Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finding Money For Endoscopy Test


oaktownboy

Recommended Posts

oaktownboy Newbie

my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mmaccartney Explorer
my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one

Why won't they cover it??? If a doctor that is part of their "plan" deems it as medically necesarry, aren't they required to cover it?? (Mine did, but I still had to cough up 20% of the cost as I have an 80/20 plan....)

tiredofdoctors Enthusiast

Call, complain and B**** like heck. Then write a letter stating that, should there be a significant problem that worsens because they won't cover the necessary testing your doctor requested, you will hold them responsible and will report it to all the news statios and your newpaper. That should do it. Trust me.

floridanative Community Regular

tiredofdoctors is right. Raise total cain until someone gets a grip and lets you have the test. I have come to find out that there is not much worse in our culture than insurance companies. They are the driving force behind all the bad medicine we are all experiencing - from everything to sinus infections to Celiac disease being misdiagnosed.

For my biopsy I was told I had a $250 co-pay but then I switched docs to have the test. New doc says I only have a reg. specialist co-pay. Both my insurance company and the hospital where I had the test say I don't have to pay anything upon arrival, and I only have the $35 co-pay to the doc. This did not seem right so I called my insurance company again and they said since I'm now having the test in the hospital, I had no co-pay. So now three months later I get a bill for $250 co-pay. Oh and of course I have already paid the doc $35 and I had to have the test at 1 pm when I felt like jerking my iv out to drink it and was starving. All this to save $250.....which of course I didn't save and apparently, this way I'm paying $285 when you include the doc's co-pay. How people who own insurance companies sleep at night - I'll never know!!!!!!!!!!!!!!!! :angry:

cultureslayer Rookie

IF it's just to confirm the diagnosis, I've skipped it. I work in a medical field and I don't trust doctors. They give me enough crap when I'm awake, no way they are putting me under for anything less than major surgery.

tiredofdoctors Enthusiast

As far as being put to sleep, they didn't give me enough "juice" -- I was awake for the endoscopy and the colonscopy -- including polyp removal. I kept moaning to try to tell them that I could feel it -- they saw me watching it on the television screen :huh:

When it was over, I quoted exactly what the doctor said. The one nurse looked at the other and said, "She wasn't out NEARLY as much as we thought she was." DUH . . . . Didn't the sounds I made each time he cut give them a hint????? <_<

cultureslayer Rookie

Yeah, I am one of those people that require an exceptional amount of anesthesia (my body processes it quickly obviously). I could definitely see that happening to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiredofdoctors Enthusiast

That was the THIRD time it has happened to me. One time, it was when I was medically paralyzed, and I couldn't move anything to tell them that I was AWAKE! Yuck. I really didn't like that too much.

cultureslayer Rookie

Ugh. I always tell them (even when I'm going in for a filling) that I'm hard to anesthetize and will take more than they think I should. It's also hard to get Drs to take me seriously when I complain of any pain because I don't take motrin. It takes about 1.5 to 2x the max suggested dose to do anything worth taking a pill for, and at that point I start to feel strange. Otherwise it just takes the edge off of light soreness.

CMCM Rising Star
my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one

Is there a particular reason for an endoscopy, other than wanting "to know for sure"??? Why not just handle it yourself by going thru Enterolab....get the full panel gluten sensitivity test for $369 and you'll find out if you have antibody reactions going on, malabsorption, casein sensitivity, and a gene test is thrown in as well. Together with the knowledge you get from this easy to do test, you can then follow the diet for awhile to see how you do. Ultimately, the treatment for this is the diet and the doctors, after spending a ton of your money on all this often-vague and inaccurate testing, will just tell you to go on a gluten free diet and that's that. They're rarely any help in that part of things. For myself, I saw no reason whatsoever to support an inept and clueless medical system with lots of my hard earned $$$.....far more than the $369 I spent at Enterolab, that's for sure. I learned what I wanted to know very easily and cheaply. If you read this board thoroughly, you will find a LOT of people who went the traditional clueless doctor route and spent a LOT of money, time and continued suffering, only to eventually in desperation go to Enterolab to get their answers. By the way, you can bet $$ that your doctor will know nothing about Enterolab. Doctors aren't very cutting edge in most cases. If they haven't personally had experience with a condition, then in their minds it might not exist. Go to www.enterolab.com and do some reading....lots of information there about their testing and ideas about celiac disease.

oaktownboy Newbie

i have been on the gluten free diet for a couple months now and i keep getting worse and worse. my intestinal problems continue..i have no hope left..that's why i need the test..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,373
    • Most Online (within 30 mins)
      7,748

    Alexis Parker
    Newest Member
    Alexis Parker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.