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Stupid Question


taz sharratt

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taz sharratt Enthusiast

Is gluten intolerance the same as celiac disease? Been dianosed like last week but looking back i believe i have had this condition for quite some time. my eldest son is 10 and the symptoms started shortly after his birth. first my doctor said i had post natal depression which was causeung a reaction in my bowel but when i recoverd after the depression he diagnosed me with irritable bowel syndrom, he then went on to say that at times of stress it would trigger it off, then the thrush infectionsgot worse so much that the normal treatment wouldnt work anymore. We moved house about 100 miles away, started with a new doctor who washed his hands of me and said it was something i had to live with, i was cuicidal by this time, anyway 6 month ago a nre doctor( a lady) started at the practice, she sent me to the hospital and i had test after test some very painfull and undignified still nothing. 4 weeks ago she said enough was enough and orderd every test she could think of, blood, urine and breath test. last week was a shocker not only for me but for my doctor as well. Ive got mre tests to do and see a dietician but i feel like i finally gonna get some real answers and find some kinda peace from my own body.Im lactose intolerant and gluten intolerant and have had anemia for more than 10 years. sorry if this was too long.


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VydorScope Proficient
gluten intolerance the same as celiac disease?

Well depends how picky you are. From what I read, the only dif between the 2 is with celiac disease they did a biopsy and found damage. with gluten intolernace, they either did not find damage, or did not do a biopsy. Both are identical in all other respects (treatment, etc). So in the end it realy does not, IMO, matter which lable you use. :)

Ursa Major Collaborator

Hi Taz, and welcome to this board.

I agree with Vincent. I believe Dr. Green, who is a Celiac specialist, wants the distinction dropped, as there really is no difference. When diagnosed officially with celiac disease, that just means more damage has already been done.

And by the way: There is no such thing as a stupid question here!!!!!!!!

Lister Rising Star

the only diffrence i have found is there are sertain rare medical conditions that can cause you to become gluten intolerant and if you treat those conditions it can acually go away, so unlike celiac if there is a cause for the intolerance u may be able to once again eat weat, the only thing so far i have found that can cause this is candida. Other wise they are almost the exact same

Lisa Mentor

I do not know the difference between the effect of intolerace, but the effects are the same. I don't know of any rare condition that will trigger Celiac. To my knowledge, the symptoms are the same and the diet should be treated as the same. If your body cannot handle gluten, it just can't handle gluten.

I am sorry that you have gone throught many doctors, but the same story is played out here on this site every day. We have all had that experience.

If I can suggest to you, go totally gluten free for a month and see if you see some sort of improvements. For many of us, it has taken almost a year to be free of symptoms...but in the short run, you may feel some improvements with in a months time.

Ursula is correct, there are no stupid questions here. We all started at the beginning. So hammer away with the questions. :)

Lisa

PS: Gluten free, means checking shampoos, soap, lipstick or any mouth contact that you have.

taz sharratt Enthusiast
the only diffrence i have found is there are sertain rare medical conditions that can cause you to become gluten intolerant and if you treat those conditions it can acually go away, so unlike celiac if there is a cause for the intolerance u may be able to once again eat weat, the only thing so far i have found that can cause this is candida. Other wise they are almost the exact same

That is soooo interesting cos i have actually sufferd with thrush(candida) for nearly the whole of my adult life. The only problem is no one has ever managed to find out why i get the infections so much and so bad. Its starting to diapait now but its been over 2 weeks now since ive had it ( might be 3 actually ) now 3 couses of tabs and other treatments later its finally showing signs of dying down ( thank god). Is there any one else out there that has anymore info on this?

mouse Enthusiast

I thought I saw a thread for Candida. You might try doing a search for that topic, on this forum.


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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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