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- leenora replied to MagsM's topic in Related Issues & Disorders7Inflammation and Menier’s disease link?
P.S. I also suffer from Meniere's and Hashimoto's thyroid disease, osteopenia since 40 y.o. These all were diagnosed before the Celiac Disease! And I believe it is all interconnected. -
- leenora replied to MagsM's topic in Related Issues & Disorders7
Inflammation and Menier’s disease link?
Hi Mags, I was diagnosed almost 4 years ago at 57y.o, also of Irish heritage, my mom's from Co. Galway. Have your doctors run an immune globulin panel. My IgA was undetectable & that is what the usual bloodwork for celiac relies on. For example, my tTG IgA was below 2 & deamidated Gliadin IgA was 5, both in normal range. In other words, you do not... -
- MCS replied to HilaryM's topic in Related Issues & Disorders4New onset constant gas
Not sure of your diet but I also experienced this after being diagnosed and going gluten free. Turned out to be issue with both gluten free oats and dairy. I gave up the oats and all dairy except hard cheeses and it relieved both bloat and gas. Also if you have not recently have your iron and sodium levels checked, mine were both very low and per my doc contributed... -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms23Virus, celiac disease or both?
Early guidelines from years ago concerning D3 supplementation was unduly conservative. There was fear of toxicity in over-supplementing because D3 is a fat soluble vitamin and not a water soluble vitamin. More recent studies have shown we can supplement safely at considerably higher levels for extended periods. But yes, 50,000 IU would not be safe over an... -
- Shining My Light replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms23Virus, celiac disease or both?
@knitty kitty I had an injury from assuming I could do work outs at the gym like I did in my 20s 😏. it didn’t work in my favor. My orthopedic doctor told me to go on 50,000IU /per week for 4-6 weeks for a boost and then do a maintenance. I took 2 and got nervous to take any more, it seemed so high to me. About 7 months later I had a blood test revealing that...
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P.S. I also suffer from Meniere's and Hashimoto's thyroid disease, osteopenia since 40 y.o. These all were diagnosed before the Celiac Disease! And I believe it is all interconnected.
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Hi Mags, I was diagnosed almost 4 years ago at 57y.o, also of Irish heritage, my mom's from Co. Galway. Have your doctors run an immune globulin panel. My IgA was undetectable & that is what the usual bloodwork for celiac relies on. For example, my tTG IgA was below 2 & deamidated Gliadin IgA was 5, both in normal range. In other words, you do not have celiac. I HAD TO ASK THE DOCTOR TO RETEST ME using IgG versions of both tests! When he did tTG IgG = >100 ( range 0-5) & the deamidated gliadin IgG = 219 (range 0-19). I also had 2 copies of the gene on 23&me. It is sad that you have to tell the doctors what to test for, but you have to do your research & be your own advocate. And this was a gastroenterologist! Celiac is not very common where I live, so I guess it is not on their radar. Also before the second set of bloodwork I ate as much gluten as possible for 6 weeks. I wanted the tests to be definitive. it was torture & my husband said "Stop doing this to yourself!" But I needed to know. when the GI did a biopsy,my small intestine was almost completely smooth. So very definitely Celiac Disease. Best of Luck with your testing & diagnosis. It is better to know & be able to regain your health. I struggled for 17 years to find out what was wrong.
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Not sure of your diet but I also experienced this after being diagnosed and going gluten free. Turned out to be issue with both gluten free oats and dairy. I gave up the oats and all dairy except hard cheeses and it relieved both bloat and gas. Also if you have not recently have your iron and sodium levels checked, mine were both very low and per my doc contributed to the bloating issues.
-
Early guidelines from years ago concerning D3 supplementation was unduly conservative. There was fear of toxicity in over-supplementing because D3 is a fat soluble vitamin and not a water soluble vitamin. More recent studies have shown we can supplement safely at considerably higher levels for extended periods. But yes, 50,000 IU would not be safe over an extended period of time. That much is a kick start dose.
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By Shining My Light · Posted
@knitty kitty I had an injury from assuming I could do work outs at the gym like I did in my 20s 😏. it didn’t work in my favor. My orthopedic doctor told me to go on 50,000IU /per week for 4-6 weeks for a boost and then do a maintenance. I took 2 and got nervous to take any more, it seemed so high to me. About 7 months later I had a blood test revealing that my Vit D levels are lower than normal. I started taking vit D supplements-4000IU./a day now. (the natural garden of life ones) I had a friend whose levels were low and she was having a mental breakdown. My B12 levels were right in the middle of the range.
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