Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Off Of Gluten Free Diet


Susan123

Recommended Posts

plantime Contributor

Testing can be a :bbbb! I hope that they are able to learn something from your tests. It would really be nice for you to have something definitive to go by. Good luck with it, and don't forget to keep us posted! Thanks for the link, I will check it out when I have more time!

  • 7 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



uafnanook2001 Newbie

I have been reading this post with interest. Almost 4 years ago, I wasn't feeling right and I went lactose free. I was better but since having two relatives with confirmed celiac disease, I thought I would eliminate wheat, as well. For 3 yrs I was gluten-free/LF. Last summer (of 2011) I reintroduced lactose into my system. I have been fine. I am now wanting to slowly reintroduce gluten as I realize it was dumb of me to go 100% gluten-free for no real good reason. I had the saliva test for the celiac gene (I don't have it) and had some type of blood test (the Dr. said that it was negative, as well). I have the same symptoms now that I had 4 yrs ago and I'm thinking it was just the lactose bothering me mildly. I know that if I go 100% back onto gluten, of course I'll have problems. I'm just wondering if anybody knows how slowly I would need to reintroduce it. Take something like a dinner roll and eat 1/8 or 1/4 teaspoon size of it every day for two weeks and then on the 3rd week, eat 1/4 to 1/2 teaspoon for two weeks etc? Or, is that unrealistically too slow? If I at all redevelop symptoms, I will quit the gluten. I just need to know, though, for sure in my own mind, if it's a wheat sensitivity or not.

kareng Grand Master

The last post on this thread was over 7 years ago. I doubt any of the posters are still active on this forum.

GFinDC Veteran

I have been reading this post with interest. Almost 4 years ago, I wasn't feeling right and I went lactose free. I was better but since having two relatives with confirmed celiac disease, I thought I would eliminate wheat, as well. For 3 yrs I was gluten-free/LF. Last summer (of 2011) I reintroduced lactose into my system. I have been fine. I am now wanting to slowly reintroduce gluten as I realize it was dumb of me to go 100% gluten-free for no real good reason. I had the saliva test for the celiac gene (I don't have it) and had some type of blood test (the Dr. said that it was negative, as well). I have the same symptoms now that I had 4 yrs ago and I'm thinking it was just the lactose bothering me mildly. I know that if I go 100% back onto gluten, of course I'll have problems. I'm just wondering if anybody knows how slowly I would need to reintroduce it. Take something like a dinner roll and eat 1/8 or 1/4 teaspoon size of it every day for two weeks and then on the 3rd week, eat 1/4 to 1/2 teaspoon for two weeks etc? Or, is that unrealistically too slow? If I at all redevelop symptoms, I will quit the gluten. I just need to know, though, for sure in my own mind, if it's a wheat sensitivity or not.

Hi Uafnanook,

What you are considering is called a gluten challenge. That's when you have been gluten-free for a while and then try gluten again. It is a pretty good diagnostic tool. I think it would be best to start slow the first couple of days. Keep a journal of your food you are eating and how you feel each day. To be sure you are reacting or not reacting to gluten, don't eat anything out of the ordinary during the challenge except the gluten. A good test would be to eat regular wheat bread for a few days. No pizza or anything else, just wheat bread. The fewer variables in your diet the easier it is to identify the culprit. After a week of no changes except for adding wheat bread to your diet, there should be some noticeable changes in your symptoms if you are having a reaction. Remember that symptoms are not confined to digestive issues. You could have nerve symptoms, bone or joint pain, headaches rashes or other symptoms instead. Or your you may grow horns. Ok, kidding on the last one about the horns. :D But if that does happen be sure to tell us about it :)

TJSpin Rookie

Susan,

Just curious....after your guten sensitivity test at Enterolab, was the malabsorption test the next in line for your celiac diagnosis? Did you consider the stool test for transglutaminase? My 6 year old just got her gluten sensitivity test back and I want to test for celiac but do not want the biopsy for her. Based on your experience with Enterolab, would you recommend the malabsorption over the transglutaminase test?

Susan:

I was tested through Enterolab and my test results were positive for "gluten sensitivity", I also tested positive for "malabsorption due to small intestinal damage".

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,237
    • Most Online (within 30 mins)
      7,748

    mrsdcb
    Newest Member
    mrsdcb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.