Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Happen To Anyone Else?


L.A.

Recommended Posts

L.A. Contributor

I have been gluten-free for several years now. every once in a while i will get this horrible tasting gas in the form of a burp (tastes like rotten eggs) and several hours later i 'llhave the runs and end up throwing up. This whole episode lasts for several hours until the rotten egg gas stops coming up--seems to be purged from my body. Does anyone out there have this type of reaction? L.A.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

That horrible gas was my most life-limiting symptom before I figured everything out. I never threw up from it, but it was too awful and constant to even think about going anywhere. I do still get it if I get glutened too.

Mabc Apprentice

Hi there,

My son gets those really bad and we have to leave the room! :blink:

His is due to the lactose intolerance. Whenever he eats cheese or milk he turns into a rotten egg.

We all run for cover.

burdee Enthusiast

Hi LA: Your signature included "GI told me that he has four other patients just like me who have all the symptoms of celiac and whose overall health is greatly improved by going gluten free, but just don't have the intestinal damage that goes along with classic celiac." Maybe your GI should question how he's doing the biopsies, rather than just assuming his patients are weird. Unless docs take biopsies of every inch of the small intestine, they can easily miss celiac damage. Unfortunately they assume their tests are correct and their patients don't have celiac disease, despite symptoms and dramatic health improvement when abstaining from gluten. SIGH <_<

BURDEE

mopsie Newbie
I have been gluten-free for several years now. every once in a while i will get this horrible tasting gas in the form of a burp (tastes like rotten eggs) and several hours later i 'llhave the runs and end up throwing up. This whole episode lasts for several hours until the rotten egg gas stops coming up--seems to be purged from my body. Does anyone out there have this type of reaction? L.A.

That sounds like giardia ( beaver fever) to me, which a person gets from drinking impure water. I had those same symtoms for years long before my celiac disease showed up. After switching to distilled water - we used to drink unpurified pond water- I've never had it since. even if I get some gluten now. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.