Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do When You Get Glutened?


coco-loco

Recommended Posts

coco-loco Rookie

Hey, don't this'll be as fun as my other topic!

I've managed to eat some gluten (yet again!) within the last 48 hours. I've had minimal D but quite a lot of gas/bloating/funny noises in my tummy and I'm brain-fogged and down.

I was wondering if any of you know of any helpful action to take rather than just waiting to get over it? I've taken vitamins, echinacea, acidophilus and aloe vera juice (as I do every day) but they don't seem a huge help. Sometimes, when I get really bad D I want to take Imodium but I would have thought that would just keep the gluten in my system longer, potentially doing more damage. Right now, I'd love a dose of colonic irrigation- I've never tried it, but I've started dreaming about it! I wondered if anyone knew of any preparation which helps when you get glutened, and which is a bit more practical in the short term than a colonic!

Thanks for sharing x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply
penguin Community Regular

I always drink a red bull at the first sign of glutening (I'm having one now!). The caffene brings the energy up to a halfway decent level, and all the b-vitamins help the brainfog. Immediatley after glutening, it's my best weapon. I'm sure the niacin does something good, too. I have problems taking regular vitamins, so it really works for me.

Also a healthy dose of my bentyl and some tylenol help the tummy. I would say immodium is fine.

cgilsing Enthusiast

I wish I had better advice for this one.....I generally end up just suffering through it, but I know some people swear by anything with ginger.....if you get D immodium will help.......and there has been discussion about nuleve for cramping. Hope you feel better soon!

coco-loco Rookie

Thank you both! I wasn't sure red bull was gluten-free, I'll try some. I might mention those drugs to my doctor when I next see him.

I've heard a lot about ginger. That's an old Indian remedy for an upset stomach. I'll have a go. :)

GreySaber Apprentice

I carry cards of immodium in my wallet.

There is a solution which I call the "Roto rooter" technique.

Basically, you eat WAY TOO DAMN MUCH FIBER, and keep eating it. It's like.... ramming a toilet plunger through a garden hose. pushes everything before it. A very large bowl of brown rice seems to work.

odcdinah Contributor

So the fiber helps you combat the glutening effect?

]

cgilsing Enthusiast

I've tried fiber before and it didn't do anything for me once I already had C. A Dr. told me that fiber can actually have the opposite affect if you are already C too......I would procede with caution.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

echinacea, if you've been glutened, may not be a good idea, since you are boosting you're immune system, but it's an immune response gone awry that's the problem.

coco-loco Rookie
echinacea, if you've been glutened, may not be a good idea, since you are boosting you're immune system, but it's an immune response gone awry that's the problem.

Ooooh! Good point!! Think I'll try fibre as suggested.

ms-sillyak-screwed Enthusiast
I always drink a red bull at the first sign of glutening (I'm having one now!). The caffene brings the energy up to a halfway decent level, and all the b-vitamins help the brainfog. Immediatley after glutening, it's my best weapon. I'm sure the niacin does something good, too. I have problems taking regular vitamins, so it really works for me.

Also a healthy dose of my bentyl and some tylenol help the tummy. I would say immodium is fine.

NUTRITION FACTS & INGREDIENTS

Red Bull Energy Drink

Ingredients: carbonated water, sucrose, glucose, sodium citrate, taurine, glucuronolactone, caffeine, inositol, niacin, D-pantothenol, pyridoxine HCL, vitamin B12, artificial flavours, colors

Nutrition Facts: Serving Size: 8.3 fl. oz Servings per Container: 1 Amount per serving: Calories: 110 Total Fat: 0g Sodium: 200mg Protein: 0g Total Carbohydrates: 28g Sugars: 27g

Red Bull Sugar Free

Ingredients: carbonated water, sodium citrate, taurine, glucuronolactone, caffeine, acesulfame k, aspartame, inositol, xanthan gum, niacinamide, calcium pantothenate, pyridoxine hcl, vitamin b12, artificial flavors, colors

Nutrition Facts: serving size 1 can; calories 10; fat 0g; sodium 200mg; total carb 3g; sugars og; protein less than 1g; niacin 100%; vitamin b6 250%; vitamin b12 80%; pantothenic acid 50%

RED BULL WILL MAKE ME VIOLENTLY SICK. I SEE WHY!

