Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Off Of Gluten Free Diet


Susan123

Recommended Posts

plantime Contributor

Testing can be a :bbbb! I hope that they are able to learn something from your tests. It would really be nice for you to have something definitive to go by. Good luck with it, and don't forget to keep us posted! Thanks for the link, I will check it out when I have more time!

  • 7 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



uafnanook2001 Newbie

I have been reading this post with interest. Almost 4 years ago, I wasn't feeling right and I went lactose free. I was better but since having two relatives with confirmed celiac disease, I thought I would eliminate wheat, as well. For 3 yrs I was gluten-free/LF. Last summer (of 2011) I reintroduced lactose into my system. I have been fine. I am now wanting to slowly reintroduce gluten as I realize it was dumb of me to go 100% gluten-free for no real good reason. I had the saliva test for the celiac gene (I don't have it) and had some type of blood test (the Dr. said that it was negative, as well). I have the same symptoms now that I had 4 yrs ago and I'm thinking it was just the lactose bothering me mildly. I know that if I go 100% back onto gluten, of course I'll have problems. I'm just wondering if anybody knows how slowly I would need to reintroduce it. Take something like a dinner roll and eat 1/8 or 1/4 teaspoon size of it every day for two weeks and then on the 3rd week, eat 1/4 to 1/2 teaspoon for two weeks etc? Or, is that unrealistically too slow? If I at all redevelop symptoms, I will quit the gluten. I just need to know, though, for sure in my own mind, if it's a wheat sensitivity or not.

kareng Grand Master

The last post on this thread was over 7 years ago. I doubt any of the posters are still active on this forum.

GFinDC Veteran

I have been reading this post with interest. Almost 4 years ago, I wasn't feeling right and I went lactose free. I was better but since having two relatives with confirmed celiac disease, I thought I would eliminate wheat, as well. For 3 yrs I was gluten-free/LF. Last summer (of 2011) I reintroduced lactose into my system. I have been fine. I am now wanting to slowly reintroduce gluten as I realize it was dumb of me to go 100% gluten-free for no real good reason. I had the saliva test for the celiac gene (I don't have it) and had some type of blood test (the Dr. said that it was negative, as well). I have the same symptoms now that I had 4 yrs ago and I'm thinking it was just the lactose bothering me mildly. I know that if I go 100% back onto gluten, of course I'll have problems. I'm just wondering if anybody knows how slowly I would need to reintroduce it. Take something like a dinner roll and eat 1/8 or 1/4 teaspoon size of it every day for two weeks and then on the 3rd week, eat 1/4 to 1/2 teaspoon for two weeks etc? Or, is that unrealistically too slow? If I at all redevelop symptoms, I will quit the gluten. I just need to know, though, for sure in my own mind, if it's a wheat sensitivity or not.

Hi Uafnanook,

What you are considering is called a gluten challenge. That's when you have been gluten-free for a while and then try gluten again. It is a pretty good diagnostic tool. I think it would be best to start slow the first couple of days. Keep a journal of your food you are eating and how you feel each day. To be sure you are reacting or not reacting to gluten, don't eat anything out of the ordinary during the challenge except the gluten. A good test would be to eat regular wheat bread for a few days. No pizza or anything else, just wheat bread. The fewer variables in your diet the easier it is to identify the culprit. After a week of no changes except for adding wheat bread to your diet, there should be some noticeable changes in your symptoms if you are having a reaction. Remember that symptoms are not confined to digestive issues. You could have nerve symptoms, bone or joint pain, headaches rashes or other symptoms instead. Or your you may grow horns. Ok, kidding on the last one about the horns. :D But if that does happen be sure to tell us about it :)

TJSpin Rookie

Susan,

Just curious....after your guten sensitivity test at Enterolab, was the malabsorption test the next in line for your celiac diagnosis? Did you consider the stool test for transglutaminase? My 6 year old just got her gluten sensitivity test back and I want to test for celiac but do not want the biopsy for her. Based on your experience with Enterolab, would you recommend the malabsorption over the transglutaminase test?

Susan:

I was tested through Enterolab and my test results were positive for "gluten sensitivity", I also tested positive for "malabsorption due to small intestinal damage".

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.