Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im Going Crazzzzy!


DragonQueen

Recommended Posts

DragonQueen Explorer

Ive been gluten free/caesin free for 1 year and I pretty much hate it. I hate being different from everyone else at school. i hate looking at people eat a cupcake or a slice of cheesy pizza right in front of me. I JuSt WanNa Eat A cupcake! :wacko: I just really miss gluten and dairy. I know ive had symptoms and some have gotten better but I just wanna be eating normal food at school, I dont know what to do. Should I eat gluten again, I reeeeeeeeeeeeaaaaaaaaaallllllllyyyyyyy miss it :rolleyes: !

*~_____ KK_____~*


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

NOOOOOOOOOOOOOOOO!

never eat gluten again!!!!!

You could very well develop other diseases that are far worse than celiac, like diabetes. I am casein free, but find that I can do a little w/ a lactaid, so i just get heartburn when i have casein, so I have started to put that back in my diet.

You should make some really yummy gluten-free treats that you can keep at school, and then just have those when you are tempted, and then feel like everyone else, just with my crumbly treat.

e-mail me or talk to me on IM if you want!

~molly

MySuicidalTurtle Enthusiast

You should try vegan recipes because they can be done gluten-free and are always dairy-free. I have had lots of good things! You can still make cupcakes, brownies, and pizza. I am personally am fine without having cheese on my pizza and use a vegan recipe for the crust. If you really want the food just try and try and try making it yourself until you get it right. Why eat the gluten ones and feel horrid just so you aren't different? Make food for you that you want and then you can be healthy and happy.

tarnalberry Community Regular

no, you shouldn't eat gluten again. but consider redefining 'normal' food. I serve my food to my friends when I invite them over all the time (I'm an adult, so I'm doing the cooking), and I'm Gluten-free Casein-free. Everyone loves my food, never complains about missing a thing, and asks for the recipes. Stir-fries, soups, stews, mexican food, chinese food, grilled stuff, etc. Redefining what is normal to you is kinda important, but it takes *months* to do that - at least. Think about any foreign kids at your school who come with culturally unique stuff their parents make - it's normal to them, but you guys probably think it's weird.

In the meantime, work on what substitutions you can. Make Gluten-free Casein-free brownies and muffins. Find fun recipes for new things your friends haven't tried - the vegan suggestion is a good one, actually. Some raw food recipes work great too. (There's a good raw food recipe for 'ranch dressing' made from raw cashews that's very tasty that uses no dairy or soy.)

eKatherine Apprentice
...consider redefining 'normal' food.

Absolutely. We are surrounded by people who eat little but processed wheat products. This in no way is a normal or healthy diet. Humans were meant to eat a variety of whole foods. Eating almost exclusively wheat is a third world diet.

Mango04 Enthusiast
(There's a good raw food recipe for 'ranch dressing' made from raw cashews that's very tasty that uses no dairy or soy.)

I agree, the cashew ranch dresing is the best. I've put it on everything. It's even great on Tinkyada - makes a great gluten-free/CF creamy pasta. Don't give up Dragonqueen!!!!! :) Eating gluten again is not worth it!

Guhlia Rising Star

You might want to try the Incredible Edible Gluten Free Food for Kids cookbook by Sheri L. Sanderson. It has some amazing recipes like cookies, cakes, pies, breads, etc... It has a replacement for virtually everything you'll miss while on the gluten free diet, even pizza. It also has gluten-free/CF adjustments for casein intolerant people.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gabrielle Contributor

Have the strength to not harm your body like that. I still need to get use to gluten-free food and it is difficult but it is totally worth it!! Good luck!

key Contributor

Do you have to be dairy free?? Could you try reintroducing just small amounts? I can handle it in small to moderate amounts. Maybe since you have healed enough you could tolerate it. If you have an allergy to it, then that is out.

I understand your "pain". I have times when I feel so desperately hungry and deprived of regular food and then most of the time I am ok. I am vegetarian too, so it makes it a bit harder. Also it is hard when I feel really cruddy anyway, despite the gluten free diet.

Like others have said, finding subsitutes and mixing up your diet a bit can help. THat is a big thing for me. I grow weary of cooking for myself and family differently and then never being able to eat out at all is frustrating at times. I think you will find that you won't be able to eat gluten whether you want to or not. Being sick will outweigh your desire for it. THis is the way it is for me. Having inconclusive testing is hard. My tests were borderline, so I go into denial about every two months or so.

