Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Paxil

Danijela

Recommended Posts

Danijela Contributor
Danijela
Posted

hello everyone!

i was just wondering if anyone has sucessfully been freed from paxil

i'm hopping to go off of it very soon i've been on it for almost a year and a half

i've heard all kinds of horror stories about withdrawls never ending and such

if there is anyone out there that has taken paxil and sucessfully got off it please let me know

how much you were taking and for how long and about your withdrawls if any

any advice or support is welcome

thanks you!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

I have been gluten free for almost 5 yrs and when I did go gluten free, I had been taking paxil for at least 3 years. At the time I was taking 40 mgs and was still having panic attacks. After about 3 months of gluten free, I decided to wean myself off paxil--DO NOT GO COLD TURKEY! Slowly decrease the dosage, cut them in half and in a few days, take that half every other day--work off them, dont stop one day. I did have "on edge" days, teary days, b%$@#y days--days when others would ask me to please take my paxil, but I presisted and was off them completely in a few months. There are still times I wish I had it, but I know I dont need it. You can do this hun, you really can. Feel free to email me at darlindeb25@aol.com just please put in the subject line that you are celiac, I dont open mail I dont know. Deb

Guest nini
Guest nini
Posted

it took me a while but by gradually cutting the doseage down I was able to wean myself off of it... get your Dr.s support on this one, because if you don't have their support that alone can create more anxiety. They may be able to give you some helpful hints for lowering your doses. I bought a pill cutter and started cutting mine in halves then thirds then gradually to even tinier portions... like I said, it took a while, but I was able to do it. I'm so glad to be off of that stuff.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

As you wean yourself off (and I agree that slow weaning is the best for any med, or even caffeine!), it would probably make a HUGE difference if you could get a good hour of exercise and fresh air EVERY day (a one-hour walk would kill 2 birds with one stone, so to speak). If it rains, then wear a rain poncho (umbrellas are really too much of a pain to carry, especially if it's windy) or else go to the mall and walk. And SWING YOUR ARMS when you walk--it releases endorphins and perks you up!

My OBGYN wanted to put me on Paxil for post-partum depression (PPD). A friend of mine who had been through both PPD and Paxil came over and DRAGGED me and the baby out of the house for a walk, saying that that's how she got off Paxil in the first place, so it ought to work on my PPD. She was right--I felt better within half an hour. NOt all the way better, maybe not even halfway, but noticeably and definitely. Every day that I got outside, I improved. On days that I didn't, I went backwards, so I learned not to skip days.

If you belong to any kind of religious group, that might be a source of good support, too.

Best of luck to you. Will you please keep us all posted on how you're doing?

  • 2 weeks later...
quantumsugar Apprentice
quantumsugar
Posted

I stopped pretty slowly, and it was pretty intense. I got super-angry (wailed on a poor punching bag, went outside and ran hard to avoid yelling at my family). Had several other symptoms as well. My advice would be to have someone (a mother, husband, etc) who will listen to you and keep you grounded (remind you that you're not going crazy, but going off an addictive medicine). Exercise is also a good idea.

On a happier note, the thinking-I-was-going-crazy symptoms were pretty short lived, some of the other ones stuck around for a few months longer, but it's been years since I've been near Paxil or had any noticeable after-effects. Also, while I was on Paxil I sort of stopped caring about anything, and when I went off it, I started to CARE about life again. It was really nice.

I wish you the best of luck. If you have any other questions, or want to talk about it, PM me.

Guest BERNESES
Guest BERNESES
Posted

Everyone has given you great advice- Paxil can be hard to get off BUT if you go slow, you can do it! There's a whole recommended length of time to taper different meds and I'm not sure what it is for paxil, but I'm slowly tapering klonopin (anxiety) and they say that you can cut down 1/2 mg every ten days (i'm on 1.5 mg). I wouldn't even dream of going that fast- my doc told me to do it at my own pace. I know Paxil is completely different, but my point is go slow and take it easy on yourself.

I think exercise will help a lot. Many of the symptoms you experience (or maybe you won't have any at all!) are refractory- they're not "real", just a result of the tapering and they won't last. Be well! B

tarnalberry Community Regular
tarnalberry
Posted

I don't know if you can get Paxil compounded, but if weaning off slowly is needed, you might see if you can get it compounded into a liquid so that it's easier to cut the dosage slowly, but accurately. It may be more expensive, but it also sounds like getting off it successfully is important to you. :-) Good luck! :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nursestherapies Rookie
nursestherapies
Posted
hello everyone!

i was just wondering if anyone has sucessfully been freed from paxil

i'm hopping to go off of it very soon i've been on it for almost a year and a half

i've heard all kinds of horror stories about withdrawls never ending and such

if there is anyone out there that has taken paxil and sucessfully got off it please let me know

how much you were taking and for how long and about your withdrawls if any

any advice or support is welcome

thanks you!!!

I just went off Paxil. It was very tough but possible. I had weird dreams, some insomnia, some mental fogginess. I would recommend that you decrease only a tiny bit at a time and only once a week. That would make it a lot easier. Karen

Guest BERNESES
Guest BERNESES
Posted

Actually tarnalberry's suggestion is a great one! If you can get it in liquid form (i did Celexa in liquid form while I wasn't really absorbing anything) it's so much easier to cut down slowly! i just googled it and it does come in an oral solution so maybe you can get your doc to prescribe it for you. Good luck!

ebrbetty Rising Star
ebrbetty
Posted

yes, go off it slowly, thats what is recommended..I went cold turkey and was fine, but I do that with most meds :blink:

  • 3 weeks later...
Danijela Contributor
Danijela
Posted
  • Author

thank you guys sooo much for your suggestions and support

i have decided to wait i little while longer to go off the way i'm

feeling know i don't think i could handle witdrawls as well

but trust me when i do start this hopefully within the next month

or two i will be in touch with you all

you have all been such a great help to me i don't feel so alone

anymore

i am putting up a new post re insulin levels please check it out it you

have any advice for me

thanks again:)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.