Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dietary Fructose Intolerance


Zueban1

Recommended Posts

Zueban1 Newbie

I am new to this message board. I noticed somewhere people talking about Dietary Fructose Intolerance, is that here. I am six months gluten-free, and lactose free, now I was diagnosised with fructose intolerance too. Anyone else with celiac have this too? Any recipe resources? Mostly, I read that this may be a temporary condition for celiacs. That once you do the strict diet, you can add fructose laden foods (like fruit) back into your diet. Do you know if this is true?

  • 5 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DebWill Newbie

Yes, I have Dietary Fructose Intolerance, Lactose Intolerance, and Non-celiac gluten intolerance. There is a very good book that helped me with that called the "Self Help Way To Treat Colitis and Other IBS Conditions" Second Edition by DeLamar Gibbons. I had pulled down some files of recipes from a former site that the University of Iowa used to have as a support group. I will be happy to email them to you. The book is good because he explains the mechanisms since as a medical doctor he has it himself.

It is interesting because the DFI causes a different sort of pain/cramping than the lactose. I think it is the worst one, because it is hidden in so many things. And because my sister has it as well, we have been able to compare trial and error notes, such as blueberries are OK, but strawberries are not. Here is the list we have compiled so far:

these things contain fructose:

Onions, artichokes, pears, wheat, apples, peaches, oranges, honey, HFCS made

from corn starch,mangos, papaya,kiwi,guava,cantaloupe, nectarines, apricots,

grapefruit, strawberry, carrots, corn. Dried fruit, tomatoes, molasses,

sweet potatoes, maple syrop, cherries, plums, applesauce, apple juice, pear

juice, apple cider, grapes, DATES (think Larabars!) sugar cane, sugar beets

Hope this helps.

Deb

I am new to this message board. I noticed somewhere people talking about Dietary Fructose Intolerance, is that here. I am six months gluten-free, and lactose free, now I was diagnosised with fructose intolerance too. Anyone else with celiac have this too? Any recipe resources? Mostly, I read that this may be a temporary condition for celiacs. That once you do the strict diet, you can add fructose laden foods (like fruit) back into your diet. Do you know if this is true?
  • 2 weeks later...
Zueban1 Newbie

Thanks Deb,

I am going to try that book. I am now in the re-integration stage. Who knows though. I am also taking major probiotics per my nutritionist, so I am really bloated all the time. The fruit re0integration seems to be going well, but I wish I could see my nutritionist more often to get a sense of what is what. -Suzi

Zueban1 Newbie

Hi Deb,

I am still struggling with the Fructose thing. I have been doing a re-integration, which is not going well. I can tolerate some berries but that seems to be it! Real drag. I have not bought that book yet, I am going to have to succumb to buying it online. However, I did check out that Iowa site too, are they not active anymore, are there any other websites that are helpful. Even though I have a celiac nutritionist, I feel a bit out there on my own with DFI. It is starting to feel like food in general it just making me sick. :(

Thanks, Suzi

BRUMI1968 Collaborator

Is this a test on the regular food panel? I've eliminated all fruits/sugary veggies/sugar of any kind about a week ago. All my bloating went away (already wasn't eating grains/beans, which helped, but was stll bloated). However, I practically couldn't do anything -- no energy. I know the concept of yeast die-off, if I had a candida problem, so I tried to stick with it.

Then I gave in to my fatigue/depression (which I'm not used to having) and got a RICE/ALMOND shake. This cured me...only bloated me again.

Yesterday I ate an apple w/o bloat. It was on an empty stomach.

So I'm debating yeast problem or fructose problem.

Oh anyway, my question - if I just had a food panel run, does it check for that?

rinne Apprentice

Hi, thanks for this question. I'm wondering if I should be asking it? :(

I've been gluten free for about two months now and dairy free for about a month and I am definitely better but I know there is still something going on. I definitely react to dates, honey, kiwi, tomatoes, sugar beets and I suspect others on your list now that I see it but I just didn't know that there were differences in the sugars of different fruits. :(

What about bananas?

Onions, artichokes, pears, wheat, apples, peaches, oranges, honey, HFCS made

from corn starch,mangos, papaya,kiwi,guava,cantaloupe, nectarines, apricots,

grapefruit, strawberry, carrots, corn. Dried fruit, tomatoes, molasses,

sweet potatoes, maple syrop, cherries, plums, applesauce, apple juice, pear

juice, apple cider, grapes, DATES (think Larabars!) sugar cane, sugar beets

Thanks for the information about the book, I will look into it.

Zueban1 Newbie

Yes, there is a Fructose Breath test. It's very similiar to the lactose breath test. They tell you right away. In Boston (where I live), they just started doing the test 6 months ago. However, for celiacs, it can be transitional once your gut is healed you are supposed to be able to eat most fructose again, though nothing too preservative filled. I may have already posted this - so sorry for the repeat..

Open Original Shared Link

This website is someewhat helpful, but not the end all be all. Most nuts have fructose except pistachio, most beans exp for garbanzo, whole soy, lentil, mung and lima. Most veggies have some, so you are supposed to only have a few servings per week. Umm... what else oh spices, no garlic, onion or dill too. And no corn or corn starch, though polenta is allowed.

I too go back and forth with the bloating and an unhappy gut. I am going to go back on the fructose free diet again. :(

-Suzi

Oh and if possible use some dextrose on your food, especially on veggies. Dextrose helps to breakdown fructose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

See, onions don't bother me at all. I eat them by the truckload - mostly because I'm not allowed any sweet veggies right now (sweet potato, etc.) and so they help cut the sweet tooth, but also since they are supposed to be good to fight candida, and because I LOVE them. And they don't trouble me, at least not cooked.

Hmmmm. Well, next time I'm in the doc's office I'll see about the breath test, just to be sure. Thanks, guys!

rinne Apprentice
Oh and if possible use some dextrose on your food, especially on veggies. Dextrose helps to breakdown fructose.

I'm confused, the information I found said dextrose is made from corn but corn contains fructose so is it the process that changes it from not being okay to being helpful? Do you sprinkle it on?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,605
    • Most Online (within 30 mins)
      7,748

    Keri-lee
    Newest Member
    Keri-lee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Alibu
      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
    • Scott Adams
      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...