Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Missing Work

Celia the Celiac

Recommended Posts

Celia the Celiac Apprentice
Celia the Celiac
Posted

Hey all,

I haven't been on in a while. Alot going on. I've been gluten free for about four months now. This weekend I got glutened for the first time I think. I've had such a bad reaction that I've had to leave work today. Really dizzy....excrusiating amounts for gas and loose bowels. Makes me wonder if after you've totally abstained from gluten, how if you come in contact with it, you react stronger that ever before. I sure wish my life and health would just balance out properly. I get so discouraged having to deal with this ALL THE TIME. Somebody out there that's got a handle on this....and please say some words of encouragement for this chick....

Celia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
Hey all,

I haven't been on in a while. Alot going on. I've been gluten free for about four months now. This weekend I got glutened for the first time I think. I've had such a bad reaction that I've had to leave work today. Really dizzy....excrusiating amounts for gas and loose bowels. Makes me wonder if after you've totally abstained from gluten, how if you come in contact with it, you react stronger that ever before. I sure wish my life and health would just balance out properly. I get so discouraged having to deal with this ALL THE TIME. Somebody out there that's got a handle on this....and please say some words of encouragement for this chick....

Celia

Hi Celia--good to see you back! Sorry you got glutened--that sucks :angry: . But the first time in 4 months--not bad--you must have really gotten a handle on the gluten-free diet pretty quickly! It is true that for some of us, the longer we're off gluten, the stronger our reactions become to smaller amounts. All that means is that we have to continue to be diligent. I hope your reaction passes quickly, and don't worry--it gets easier the longer you do it. :)

Thx4noticingMe Newbie
Thx4noticingMe
Posted
Hey all,

I haven't been on in a while. Alot going on. I've been gluten free for about four months now. This weekend I got glutened for the first time I think. I've had such a bad reaction that I've had to leave work today. Really dizzy....excrusiating amounts for gas and loose bowels. Makes me wonder if after you've totally abstained from gluten, how if you come in contact with it, you react stronger that ever before. I sure wish my life and health would just balance out properly. I get so discouraged having to deal with this ALL THE TIME. Somebody out there that's got a handle on this....and please say some words of encouragement for this chick....

Celia

I've been diagnosed for eleven months (spent 6 months in denial, but read everything I could find on the subject) I've been gluten free for five months now and you are right, this isn't fun. Because I have done both the denial and would cheat and then went cold turkey NO GLUTEN, I can tell you keeping the gluten free all the time is the way to go.

You already found out how bad your body feels when given gluten, so it's not really an option. I try to focus on eating all those fresh and whole foods. We are so used to our American diet- processed food and all the chemicals, not to mention the extra calories. I am a born junk food, fast food, convientent food person. My life is very busy, so I want my food FAST! FAST! FAST! I didn't have time to cook all meals from scratch. Maybe being celiac is kinda a blessing in disguise, I have to slow down, enjoy the food I am eating because of the time and effort I put into it. My daughter (18 yrs) is also celiac and when she is at her lunch break at work, many people comment on her healthy eating habits, especially for one so young. She grumbles to herself that she really doesn't have an option, but that doesn't stop her from finding a new treat each month that is gluten free and indulging whenever she feels the need. (Current favorite is Giant Hershey Bar w/almonds).

Find a way to treat yourself and you are on a brand new adventure of food discovery. I am too! So, I watch the Food Network and check online recipes that use whole, fresh ingredients. And I am feeding a family of five (2 gluten free/ 3 on normal diet) And all of us are picky, so it adds to our fustration, but teaches us patience, acceptance the importance of healthy diet.

P.S. I have saved a fortune on fast food restaurants! I grab a banana instead for .21 cents ok maybe two bananas.

KaitiUSA Enthusiast
KaitiUSA
Posted

Hang in there, being glutened is no fun but be optimistic...at least you are not feeling like this all the time you know. I know exactly how you feel, being glutened feels like crap. I hope you feel better and get over this reaction very soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.