I've heard a lot about ginger. That's an old Indian remedy for an upset stomach. I'll have a go. :)

GINGER MAKES THINGS WORSE FOR ME.

SIMPLE IS BETTER IN MY CASE. I POP A COUPLE IMMODIUM PILLS OR LIQUID, AND THEN I DRINK A BOTTLE OF PEDILYTE. PEDILYTE IS THE SAFEST WAY TO REPLACE YOUR LOST ELECTROLYTES LOST FROM STEATORRHEA-DIARRHEA. A SMART DOCTOR WILL TELL YOU THAT. IT HAS HELPED ME MORE THEN ANYTHING! TRY IT -- YOU'LL SEE...

coco-loco Rookie

Ms Sillyak: What's pedilyte? I had to google it. Is it something to do with infants, something meant to help babies? (I'm in Britain- never heard of it). Thanks for the advice, though. It's very welcome! X

ms-sillyak-screwed Enthusiast
Ms Sillyak: What's pedilyte? I had to google it. Is it something to do with infants, something meant to help babies? (I'm in Britain- never heard of it). Thanks for the advice, though. It's very welcome! X

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

This stuff is a life saver for me. If I'm laying on the bathroon floor after a seizure and steatorrhea diarrhea that has me weak and frail I drink this stuff. It's like a miracle treatment. I keep a bottle un-opened under my bathrrom sink, so I can get to it easy from the floor. When I feel like I'm shaky, or weak or like I have no blood in my veins, this perfoms miracles for me.

Yes, it's for babies. Some other companies make it in the health-food stores, but they have additive I don't want. The one I drink is the un-flavored one (clear). This is better at replacing electrolytes, more so then gatorade or sports drinks. It's expensive $4 or $5 a bottle. But it really really works. TRY IT!

coco-loco Rookie

Thank you! I'll see if I can get hold of some. Take care. X :)

Guest nini

I got glutened yesterday and today I was craving bread... so I made gluten free pantry muffins (added banana's for potassium) and then for lunch had brown rice and steamed broccoli... I've been drinking a ton of water... the "D" seems to have stopped but now I am all crampy and bloated and freakin ITCHY!!! at first I couldn't see a rash but now I've got a visible bumpy rash all over my body...

GreySaber Apprentice

Actually the idea of the heavy fiber to is push everything out of your intestines as quickly as possible. Something like a couple of bowls of brown rice will do that. It won't clean the blood, but the sooner it's out of your intestines the better.

Matilda Enthusiast

..

Alexandra Newbie

A mom whose blog I read posted the following recipe for homemade Pedialyte. She and her DH came up with this by reading labels (and maybe the internet), to save money -- because what pedialyte actually is, is cheap if you mix it yourself. Obviously this might or might not be worth fooling with (and I'm not sure if it would keep unrefrigerated forever), but FWIW (the below is almost verbatim from her blog) --

---------

Basics: Mix --

one level teaspoon of salt

eight level teaspoons of sugar

one liter of clean drinking water

Among its medically useful ingredients, Pedialyte also contains sodium citrate, one of the components of citric acid, and potassium. If your child can keep food down without vomiting you can supplement your homebrew with some mashed banana at mealtimes; if not, you can add 1/2 c. orange juice to the homemade solution.

We found that adding

3 tablespoons of Splenda

1 packet unsweetened Kool-Aid, fruit punch flavor

...improved the flavor's drinkability, as seen from a toddler's perspective.

----------

Your mileage may vary!

