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Bad Muscle Aches And Joint Pain!

KurlyKat

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KurlyKat Newbie
KurlyKat
Posted

I was diagnosed two years ago and have been following gluten free however, I'm not sure if I am getting hidden gluten when I eat out and this is causing me problems for the last 5 months? I partially tore a bicep hamstring tendon in Jan and it is still not fully healed. From that I have severe muscle soreness in my right arm and hand, even my two middle fingers don't bend! All this pain on my right side only. I have always been active and had no problem with muscle strength, I am a gym rat and I lift weights. I went to a nutritionist and she put me on Metagenics Inflamax which is designed for Celiac patients in mind. I have an appt for a followup with a new gastroenterologist next week. This is really frightening me. I also don't sleep well and in the morning I can hardly move, i ache allow over. anyone have any similar pain?

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plantime Contributor
plantime
Posted

How much stretching do you do? You need to do lots of it, before and after exercise. It is wise to start and end your day with a stretching routine.

Bromo Newbie
Bromo
Posted
I was diagnosed two years ago and have been following gluten free however, I'm not sure if I am getting hidden gluten when I eat out and this is causing me problems for the last 5 months? I partially tore a bicep hamstring tendon in Jan and it is still not fully healed. From that I have severe muscle soreness in my right arm and hand, even my two middle fingers don't bend! All this pain on my right side only. I have always been active and had no problem with muscle strength, I am a gym rat and I lift weights. I went to a nutritionist and she put me on Metagenics Inflamax which is designed for Celiac patients in mind. I have an appt for a followup with a new gastroenterologist next week. This is really frightening me. I also don't sleep well and in the morning I can hardly move, i ache allow over. anyone have any similar pain?

I was Diagnosed about 2 months ago. I try to be very careful and eat GLUTEN Free, (I do not cheat). I have muscle aches and soreness also. It started on my left side, knees, hips neck now it is all over. I went to the Family doctor and she does not know much about Celiac Disease. I talk to the stomach dr and he did not think much about it either. I have also gained about 15 lbs in 1 1/2 months, and he did not think much about that either. I have been going the gym 3 to 4 days a week for 2 years now and have never felt like this. I also have trouble sleeping. I starting to think I am depressed. Not sure what kind of doctor to go to next. Please let me know if you get an answer!!!

BROMO

KurlyKat Newbie
KurlyKat
Posted
  • Author
I was Diagnosed about 2 months ago. I try to be very careful and eat GLUTEN Free, (I do not cheat). I have muscle aches and soreness also. It started on my left side, knees, hips neck now it is all over. I went to the Family doctor and she does not know much about Celiac Disease. I talk to the stomach dr and he did not think much about it either. I have also gained about 15 lbs in 1 1/2 months, and he did not think much about that either. I have been going the gym 3 to 4 days a week for 2 years now and have never felt like this. I also have trouble sleeping. I starting to think I am depressed. Not sure what kind of doctor to go to next. Please let me know if you get an answer!!!

BROMO

Nancym Enthusiast
Nancym
Posted

Just FYI I had joint aches all over, jaw, wrists, fingers, feet, knees, hips, back, etc... and muscle aches and spasms and tendonitis. I was diagnosed with an autoimmune arthritis called ankylosing spondylitis and put on a drug called sulfasalazine and I'm feeling much, much better!

The way I got diagnosed is I made a list of all the weird little symptoms and things that had been bugging me and went to my doctor. I made the suggestion that I might have an autoimmune condition, they did the blood tests and figured out which one it was. I just knew that I shouldn't be aching and hurting so much and I was right!

gabby Enthusiast
gabby
Posted

I looked up the product you're using and found a website that listed the ingredients which included Natural Flavors. Sometimes natural flavors include gltuen. It is worth calling the company and asking them straight up if their natural flavors are gluten free. Sometimes a product can say that it is free of gluten, but what it really means is that they themselves did not add any gluten...but it might already be present in some other ingredient (like natural flavors).

It is worth a shot to check it out. Let us know what they say

Best of luck.

key Contributor
key
Posted

It could be eating out. I almost always get gluttened when eating out. I just dont' eat out hardly ever! I get fatigue and bone pain when I am gluttened. THis was a MAJOR problem before I found out I had celiac. I was exhausted. I am fine now though. I would try and take a break from eating out for a while and see if you feel better. Hopefully it will pass. I am doing much better now.

Monica

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whitball Explorer
whitball
Posted

I have had muscle pain for most of my life. The pain at times was excruciating. Muscle fatigue did not start affecting me until my early 30's. The most frustrating thing about these symptoms, is that it is hard to figure out the source of the problem. I spent nearly 15 years trying to find a reason for why I could not run more than 50 feet without experiencing muscle failure. I've had emg's, mri's, blood tests, biopsies. What I learned from all of this is that not too many people will listen, and lots of people think it's in our heads. But, finally, someone did and tested me for Celiac disease. I have not had large muscle pain for almost three months after going gluten free. My advice to you is to keep asking the questions and if you do not get the answers to solve the problem, find another doctor. Talk to your doctor about pain and how to manage it. My doctor has helped me with a variety of different options. Good luck! Tara

BoulderEm Newbie
BoulderEm
Posted

could be fibromyalgia too....

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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