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Another Gross Question, I Am Sure It Has Been Asked Already

TinkerbellSwt

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TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Ok, one day I have the big D, the next I am so constipated I have to use an enema. What is the deal here? I am ingesting gluten and I dont know it and I am reacting by constipating? I am so frustrated!

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jenvan Collaborator
jenvan
Posted

Well, at this point there is no real sure way of telling. Possibilities--yes, you have gotten some gluten or you are reacting with constipation to another food, such as dairy (I do that) or your diet is poor and you need to chock up on fiber. (Don't be offended by that-b/c I have no idea what your diet is like! :) )

My recommendation is to keep a food and symptom journal. That should help you identify an offending food or product and link it to specific symptoms.

Guest nini
Guest nini
Posted

are you taking any digestive enzymes and probiotics? if not, you really should.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

I am going to try the food diary, and I am sure I probably dont get enough fiber. Can anyone tell me what are probiotics? and digestive enzymes?

ravenwoodglass Mentor
ravenwoodglass
Posted
Ok, one day I have the big D, the next I am so constipated I have to use an enema. What is the deal here? I am ingesting gluten and I dont know it and I am reacting by constipating? I am so frustrated!

Is this constipation something painful? Or do you simply not go? It is normal to not have a bowel movement the day after you have been cleaned out by D. Each persons different but it can take as long as 3 to 4 days for food to travel the whole route. Enemas can be dangerous, they can upset the balance of the intestines and are not good for routine use. Probiotics and or yogurt, as I think someone mentioned are something you should try along with increasing your fiber from fruits and veggies.

I am going to try the food diary, and I am sure I probably dont get enough fiber. Can anyone tell me what are probiotics? and digestive enzymes?

You can get probiotics and digestive enzymes at most health food departments or perhaps your pharmacy. The probiotics help to restore the proper balance of good bacteria in your intestines. If you don't like pills look for a live culture Gluten Free Yorgurt. Digestive Enzymes help you to more completely digest your food.

Make certain they are Gluten Free whichever you try.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

oh yes, the constipation is painful. It is not that I am merely not going to the bathroom. I end up feeling like I have to go, and nothing, just painful. Then, unfortunatly I have to use the enema. I have tried being a doctors guinea pig once before, so I am rather apprehensive about doc's when it comes to celiacs. They had me on so many vitamins and such, I have a collection. The one thing that worked, maybe this is considered a digestive enzyme was something called Threelac. My ER doctor prescribed it, then took me off it. When I took it I had normal bowels everyday. It has a lot of yeast in it. I dont think so much yeast did me any good either. Should I try taking that again? Threelac is also sold on amazon for anyone who doesnt know what it is and wants to see it. I would appreciate any opinions.

junie20002 Newbie
junie20002
Posted
oh yes, the constipation is painful. It is not that I am merely not going to the bathroom. I end up feeling like I have to go, and nothing, just painful. Then, unfortunatly I have to use the enema. I have tried being a doctors guinea pig once before, so I am rather apprehensive about doc's when it comes to celiacs. They had me on so many vitamins and such, I have a collection. The one thing that worked, maybe this is considered a digestive enzyme was something called Threelac. My ER doctor prescribed it, then took me off it. When I took it I had normal bowels everyday. It has a lot of yeast in it. I dont think so much yeast did me any good either. Should I try taking that again? Threelac is also sold on amazon for anyone who doesnt know what it is and wants to see it. I would appreciate any opinions.

Hi newbie here I was diagnosed about 2 yrs ago but it seems to be getting worse and I do have the same problem as you do one day the big D is around the next is mainly pain!!!! I also do not know what else to do I am in a 99% gluten free diet and I feel miserable <_< does any one get Nausea and vomiting and extreme pain after eating ? I have been popping laxatives like if they were can dy just to relief the pain. help!!!!!

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key Contributor
key
Posted

I have major D if I consume alot of gluten. Most of the time I have C. It is VERY annoying. If I eat fiber, I feel gross and major stomach pains. I wake up at night almost every night with pain in my abdomen. I feel like my food is just not digesting right at times. I have this weird feeling at night as if there is something "crawling" in my intestines. I toss and turn almost everynight and just don't sleep well. I am not severely constipated, so I don't feel that is the problem. It is like a low dose of gluten I am getting everyday. I just don't know anymore. For now I am trying to eliminate soy. I am through ever eating out. I seem to get sick everytime, no matter what I eat. I too get nausea sometimes. I am extremely frustrated with my body right now. This has been going on pretty steadily for a year. I don't take laxatives though. I just quit eating or drink coffee and then I will be ok.

HOpe you find the answers, but I think it could be a low dose gluttening. I don't know what else mine could be.

Monica

Lisa Mentor
Lisa
Posted

This may sound a little trivial to you, but, I always have a large container of cooked brown rice in the refer. and I add it to every meal that I eat.. To me it works well. I don't know if that will solve your problems. I do remember years ago when I would be bending over in a cold sweat with what I could relate to labor pains in my abdomin and then finallly to pass what was in me. I thought that I would pass out. Dr. said is was severe IBS (I, Be Stumped?)

Honestly, I don't know when my Celiac started, but I do know when the "high" symptoms kicked in....and I can recall the date. Apparently, I was a-symptomatic, with the genetic link for many years.

Everyone if different here and there are many stories and few are the same. So it is a puzzle that we have to put together for ourselves. There is knowledge here, but we also have to do our own reseach for find what fits our need to make us better.

Hope this will be helpful, Lisa

lorka150 Collaborator
lorka150
Posted

When I get glutened, like clockwork, 'd' the first day or two, then C the next. That's my first symptom to go away, then I get hit with everything else for a week.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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