-- Alexandra

Guest BERNESES

it depends on what your symptoms are- for me, it's usually nausea, vomiting, headaches, constipation and mood swings. I take Tylenol for the headaches, this stuff called Ipecachuana for the nausea (i used to take Phenergan but it was WAY too constipating). I may also take a little extra anxiety medicine and if I get really "stopped" up i take this stuff called CleanseMore by a company called Lame Advertisement.

I also make ssure I eat- rice, gluten-free toast, something mellow. I don't feel like eating but I feel worse if I don't.

it depends on what your symptoms are- for me, it's usually nausea, vomiting, headaches, constipation and mood swings. I take Tylenol for the headaches, this stuff called Ipecachuana for the nausea (i used to take Phenergan but it was WAY too constipating). I may also take a little extra anxiety medicine and if I get really "stopped" up i take this stuff called CleanseMore by a company called Lame Advertisement.

I also make ssure I eat- rice, gluten-free toast, something mellow. I don't feel like eating but I feel worse if I don't.

Matilda Enthusiast

..

Guest BERNESES

It's a homeopathic remedy made by a company called Boiron and I know that ipecac induces vomiting but this does the opposite for me. And the good thing is it doesn't constipate me or make me even more tired like the phenergan did.

eKatherine Apprentice
A mom whose blog I read posted the following recipe for homemade Pedialyte. She and her DH came up with this by reading labels (and maybe the internet), to save money -- because what pedialyte actually is, is cheap if you mix it yourself. Obviously this might or might not be worth fooling with (and I'm not sure if it would keep unrefrigerated forever), but FWIW (the below is almost verbatim from her blog) --

---------

Basics: Mix --

one level teaspoon of salt

eight level teaspoons of sugar

one liter of clean drinking water

Among its medically useful ingredients, Pedialyte also contains sodium citrate, one of the components of citric acid, and potassium. If your child can keep food down without vomiting you can supplement your homebrew with some mashed banana at mealtimes; if not, you can add 1/2 c. orange juice to the homemade solution.

We found that adding

3 tablespoons of Splenda

1 packet unsweetened Kool-Aid, fruit punch flavor

...improved the flavor's drinkability, as seen from a toddler's perspective.

----------

Your mileage may vary!

-- Alexandra

Speaking of mileage varying...

The original research from which pedialyte later was developed was intended to produce a recipe for Oral Rehydration Therapy that mothers in the third world could make themselves to use to save the lives of their children with severe diarrhea. They found that any sort of sugar or soluble starch would work, with a lot of leeway on the proportions. I have never purchased the product. I have made my own from 1/2 teaspoon salt, 1 tablespoon sugar, and 1 quart of water.

whitball Explorer

When I get glutened, I suffer severe abdominal pain. I'm doubled over, in bed and usually end up just sobbing because it hurts so bad. Saturday, I had what I thought was a gluten free "Coco Loco" bar, and I was a mess. I was so desperate for a remedy, I took a Darvocet. In about 8 hours, I was in good enough shape to get out of bed. I'm not sure if this is for everyone, but it helped me.

GreySaber Apprentice
When I get glutened, I suffer severe abdominal pain. I'm doubled over, in bed and usually end up just sobbing because it hurts so bad. Saturday, I had what I thought was a gluten free "Coco Loco" bar, and I was a mess. I was so desperate for a remedy, I took a Darvocet. In about 8 hours, I was in good enough shape to get out of bed. I'm not sure if this is for everyone, but it helped me.

I hear stories like this, and I wonder if celiac is what I have. I get mild-medium intestial discomfort, and about 30 very distinct kinds of bad poo. I can describe, (But won't) atleast 10 kinds of bad poo off the top of my head. And I think I have it bad, and then someone comes along with symptoms so far in excess of mine that it makes me ponder if it's the same illiness.

