Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Happen To Anyone Else?

L.A.

By L.A.
in Coping with Celiac Disease

Recommended Posts

L.A. Contributor
L.A.
Posted

I have been gluten-free for several years now. every once in a while i will get this horrible tasting gas in the form of a burp (tastes like rotten eggs) and several hours later i 'llhave the runs and end up throwing up. This whole episode lasts for several hours until the rotten egg gas stops coming up--seems to be purged from my body. Does anyone out there have this type of reaction? L.A.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

That horrible gas was my most life-limiting symptom before I figured everything out. I never threw up from it, but it was too awful and constant to even think about going anywhere. I do still get it if I get glutened too.

Mabc Apprentice
Mabc
Posted

Hi there,

My son gets those really bad and we have to leave the room! :blink:

His is due to the lactose intolerance. Whenever he eats cheese or milk he turns into a rotten egg.

We all run for cover.

burdee Enthusiast
burdee
Posted

Hi LA: Your signature included "GI told me that he has four other patients just like me who have all the symptoms of celiac and whose overall health is greatly improved by going gluten free, but just don't have the intestinal damage that goes along with classic celiac." Maybe your GI should question how he's doing the biopsies, rather than just assuming his patients are weird. Unless docs take biopsies of every inch of the small intestine, they can easily miss celiac damage. Unfortunately they assume their tests are correct and their patients don't have celiac disease, despite symptoms and dramatic health improvement when abstaining from gluten. SIGH <_<

BURDEE

mopsie Newbie
mopsie
Posted
I have been gluten-free for several years now. every once in a while i will get this horrible tasting gas in the form of a burp (tastes like rotten eggs) and several hours later i 'llhave the runs and end up throwing up. This whole episode lasts for several hours until the rotten egg gas stops coming up--seems to be purged from my body. Does anyone out there have this type of reaction? L.A.

That sounds like giardia ( beaver fever) to me, which a person gets from drinking impure water. I had those same symtoms for years long before my celiac disease showed up. After switching to distilled water - we used to drink unpurified pond water- I've never had it since. even if I get some gluten now. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.