen to know a brother and sister related to them (first cousins), and the brother contracted Lyme about 5 years ago. I asked about him and they said he's suffering miserably and his wife is having difficulty believing he's that sick. They said he was probably going to Mayo to see what could be done. I said to save their money! They were really interested in hearing about Dr. H and wanted his number. I was hoping that the guy was getting treatment and doing better ... I had wanted to call him to see who he was seeing and how he was doing. All these five years he's been seeing no one. He had the bulls eye rash when he got bitten visiting Connecticut.

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CarlaB Enthusiast
CarlaB
Posted
Hey Rachel...

How many blood vials did they draw for the lyme testing? Was it done there at Dr. S's office or did you have to go to a lab? That wasn't what Nurse Cratchett did is it, lol?

I think it's two vials for the basic test.

Rachel, didn't you say guacamole? That can cause problems with anyone! I once read that for constipation, eating an avocado gets pretty much anyone moving! I don't know what the toxins are in an avocado, but I know there are enough to kill a bird.

AndreaB Contributor
AndreaB
Posted
I happen to know a brother and sister related to them (first cousins), and the brother contracted Lyme about 5 years ago. I asked about him and they said he's suffering miserably and his wife is having difficulty believing he's that sick. They said he was probably going to Mayo to see what could be done. I said to save their money! They were really interested in hearing about Dr. H and wanted his number. I was hoping that the guy was getting treatment and doing better ... I had wanted to call him to see who he was seeing and how he was doing. All these five years he's been seeing no one. He had the bulls eye rash when he got bitten visiting Connecticut.

I hope he sees your doctor or someone who knows what they are doing.

dlp252 Apprentice
dlp252
Posted
I think it's two vials for the basic test.

Rachel, didn't you say guacamole? That can cause problems with anyone! I once read that for constipation, eating an avocado gets pretty much anyone moving! I don't know what the toxins are in an avocado, but I know there are enough to kill a bird.

Thanks! I may also get the co-infections test and a C.D-57 test. I just had nightmares (while I was awake :lol: ) this morning because I remembered Mia had like 10-11 vials...some nightmarish amount of vials anyway. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Hey Rachel...

How many blood vials did they draw for the lyme testing? Was it done there at Dr. S's office or did you have to go to a lab? That wasn't what Nurse Cratchett did is it, lol?

I cant remember. :unsure:

It was back in Sept/October and I had blood drawn for vit/min deficiencies as well.

I do all of my blood draws at Dr. S.'s office now....at the nurses station...they are AWESOME!! :) I dont mind going there for my bloodwork...its nothing like what I went through with Nurse Cratchett. :angry:

The nurses and the whole staff are great...you'll see. ;)

Nurse Cratchett was at some lab on Remington....I had to find a lab for my histamine tests...(remember the orange jug?? :ph34r: ). That was back when I was going to HN.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Thanks! I may also get the co-infections test and a C.D-57 test. I just had nightmares (while I was awake :lol: ) this morning because I remembered Mia had like 10-11 vials...some nightmarish amount of vials anyway. :lol:

Dr. S. only ordered the WB's at my first visit. He didnt order co-infections until he had come to the conclusion that Lyme was an issue. The co-infections was expensive so I dont know if you'd wanna do it all at once??

Oh...I know for sure that I never had 10-11 vials of blood for my Lyme testing. ;)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel, didn't you say guacamole?

Nope... :unsure:

Not unless my brainfog has severely worsened. :huh:

I dont think I ate guacamole??? :P

I'm pretty sure I'd remember it...I LOVE guac...but I cant have it. Avocados are one of my biggest intolerances. :(

I did have a real brownie though!! Gluten and all. :ph34r:

dlp252 Apprentice
dlp252
Posted
Dr. S. only ordered the WB's at my first visit. He didnt order co-infections until he had come to the conclusion that Lyme was an issue. The co-infections was expensive so I dont know if you'd wanna do it all at once??

Oh...I know for sure that I never had 10-11 vials of blood for my Lyme testing. ;)

Oh phew! :lol: I'm feeling kind of weak the last couple of days and that just scared me to no end, lol. I wasn't sure I would survive 10 vials without passing out. I'm sure he won't order the co-infections then until he sees the WBs and maybe not even then, lol...good, that saves me a little sticker shock, lol.

dlp252 Apprentice
dlp252
Posted

Oh, and note to self....must not mention histamine to anyone at HN.

AndreaB Contributor
AndreaB
Posted
good, that saves me a little sticker shock, lol.

Any sticker shock we can save the better. :P

AndreaB Contributor
AndreaB
Posted
Oh, and note to self....must not mention histamine to anyone at HN.

:lol::lol:

My daughter is already poke shy. She thinks any doctors visit is going to result in a blood draw. :(

dlp252 Apprentice
dlp252
Posted

Okay, if ya'all ever need a cute fix:

Open Original Shared Link

AndreaB Contributor
AndreaB
Posted

Those are cute. :)

NoGluGirl Contributor
NoGluGirl
Posted

Dear Donna,

That was adorable! I wonder if the cat was actually sleeping or just laying there? We used to have a pet rabbit we could flip over and hold like a baby. Digger used to lay there and go comatose! :lol: Eventually, he would wake up and startle himself. He was so good natured!

Dear Mia,

I wonder about mercury for myself. I have a number of symptoms. Plus, since I have heard about contacts and mercury, plus the vaccines, I am aware of some exposure. Mercury is not an issue dental-wise, but my mother had fillings like that when she was pregnant with me. I eat a lot of tuna as well. Those all could cause trouble.

Sincerely,

NoGluGirl

CarlaB Enthusiast
CarlaB
Posted
Thanks! I may also get the co-infections test and a C.D-57 test. I just had nightmares (while I was awake :lol: ) this morning because I remembered Mia had like 10-11 vials...some nightmarish amount of vials anyway. :lol:

Yeah, my Lyme doc did that! But the initial IGeneX test was only two.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Alison,

This pic is me with my natural color. It was taken ten years ago, but I look nearly exactly the same. I hate my natural color! I do not like the way it looks on me. That is why I dye my hair. I dyed it blonde once, and that was bad. So, I went black. My hair was already brown.

Sincerely,

NoGluGirl

AndreaB Contributor
AndreaB
Posted
This pic is me with my natural color. It was taken ten years ago, but I look nearly exactly the same.

I happen to think that is a nice picture and that your natural hair color suits you.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Dear Alison,

This pic is me with my natural color. It was taken ten years ago, but I look nearly exactly the same. I hate my natural color! I do not like the way it looks on me. That is why I dye my hair. I dyed it blonde once, and that was bad. So, I went black. My hair was already brown.

Sincerely,

NoGluGirl

NoGluGirl--pardon me while I pick my jaw up off the floor! That is a GORGEOUS picture.

I'm sorry you don't see yourself as I see you, but I suppose in the long run, how you see yourself is what counts.

tabasco32 Apprentice
tabasco32
Posted

What does mercury do to your body? I mean what does it look like in their? My kidneys are starting to hurt. I hope it doesn't damage them also. So I went to the dentist today and I am going tomorrow to make an appointment for my consultation. Ugh I just want these darn

things out already! Had to apply for food stamps today because I am as Toxic as Britney Spears song and I am so tired I can't work like this. Rachel how did you get your disability? I need temperary or something. I hope after dextoxing My bladder will start feeling better also. That part kind of worries me. anyway just came in today to grumble and whine.

Bye everyone,

lisa

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    • trents
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      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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