Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Started gluten-free Diet - Is It Normal To Have...

Mabc

By Mabc
in Coping with Celiac Disease

Recommended Posts

Mabc Apprentice
Mabc
Posted

Hi, I just joined this forum. I was hoping someone could answer a question for me. I've just begun the gluten-free diet 4 days ago and some of my symptoms like weakness and fatigue have gotten worse. Is this to be expected? I suppose it could be due to other foods that I possibly unknowingly can't tolerate that I have now increased to fill the void. But I just wanted some comfort to know that this is to be expected.

BTW is all ketchups okay or not? I'm a little confused. Thanks for any info.

Mabc

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest schmenge
Guest schmenge
Posted

I don't know if I would say "expected" but I would say "not unusual." Everybody recovers differently. You may also find that some foods that did not bother you may now do so (lactose is common). Not sure about all ketchups. Most are, but you should always read lables.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi, I just joined this forum. I was hoping someone could answer a question for me. I've just begun the gluten-free diet 4 days ago and some of my symptoms like weakness and fatigue have gotten worse. Is this to be expected? I suppose it could be due to other foods that I possibly unknowingly can't tolerate that I have now increased to fill the void. But I just wanted some comfort to know that this is to be expected.

BTW is all ketchups okay or not? I'm a little confused. Thanks for any info.

Mabc

It can take a while to feel better. I know it can be hard but things should improve. You may want to take a sublingual B12 in addition to a regular gluten free vitamin to help with the energy. Also remember to be diligent about nonfood sources like lotions and shampoos etc. and make sure you have gotten a new toaster and replace wooden cutting boards and your can opener. Hope you feel better soon and welcome to the boards.

Oh and Heinz ketchup is gluten free, I don't knoiw about the others.

Lister Rising Star
Lister
Posted

its a rollercoster from what i can tell in the begining, i have only been gluten free for about 2 weeks. the first three days i acually felt way better and continued to improve for a week until this past wensday all the symptoms came back all at once, it can be really rough just hang in there hopefully it will all work out for you

Lisa Mentor
Lisa
Posted

As stated, check your shampoos, soap and anything that can get into your mouth.

to start you out, I use:

Dove shampoo

Dove Diod.

Dove Soap

Crest Toothpaste

There are other that are gluten free, but this is a quick fix. Ask someone on this site to send you the Delfi Forum Product list.........that will give you all sorts of gluten free products by brand name.

Learn as much as you can, and do searches on this site and you will learn and enormous amount of information about what is safe and what it is not.

Two weeks is just the beginning. Welcome to to forum. This site will be a life saver for you, just read, monitor and read somemore. Everything you need is here.

Good luck and keep posting. Lisa

kjw290 Newbie
kjw290
Posted
its a rollercoster from what i can tell in the begining, i have only been gluten free for about 2 weeks. the first three days i acually felt way better and continued to improve for a week until this past wensday all the symptoms came back all at once, it can be really rough just hang in there hopefully it will all work out for you

You can feel bad for awhle. I'm not sure how you found out you had celiac disease but in my case I lost alot of weight because of diarrhea, I took the b12 which helped also your body loses so much in so little time you have to build yourself up again. It seems like I was one of the luckly ones, they went right for the biopsy test. It's A very hard diet to follow, and the more I read on the effects of celiac disease the more I want to follow the diet strictly! hang in there, better days are coming! <_<

Canadian Karen Community Regular
Canadian Karen
Posted

Hi Guys!

Nini has an awesome newbie folder put together that includes the delphi list. PM NIni and she'll e-mail it to ya!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mabc Apprentice
Mabc
Posted
  • Author

Thank you so much!!!

I will keep on trying. It is hard, but I'm so grateful to finally have hope to have control over my symptoms.

Thanks

Mabc Apprentice
Mabc
Posted
  • Author

I was diagnosed with chronic fatigue syndrome in 1998, but years before that I was diagnosed with irritable bowel syndrome. I don't have the rash, I do have chronic 24/7 sinusitis and difficulty walking from weakness. I also have hypoglycemia.

I decided to try the gluten-free diet, though I don't have a diagnosis. If the diet helps, I will figure I have it. I'd rather have the diagnosis, but I've learned to not rely much on my doctors for help. Nothing against them, but evidently the doctors I've had just didn't want to do anything for me after deciding I had CFS and irritable bowel.

I recently found out my nephew had a rash and allergic to wheat, and both of my sons have ALWAYS had an itchy rash on their arms since they were very little. I don't know if it is THE rash, but both have severe constipation and fatigue. I stopped growing in 7th grade (maybe that's normal I don't know) and I'm very low weight even though I eat plenty. I got very very sick in 1998 and told the doctor that it felt like there was no food getting to any of my cells. I was extremely weak. I have a daughter who has been 35 pounds for 2 years (she's 5) and has tummy aches every day. She has also had anemia.

I realize it still may be that I don't have celiac, but I'm willing to try it and see what happens. I'm so sick and tired of being sick and tired! :blink: I am just learning everything and really happy to find this forum and would love to hear any thoughts.

Thanks for the help.

zip2play Apprentice
zip2play
Posted

OMG a 5 year old that has weighed 35 pounds for 2 years..... :unsure: Doesn't your doctor find that odd/horrible? I have a 4 1/2 year old and she weighs 45 pounds and she is tall and well w/n normal ranges.

It sounds to me your entire family has tummy issues! I certainly hope you get the answers you need!

MONICA

dionnek Enthusiast
dionnek
Posted
Hi Guys!

Nini has an awesome newbie folder put together that includes the delphi list. PM NIni and she'll e-mail it to ya!

Karen

how do I pm Nini? I'm new to this too.

judy05 Apprentice
judy05
Posted
Hi, I just joined this forum. I was hoping someone could answer a question for me. I've just begun the gluten-free diet 4 days ago and some of my symptoms like weakness and fatigue have gotten worse. Is this to be expected? I suppose it could be due to other foods that I possibly unknowingly can't tolerate that I have now increased to fill the void. But I just wanted some comfort to know that this is to be expected.

BTW is all ketchups okay or not? I'm a little confused. Thanks for any info.

Mabc

I think everyone feels a little worse in the beginning, I know I did. It took a whole summer for me. I lived on plain chicken, pork chops, mashed potatoes, applesauce, and bananas. It takes a while to get the gluten out of your system. For me giving up dairy made all the difference. It was almost a year to feel really good. It all depends on how long you were sick. I had another problem (GERD) which caused other problems. Keep up the good work, you will feel better with each passing day. Heink organic ketchup is not gluten free, I found out the hard way...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748
    Bryan s
    Newest Member
    Bryan s
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.