I can't imagine doing this diet in college. I don't know how to do that in a dorm. It would be extremely difficult.

Monica

lorka150 Collaborator

to be honest, you really just have to get over the frustrations, and learn how to make the food that you miss, so you can enjoy them.

DragonQueen Explorer

Thanx for the advice and support. Its just annoying when i eat lunch i feel different and uncomfortable that im eating a rice cake and everyon else is eating pizza and cupcakes. Normal food to a 12 yr old girl like me is pizza and burgers and stuff EVERYONE eats at school. I guess more than anything it wasnt missing the food its just that i feel so different and stupid around my friends.

This is the first time ive been depressed about the diet to this extreme. When I think about it iate out with my dad this past weekend and i probably got glutened, because some of the symptoms came back but i got more emotional than i usually do.

Ya Guhila thanx for the kids cookbook idea, i'll check it out.

Key, i cant introduce dairy just yet because theres still too much malabsorption. hopefuly in a year it will get better :D

lorka150 Collaborator

i understand your difficulty, as i was diagnosed as a 22 year old in my prime days of beer and wings.

make your own pizza, make your own burgers, bake brownies and cookies, and remember all the wonderful things you DO get to eat. be proud that you 'caught' this at an early age to avoid damage :)

if you want, i can help you with easy recipes. send me a pm, or we can connect via msn. my mission in life? to make others' lives extremely pleasing.

corinne Apprentice

It's no fun eating ricecakes while everyone is eating your favourites. It's a lot easier if you have things to eat like everyone else. If you or your parents make burgers or pizza for dinner, make some more so that you can take them for lunch (you can have both gluten free). You can make gluten free gooey brownies or cupcakes or find a chocolate bar you really like. That way you don't have to feel like you're eating different than everyone else.

Swingin' Celiac Newbie

I totally can relate to what your going through. It's not so much the food as it is the social principle behind it all. I recently had an emotional blow up after coming home from a school-related party. It was so frustrating because I hadn't had time to make something to bring that I could eat. I had to explain to like ten people why I wasn't eating. Coming home, my frustration kind of exploded into tears when my parents said they were going out to a restaurant (one that I couldn't eat at). Now I will admit that I like gluten free food, but I didn't want to make myself something knowing that I was being left out. I know it sounds very childish but sometimes our frustrations just slowly build until they burst. So then I felt really embarrassed when my mom cooked me something to make me feel better and then sat at the table with me while I ate before she and my dad when to dinner. Anyway, after that little explosion I felt a lot better from all the release of energy and realized that what was really bothering me wasn't the Celiac, it was my own irrational fear of being "different" from everyone else in not being able to what they are doing. It really helps to have similar substitutes with you (particularly the same food others are eating only in gluten free form). For instance, if you know there's going to be pizza and cake, bringing gluten-free pizza and gluten-free cake will help you feel more included (I know from experience). As far as lunch goes, I pretty much eat the same thing I always used to eat (e.g. pb&j, lunchmeat, carrots, apples, etc.). Although some of your friends might get cafeteria food on a regular basis (like some of mine) know that there are tons of non-Celiacs who normally bring their own lunches (and yes, even with rice cakes [i used to be one of them]). Anyway the most important thing I can advise you is to not label things or people as normal vs. gluten-free and normal does not equal anything that is not gluten-free. Most of all stay positive and realize that everyone has something they can't do, so your not alone

DragonQueen Explorer

hey thanx swingin celiac. That really helped alot. You seem to be going through the same stuff im going through. thanks for your support :) .

*~**~***___KK___***~**~*~

  • 2 weeks later...
Guest ChloeB
Ive been gluten free/caesin free for 1 year and I pretty much hate it. I hate being different from everyone else at school. i hate looking at people eat a cupcake or a slice of cheesy pizza right in front of me. I JuSt WanNa Eat A cupcake! :wacko: I just really miss gluten and dairy. I know ive had symptoms and some have gotten better but I just wanna be eating normal food at school, I dont know what to do. Should I eat gluten again, I reeeeeeeeeeeeaaaaaaaaaallllllllyyyyyyy miss it :rolleyes: !

*~_____ KK_____~*

I dont think you should eat gluten again becuase you could get like sick or something that would probably be because of the gluten! sorry! I know it is hard because none of my friends eat gluten free only I do ! they even offer me stuff I can't have , so I just deal with it I mean they even think the food I have is good by just looking at it!

sorry I know how you feel,

chloe!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.