Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Speed Of Onset Of Symptoms

Dinbren

By Dinbren
in Coping with Celiac Disease

Recommended Posts

Dinbren Newbie
Dinbren
Posted

Hi all:

I had suspected I had Celiac for sometime. First test was negative. Second, after pneumonia, 6 miscarriages and 2 years of intolerable stomach upsets was very positive. Although I think, as many of you have said that I had it for years.

For the last two years particularly I felt like it was 4 o clock in the morning at all times because I was so tired. Partially iron no doubt.

My question is --- learning to stay gluten free is incredibly difficult. After six months and one fall off the wagon (because I didn't realize that many chinese restaurants use wheat flour to thicken their sauce) I am feeling pretty good again.

My question is, how quickly after taking a trace of gluten - eg in cross-contaminated food do you realize you have done so? And, how quickly do the symptoms like fatique and stomach problems come back. While gluten free I am one of the very lucky people who seems to be 100% ok but I am finding that I am suddenly feeling very tired - like today - and last night I ate out at a Mexican restaurant - carefully informed the chef but not sure it worked this time!

Am I just tired or can Celiac come on so quickly?

Thanks very much to a newbie to the issue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted

Yes its possible that you got glutened. Some people react immediately, some take a few hours and some only react the next day. I usually notice in 5-6 hours or so if I accidentally eat something with gluten.

You might feel tired for a while. I usually feel completely normal two.three weeks after a glutening, but I'm tolerably ok after a few days.

Pauliina

mouse Enthusiast
mouse
Posted

I always have an energy problem, so I can't use that as an answer for me. In the beginning I reacted in 20 minutes. I now react within 3 to 4 bites if it is gluten. If it is cross contamination, it takes 20 minutes for me to know. I get such severe heartburn that I think I am having a heart attack. Then the cramps start.

RBC Newbie
RBC
Posted
Hi all:

I had suspected I had Celiac for sometime. First test was negative. Second, after pneumonia, 6 miscarriages and 2 years of intolerable stomach upsets was very positive. Although I think, as many of you have said that I had it for years.

For the last two years particularly I felt like it was 4 o clock in the morning at all times because I was so tired. Partially iron no doubt.

My question is --- learning to stay gluten free is incredibly difficult. After six months and one fall off the wagon (because I didn't realize that many chinese restaurants use wheat flour to thicken their sauce) I am feeling pretty good again.

My question is, how quickly after taking a trace of gluten - eg in cross-contaminated food do you realize you have done so? And, how quickly do the symptoms like fatique and stomach problems come back. While gluten free I am one of the very lucky people who seems to be 100% ok but I am finding that I am suddenly feeling very tired - like today - and last night I ate out at a Mexican restaurant - carefully informed the chef but not sure it worked this time!

Am I just tired or can Celiac come on so quickly?

Thanks very much to a newbie to the issue.

I experienced similar problems...I was beyond tired all the time. Now that I am better, I can look back and realize how horribly tired I was. I just thought it was normal. In regards to how fast gluten can come on...I think that the more you deprive your body of it, the more intense/faster it will come on. A year ago when I ws diagnosed, I KNOW now that I was eating gluten and it merely affected me the morning after. Now, since I have been a bit more diligent with my diet, I can feel it within hours. I actually got very sick this past Friday and had horrible chest pain, and heart palpitations...and then the dr came the next morning. I felt sick all weekend to the point where I had to stay in bed. Finally about 48 hrs later I felt better/tolerable. However, I have been very anxious this week and have head aches which I had not had in 6 months. Now I know it is all from the gluten. As far as the tired thing goes...my tiredness goes directly hand in hand with how much water I drink. If I drink at least 50-60 ounces in a day I am feeling good. Anything less and I come home from work and I can sleep for like 2 hours on the couch. There are other things that I take now for the tiredness and more my general well being--probiotics, acidophilus, omega 3, and colestrum--all are helping me feel much better. If you are interested there are tons of websites on natural supplements and what you should take for certain diseases...very informative. Good luck!

tarnalberry Community Regular
tarnalberry
Posted

I get dizzy/headachey in 15-30 minutes, and intestinal symptoms within 8 hours. Fatigue, bloating, and pain take no more than 12 hours.

RBC Newbie
RBC
Posted
I get dizzy/headachey in 15-30 minutes, and intestinal symptoms within 8 hours. Fatigue, bloating, and pain take no more than 12 hours.

Noticed your signature at the bottom...Just curious as to why you have not had and endoscopy? How can you be sure that you have Celiac? Is the difference in the diet that severe? I have positive everything and at first I barely felt better. Now I am slowly getting progressively better, but everyone always says that it is like night and day--regular diet to gluten free diet, is that how it was to you? I am just beginning to wonder if I have some other allergies/problems. Thanks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.