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Misc. Questions

Aquina1300

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Aquina1300 Rookie
Aquina1300
Posted

Hello Everyone! :D

I had my biopsy Tuesday, April 25. The Doc took 4 samples. I made an appointment with my family practitioner May 9 for the results. My blood test was inconclusive because IgA was normal but IgG was elevated. I have experienced several pregnancy/miscarriages. I was also diagnosed with anemia and hypothyroidism. I also have a nephew who is seventeen months who was diagnosed with celiac disease at fifteen months. I have been gluten free since April 25. :D

I don't want to do a second biopsy so I won't go back to gluten and I am hoping that the Doc will diagnose me on a "gluten challenge" alone. Do Doctors still do this?

Also, does anyone know if someone with celiac disease can have vodka, whiskey, gin and tonic water? B)

I thought I had an allergy to some shampoos, soaps or perfumes but since trying a gluten free masscara, I've been thinking that it may be celiac disease related. Does anyone have this symptom? What do I look for in shampoos, soaps and perfumes that trigger a reaction? Any suggestions?

One of these posts said something about Covergirl eye makeup being gluten free. I tried it and it didn't bother me. thanks whoever said that. :D

In case anyone was wondering, I am the girl who bakes bread for a living. Someone made a reply to me here and linked to a site with a handout on celiac disease that I gave to my manager. Since then, the owner of the company moved me to an office job which I like alot. thanks to whoever linked me to the handout. I think it was JenVan. ;)

Also, I think Ursula said something about hypothyroidism being linked to celiac disease. I asked my Doc that question but she said she doesn't know anything about celiac disease and doesn't have the time to research it. Do you know where I could find something about a link or what to expect now that I am gluten free? :)

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jerseyangel Proficient
jerseyangel
Posted

Hi--Here is a link to safe alcoholic beverages--

https://www.celiac.com/st_prod.html?p_prodi...-12106075273.ec

For personal care products, begin by reading the labels. If there is nothing obvious there, you can call the company and ask them to be sure. You can do a search here for shampoo or makeup and tons of products and information will come up.

There are doctors who will diagnose on the positive response to the diet--some won't. Of course, if you feel better off gluten, given your elevated blood result and the fact that there is Celiac in your family--you could just go gluten-free and stay that way.

nettiebeads Apprentice
nettiebeads
Posted

Patti is right - and you don't need a dr's permission to do the gluten-free diet. You could try it right now seeing as the biopsy has already been done. Even if the biopsy comes back neg, you could still very well have celiac disease. My current gp thinks that the tests aren't sensitive or accurate enough to totally rely on them, except of course when they come up positive.

Words to look for on toiletries: wheat protein, wheat starch, aveno (which is oats) wheat germ, wheat germ oil. Covergirl face powder I know is off limits. After while you will find things that work for you, but you will always need to check labels as formulas can change without notice.

moonunit Apprentice
moonunit
Posted
I don't want to do a second biopsy so I won't go back to gluten and I am hoping that the Doc will diagnose me on a "gluten challenge" alone. Do Doctors still do this?

Hi there! I don't have the other answers for you (but the people on the board here are very knowledgeable and can help you!) The "gluten challenge" is where you DO eat lots of gluten for a set period of time after having gone gluten-free and then get a biopsy or blood test. I think what you are asking is will docs diagnose on a positive response to a gluten-free diet alone. And the answer to that appears to be that some of the more up-to-speed doctors will... the less they know about celiac disease, the less likely they will allow it, it seems.

I only mention this because if you go into the doc asking for a "gluten challenge" diagnosis and he/she tells you to go home and eat three slices of bread immediately, they aren't being obnoxious, they're trying to do what you're asking of them. :)

Good luck, and I'm so glad you found a way to work safely and happily! I was a little worried about you! :)

Aquina1300 Rookie
Aquina1300
Posted
  • Author

Hello Everyone :D

JerseyAngel, Thank you for the list of safe drinks. I noticed budweiser wasn't on there. My co-workers tell me it's made from rice and should be safe, but I think I will stick with what's on the list. I don't like Budweiser anyway. About makeup, do you know if Dr.Hauschka makeup is okay? I hear that they sell this makeup in whole food stores by gluten free products (That's what a friend of a friend said).

nettiebeads - I didn't know that aveno is made from oats. Wow, The amazing things I am learning about how to read labels. don't ya just wish the manufacturer would just be upfront about whether or not a product is made from wheat, barley, rye or oats........<----------rhetorical question.

moonunit - I dont' think my doctor is going to be one of those who diagnoses based on changes in a gluten free diet alone given what you said. I am hoping that if the anemia and hypothyroidism clear up, the doctor will just give the diagnosis. I would like to have the diagnosis in case something happens at work. Although I am really surprised at how much my co-workers and the owner are going out of their way for me. I didn't really expect that. I am in the office part of the building. There's still alot of flour around so I am still a little worried, that's why I want the diagnosis. I'm not really unhappy with my Doc. I would rather the Doc is upfront with me about her competence with celiac disease. At some point, I think I will go to the city and see what a better Doc thinks.

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