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J-DUB

By J-DUB
in Coping with Celiac Disease

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J-DUB Newbie
J-DUB
Posted

I'm new to this forum, never posted, but have read a lot of posts and really feel like I could benefit from this forum and help everyone at the same time. I was diagnosed with celiac in 1995 and gluten free since. It was a tough lifestyle to get adjusted to while going through middle and highschool, but I dealt with it because the consequences were too severe. I stay active going to the gym consistently and play sports all the time. I usually have a lot of energy, but recently I've been completely drained even with no activity. I've been eating lots of fruits and veggies and went to my DR. and he gave be a vitamin B shot(for energy), but I still feel tired most of the time. I push myself to go to the gym but I get lightheaded after 10 min and leave. Its tough because I just turned 21 and have played sports my entire life, not to mention that all my friends are out having a good time and I feel like I can only keep my eyes open til 10:00. If anyone can help I would appreciate it. GO HEAT!!!!

-JOHN in Ft. Lauderdale, Fl

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Guest Elizabeth19
Guest Elizabeth19
Posted
I'm new to this forum, never posted, but have read a lot of posts and really feel like I could benefit from this forum and help everyone at the same time. I was diagnosed with celiac in 1995 and gluten free since. It was a tough lifestyle to get adjusted to while going through middle and highschool, but I dealt with it because the consequences were too severe. I stay active going to the gym consistently and play sports all the time. I usually have a lot of energy, but recently I've been completely drained even with no activity. I've been eating lots of fruits and veggies and went to my DR. and he gave be a vitamin B shot(for energy), but I still feel tired most of the time. I push myself to go to the gym but I get lightheaded after 10 min and leave. Its tough because I just turned 21 and have played sports my entire life, not to mention that all my friends are out having a good time and I feel like I can only keep my eyes open til 10:00. If anyone can help I would appreciate it. GO HEAT!!!!

-JOHN in Ft. Lauderdale, Fl

I WAS JUST DIAGNOSED LIKE A MONTH AGO AND IM 18 AND ITS SORTA DIFFICULT AT TIMES.

PS- GO PISTONS

Lisa Mentor
Lisa
Posted

Hey John, good to meet you----

We all have alot of ups and down as we travel through Celiacland. Since you have been gluten free for ll years, I would suggest that you get a full blood work-up to see where you are are regards to your nutrients in and out of your body.

And are you taking in as many calories as you are burning. When your body tells you to slow down, it's telling you something. Look into that.

If you have other questions there are a bunch of people her that most likely will have the answer for you.

Lisa

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board....if you have any questions let me know...I am here to help:)

inquirer Newbie
inquirer
Posted

Have you had your thyroid checked?

J-DUB Newbie
J-DUB
Posted
  • Author

I never had that tested...What will it detect and what kind of test is it?

inquirer Newbie
inquirer
Posted

It's a blood test that will check for thyroid hormones. Celiacs suffer from autoimmune diseases and hypothyroid is very common. Some symptoms are lack of energy, intolerance to cold, brittle hair, etc.

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Becka85 Newbie
Becka85
Posted

I'm 20 and I've been having the same kind of problem as you. I can sleep for 12-14 hours and still be exhausted a couple of hours after getting up. I have no energy to do anything and no appetite so I have to force myself to eat full meals. I've had this off and on for about a year and I think it may be due to hidden gluten in my diet. I've been rotating my diet to prevent further intolerances from developing but I think there is gluten in one of the new products I tried. I went back to eating food that I knew was 100% safe and I feel much better. It takes a few days to get your energy back though. Have you changed your diet recently? Or are the ingredients different in a product that you've been eating for awhile?

J-DUB Newbie
J-DUB
Posted
  • Author

I'm always lookin for new foods to try or new ways to cook different things so maybe something new I tried had something in it. I'm extremely cautious when I try new foods but have been surprised before. The crazy thing is that I've been gluten free for 11 years and never had a reaction like this (if what I'm experiencing is from gluten).

sandeehier Newbie
sandeehier
Posted

Maybe if the tests don't cost too much, or if your insurance will pay for them, you could get a blood test for hypothyroid AND to check for gliadin antibodies, to see if you've been exposed to hidden gluten.

Good luck and I hope you feel better!

loraleena Contributor
loraleena
Posted

Hi welcome. I suggest you get your thryoid checked also. Make sure they don't just do tsh(it is extremelyinaccurate) There is a whole panel that should include T3, T3 free, T4 free, thyroglobulin antibodies, and thyroperoxidase antibodies (these show hashimotos). Also you should get your adrenals tested as well. Also I would look into hypoglycemia. If you eat lots of carbs your blood sugar could be crashing and causing fatigue. Good luck.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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