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Gf And Dairy Free


Guest NitaB

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Guest NitaB

I'm trying the gluten-free diet. But when I had ice cream a few days ago, it hurt, too. So, I'm trying dairy free also. But, a bit of dairy, like my gluten-free salad dressing, doesn't seem to hurt. Nor does a bit of butter. I'm still not drinking milk, nor having ice cream. I need to know if having these smaller amounts of dairy will keep my lesions from healing as fast? Or, beings they don't hurt my stomach, is it oaky to use them, sparingly?

Thanks!

Nita


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kalo Rookie

Hi Nita. Someone correct me here if I'm wrong. From what I've gathered since being on this board, dairy problems will NOT damage your intestines nor keep them from healing. But they will cause symptoms. Maybe someone can expound a little better on this. I'm glad you've been doing so well over all and hope you keep it up. Hugs, Carol B

flagbabyds Collaborator

The enzymes to digest dairy are on the tips of the villi and if you have been severly damaged by celiac then your villi will be destroyed and there will be no enzymes to digest dairy left. i am not sure if this will slow your recivery but if anything makes you sick, take it out of your diet

Mark Newbie

I also need to be diary free, cos there is a protein called casein in the diary, and, by my opinion, it can cause some light damage as well, or at least keep you from healing faster. Enterolab does the testing for milk intolerance as well.

Mark

Gluten-free Casein-free since September 03

Guest NitaB

Carol, Molly, and Mark,

Thanks you for taking the time to reply!

I'm still able to have small amounts of dairy, with no pain. I have a Dr. appt. on Tues, and hope she can tell me if it is damaging, when not being painful. I haven't seen this reg. Dr. since my diagnosis, so don't know what she knows about gluten-free.

Nita

Mark Newbie

This is what I've found under this Site Index > Allergy vs. Intolerance > Will Other Foods Affect the Villi?

Q: If I am sensitive to milk and eggs...could they damage my villi in the same way as gluten?

A: There’s a specific note in Michael Marsh’s book about food allergies causing villi damage. That’s the book "On Coeliac Disease", page 155. Table there shows that the Type 3 stage of intestinal response, "flat destructive" does occur with milk, egg, soya and chicken or fish allergies. It differs from the celiac response in that only 1 or 3 of the 5 stages of lesion connected with celiac disease occur with an allergy.

To find out whether you have the other food intolerance, you need to run IgA and IgG tests for casein & lactalbumin (milk) and ovalbumin (egg). Don't know if there is any test available for the other foods mentioned.

MARK

gluten-free/CF since September 03

Guest NitaB

Thanks Mark!

I went back to that section and read again. I'm sure I've read a lot, but can't remember what or where!

I had my regular Dr. appt. yesterday. She says dairy doesn't further damage the villi, but to refrain from dairy for a short time, until the healing gets started. Just because it is harder to digest. Then I can add it back.

I was pronounced very healthy! Other than I have to conform to the gluten-free diet, to stay healthy. All those years of taking vitamins and supplements must have paid off. I never have been anemic, and could've had celiac disease for many years!

Lucky for me, there is a DR. in mine's office that has celiac disease, and I can get plenty of literature! And they will find a knowledgeable celiac disease dietician for me to see. So, I will have plenty of help available to me.

Nita


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    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
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    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
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