Even so, I hate my poo.

ms-sillyak-screwed Enthusiast
I always drink a red bull at the first sign of glutening (I'm having one now!). The caffene brings the energy up to a halfway decent level, and all the b-vitamins help the brainfog. Immediatley after glutening, it's my best weapon. I'm sure the niacin does something good, too. I have problems taking regular vitamins, so it really works for me.

I looked at the vitmins in RED BULL and I was suprised. -- niacin 100%; vitamin b6 250%; vitamin b12 80%; pantothenic acid 50% -- I know when I get a B-12 shot, it has folic acid and pantothenic acid too. The pantothenic acid makes a big difference for me. Like ChelsE said the caffene lifts her energy.

I can see how it works. I'm just hypersenstive and am extremely limited and cautious about the natural flavor and natural ingredents, they hide so much there that makes us sick and we don't know it until later.

I carry cards of immodium in my wallet.

I do the same thing - along with an anti colon-spazm pills.

This isn't a repair stategy, but something I considered doing today to try to prevent someone scattering pizza and doughnut crumbs around the kitchen with gay abandon - I seriously considered asking my DH to look in the toilet before I flushed it. I didn't do it. But ... I really feel like saying "Look!!! See how abnormal this is!!! How do you think I feel with that coming out of my bottom???"

Matilda -- Honestly I like the way you think. I think we should show them -- I know I feel the same way!

It's called steatorrhea diarrhea: fat in the feces which are frothy and foul smelling and floating; a symptom of disorders of fat metabolism and malabsorption syndrome. Foul-smelling loose bulky pale stool... People who don't have this have no-idea what we go through!

Basics: Mix --

one level teaspoon of salt

eight level teaspoons of sugar

one liter of clean drinking water

Among its medically useful ingredients, Pedialyte also contains sodium citrate, one of the components of citric acid, and potassium. If your child can keep food down without vomiting you can supplement your homebrew with some mashed banana at mealtimes; if not, you can add 1/2 c. orange juice to the homemade solution.

We found that adding

3 tablespoons of Splenda

1 packet unsweetened Kool-Aid, fruit punch flavor

...improved the flavor's drinkability, as seen from a toddler's perspective.

Sounds good -- but watch out for words like natural ingredients or natural flavors. They are allowed to trick us using those words they hide. Kool-Aid is is no no for me. And Spenda triggers my migraines... But your recipe for homemade Pedialyte looks safe. Thanx

Also one other thing I don't know if any of you follow that school of thought. DISTILED WATER ONLY. I noticed a big difference only drinking distilled water instead of spring water. It has too many minerals our sick bodies don't need to process. Other people have said they feel better with distilled too.

When I get glutened, I suffer severe abdominal pain. I'm doubled over, in bed and usually end up just sobbing because it hurts so bad.

I know your pain...

I hear stories like this, and I wonder if celiac is what I have. I get mild-medium intestial discomfort, and about 30 very distinct kinds of bad poo. I can describe, (But won't) atleast 10 kinds of bad poo off the top of my head......

Even so, I hate my poo.

People have no idea what it's like and we all have varing degrees over time...

Life with ste·a·tor·rhe·a!

penguin Community Regular
I looked at the vitmins in RED BULL and I was suprised. -- niacin 100%; vitamin b6 250%; vitamin b12 80%; pantothenic acid 50% -- I know when I get a B-12 shot, it has folic acid and pantothenic acid too. The pantothenic acid makes a big difference for me. Like ChelsE said the caffene lifts her energy.

I can see how it works. I'm just hypersenstive and am extremely limited and cautious about the natural flavor and natural ingredents, they hide so much there that makes us sick and we don't know it until later.

With all of your other intolerances, I would definitely try to figure out what is in the natural flavors. I can tell you with certainty that Red Bull is gluten-free, but I don't know about everything else.

One crisis at a time, for me anyway!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,337
    • Most Online (within 30 mins)
      7,748

    Susan1001
    Newest Member
    Susan1001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.