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Help - I've Gained 10 Lbs. In Less Than 2 Wks.!


jen3175

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jen3175 Rookie

:( I was misdx. for a yr. before I talked my Dr into doing tests. I've been gluten-free for 6 wks. I did really good at first as far as starting to be able to eat again and getting everything calmed down. There are still alot of food that I can't eat and I know that it's gonna take awhile for my intestines to heal. However, about 2 wks. ago I discovered Lundbergs BBQ Rice chips and Pamela's chunky choc chip cookies. In less than a wk., I ate the box of cookies and 2 bags of chips!! First, I'm trying to figure out why I am eating so much and how to get a handle on it. Second, I lost 30lbs. through all of this and frankly I don't want it back. Now, I see where everyone is talking about how many calories are in the "goodies" and that there are alot of people who have done this. The overeating part , (only late afternoon and night) I think is coming from when before I would eat, get sick and couldn't eat or drink for at least 48 hrs. sometimes more, because of the vomiting and pain. It's like eat it while you can, because you won't get anything else to stay down for a few days. That was my life for a yr. and now that I'm FINALLY feeling better, it's hard to break that cycle. Has anyone else had this problem? I didn't start doing this until about week 3, which I guess is when I started to be able to eat more food at one sitting. I eat ALOT of eggs & ck. as I can't tolerate beef yet. Carrots, green beans, white rice, gluten-free van's waffles, gluten-free crispy rice, strawberries, canned peaches, raisins, canned pears. I'll occassionally have gluten-free rice pasta with a little olive oil, because I'm still so sensitive and am afraid that tomato sauce would probably kill me! The only milk that I can tolerate is Almond milk, so I have choc. & vanilla. I think that that's pretty much it. I tried baked beans and lentils and that did not go well! :lol:

I'm also trying to get back into a exercise routine. It's kinda of hard because I have a heart condition and am also hypothyroid. So my heart meds don't allow cardio. This is all harder than I thought it would be. I'm trying to wrap my mind around it all . Any advice what to eat or stay away from? Oh by the way, I'm a chocaholic! :ph34r: I don't think that's helping B)


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lovegrov Collaborator

Many people start eating large amounts when their bodies start healing because you're craving all the nutrients you weren't getting. I had been so ill that my doctor urged me to eat and eat, including lots of meat. At one point I had gained 80 pounds (that's from my lowest weight, which was way too low). Gaining 35-40 on my frame would have been fine, but not 80.

I have no great advice except the usual -- watch what you eat, stay away from those fattening gluten-free items, and do whatever exercise you can. Even lifting small weights will build muscle that will burn calories.

richard

aikiducky Apprentice

I'd say that on one hand, you probably need to eat, and on the other, you need to eat high quality food now. Your body is craving nutrients that it has been missing, so eat as many veggies and meat and fish and fruit as you can and keep the gluten free goodies just for occasional treats. But don't try to force yourself to eat too little, your body does need the nutrition right now!

Pauliina

Nancym Enthusiast

I stick as close to eating meat, fish, veggies, fruits a few nuts or nut butters and try to keep the starchy/sugary junk to a minimum. I feel healthier when I do and it keeps the weight gain away. :D

emcmaster Collaborator

I personally am staying away from gluten substitutes. Most of them have a lot of calories and fat in them, so I'd rather just not eat them. I'm eating fresh, whole foods like fruits, vegetables, egg whites, protein shakes (not exactly whole, but close) and fat-free turkey and chicken breasts and I've been losing weight.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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