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How To Gain Weight?

heathen

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heathen Apprentice
heathen
Posted

i was diagnosed with celiac disease in February and have been sticking to the diet as best i can (although i'm sure i'm still dealing with contamination). i'm 24, almost 6 ft. tall, and i'm fighting to maintain 125 lbs. at my worst, i was 110 and falling. i'm drinking 1-2 weight-gainer ensures a day, eating (and hungry) almost constantly, taking a good multivitamin and calcium with vitamin D, but i can't seem to gain any weight even though all of my other celiac symptoms are under control. the doctor wants me to take a pill they give to chemo patients, but i would rather not add 1 more med to the regiment. any suggestions?

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CarlaB Enthusiast
CarlaB
Posted

You know how people on a diet to lose weight always try to choose the lowest calorie food when eating? I just reversed that. I ate healthy, but would add in some high-calorie items that were not necessarily good for me as snacks. I also did not hesitate to eat twice as much as anyone else at the table!! I remember one time being out with my husband and 6 other men from around the country who sell the same product he does. I ordered a New York Strip, salad, mashed potatoes, and a veggie. They all ordered the petit filet. When my huge steak came, one of the guys said, "Yea, right, I'd like to see you eat all of that!" Another guy at the table, who's eaten with me before said, "You've never seen her eat, last time I was out with her, she ate a steak bigger than her Mini-Cooper!" I ordered dessert (they called the guy who made their ice cream at home to find out the ingredients!!) after eating all my dinner!

So, don't worry what anyone thinks ... eat, eat, eat! Just yesterday I took my daughter out to PF Changs, ate twice as much as her, then munched on gluten-free pretzels on the way home! I had been glutened on Saturday and am eating a little more than normal. I'm finding that after 4 months gluten-free, I'm not eating quite as much as I used to, but still more than you would think someone my size would eat.

Also, find out where you're still getting contaminated. For me, it was a barley product in my vitamins that was the ongoing problem. The next thing I discovered was wheat in my shampoo.

Carla

Felidae Enthusiast
Felidae
Posted
i was diagnosed with celiac disease in February and have been sticking to the diet as best i can (although i'm sure i'm still dealing with contamination). i'm 24, almost 6 ft. tall, and i'm fighting to maintain 125 lbs. at my worst, i was 110 and falling. i'm drinking 1-2 weight-gainer ensures a day, eating (and hungry) almost constantly, taking a good multivitamin and calcium with vitamin D, but i can't seem to gain any weight even though all of my other celiac symptoms are under control. the doctor wants me to take a pill they give to chemo patients, but i would rather not add 1 more med to the regiment. any suggestions?

Wow do you sound like me except that I am slightly older. I'm 5'10" (and a half) and 120 pounds. My weight has not changed since going gluten-free, it just sits at 120. Prior to being gluten-free I would go up and down from like 110 to 130. I take the same vitamins as you do. I eat constantly. If I could tolerate dairy I'm sure that I would gain about five pounds. But I've accepted that this is my weight and only exercise may alter it slightly in the future. Also, I like to eat fairly healthy, except for Kinnikinnick products.

Good luck with your weight gain. Sorry that I don't have any ideas.

flagbabyds Collaborator
flagbabyds
Posted

Okay I'm 5'8" to 5'9" and arond 90-95 pounds, and 15, so guess what i am accused of anorexia! but then when they see me eat, they think i am bulimic, cause i eat so much.

I went to brunch with my grandparents and my uncle, and first ate like 10 pieces of bacon, and 5 sausages, with cheese and fruit, and shrimp. Then when i went to get my omlette, my uncle challenged me that i couldn't eat the whole omlette. I proved him wrong by eating 2 omlettes and more bacon (all gluten-free of course) and then going to my soccer game and scoring the winning goal in the last 30 seconds.

I eat so much, maybe try eating a lot of ice ceram, this summer after jaw surgery, i had like 2 tubs a day so i could get back up to at least over like 80 pounds.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

I've been doing great with the help of my -- believe-it-or-not -- Chiropractor.

I went from 98lbs I'm up to 109lbs today when I got on the scale... He is doing wonders for me and has changed my patterns....

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
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      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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