Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating


MsHeart&Soul

Recommended Posts

MsHeart&Soul Newbie

I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I find that I get bloated by a lot of things other than gluten. You may need to do an elimination diet to find out if you have other intolerances besides celiac disease. It's not too likely they will be as numerous as mine, but most people with celiac disease have other intolerances as well. The most common ones seem to be dairy and nightshades (potatoes, tomatoes, peppers, eggplant), soy, corn, but it could be anything.

I would start out testing the foods high in lectins (for more info, follow the link in my signature). Start by eliminating them all for at least two weeks, and see how you feel. Then test one group at a time.

I would try that first, before doing any more invasive tests.

Hope this helps.

lisaemu Contributor
I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo

I agree with paying attention to possible other intollerances, especially to dairy since a lot of people with celiacs seem to have that problem. Do you use a lot of gluten free subsitututes, like bread and muffins and such? A lot of them seem to be pretty high in calories and low in fiber, which can lead to eating more. I struggle with bloating too, and am trying to figure out what its from as well. Good luck!

  • 2 weeks later...
deena647 Apprentice
I agree with paying attention to possible other intollerances, especially to dairy since a lot of people with celiacs seem to have that problem. Do you use a lot of gluten free subsitututes, like bread and muffins and such? A lot of them seem to be pretty high in calories and low in fiber, which can lead to eating more. I struggle with bloating too, and am trying to figure out what its from as well. Good luck!

Hello, I get bloated in my lower abs. When I first started eating gluten free, about 4 months now my tummy and body felt lighter, now I have been feeling heavy. I do not eat alot of the sweets and I drink lactaid milk and use lactaid cheese, I also do not eat the gluten free flours, so I am so confused on my bloated feeling.

I love JESUS and I know He is with me......Deena

  • 8 months later...
Guest CarBear
I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo

I think I gained 20 pounds while I was first sick and unaware of my Celiac Disease. Slowly I have lost the weight, but now I am dealing with gallbladder/kidney issues and the HORRIBLE and DISGUSTING bloating feeling has reared its ugly head, although I am still religious about following my diet.

debb Newbie

Look for gluten in unexpected products. I found that I felt great at first, then after about 6 months I began feeling bloated again. A celiac friend told me about hidden sources of gluten that she had found, malt, caramel color and flavors sometimes, msg and more. Look on the celiac.org website. Another big one that I never thought about is beauty products. Sure enough many of my hair products contained wheat protein. Out they went! I still have occasional bouts of bloating and I am pretty sure it is related to eating hidden gluten in some form, it seems to be everywhere. I also found that my reaction time is slower than many, it may often take a day or even two for me to feel the effects of eating a food with gluten in it....I have a very sluggish system!

hathor Contributor

Have you been using any sugar-free products containing sorbitol? That makes some people bloat.

I agree that an elimination diet might be called for if you can't identify the problem. You can either take things out one at a time or start out with a diet without the usual irritants and then add things in one and a time and see how you do. I can find a link for the latter approach if you are interested. Or you can google and see what you find.

Have you noticed the tenderness after particular foods? How well are you digesting things in your stomach? Do you sometimes have the food just sit there and not move out, particularly a high fat meal? If you are having digestive issues higher up (you mention under the breast area), particularly in response to fat, it may be a gall bladder problem. This is something I dealt with before I changed my diet.

Yes, it was akin to the old joke, "Doctor, doctor, it hurts when I do this" ... "Then don't do that." I told him the foods that made my stomach hurt and he told me not to eat them. Yes, that's why he gets the big bucks :rolleyes:

I suggest keeping a food diary and seeing if you can find some pattern to your symptoms. Other than eliminating gluten, did your diet change in any other way? Any changes close to when you started bloating or has that been there a long time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Just another broken record saying "see if you can identify other foods causing this problem". Milk (lactose intolerance) is a *very common* culprit, but *MANY* other things can cause it as well.

Mayflowers Contributor

Being 25 pounds overweight would make one feel pretty bloated. I'm 40 pounds overweight. :blink:

flowergirl Rookie

After going gluten free there were still many things that made me bloated and caused green diarhea. :ph34r: You'll see in my signature that I avoid gluten free processed foods (like flours etc), soy, sugar and dairy. Things are much better now. When I'm not glutened, my tummy is flat more than 50% of the time. Last month we celebrated because for the first time in 7 yrs I can wear a size 12 jean. (I used to toggle between 14 - 18) Now it doesn't fit anymore... yesterday I managed to slip into a size 10. :rolleyes::lol:

Best wishes with indentifing the nasties and no-no's. I know it's hard but it can be done. I agree with the others. The elimination diet and a diary is the way to go. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.