Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Everyone

J-DUB

By J-DUB
in Coping with Celiac Disease

Recommended Posts

J-DUB Newbie
J-DUB
Posted

I'm new to this forum, never posted, but have read a lot of posts and really feel like I could benefit from this forum and help everyone at the same time. I was diagnosed with celiac in 1995 and gluten free since. It was a tough lifestyle to get adjusted to while going through middle and highschool, but I dealt with it because the consequences were too severe. I stay active going to the gym consistently and play sports all the time. I usually have a lot of energy, but recently I've been completely drained even with no activity. I've been eating lots of fruits and veggies and went to my DR. and he gave be a vitamin B shot(for energy), but I still feel tired most of the time. I push myself to go to the gym but I get lightheaded after 10 min and leave. Its tough because I just turned 21 and have played sports my entire life, not to mention that all my friends are out having a good time and I feel like I can only keep my eyes open til 10:00. If anyone can help I would appreciate it. GO HEAT!!!!

-JOHN in Ft. Lauderdale, Fl

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Elizabeth19
Guest Elizabeth19
Posted
I'm new to this forum, never posted, but have read a lot of posts and really feel like I could benefit from this forum and help everyone at the same time. I was diagnosed with celiac in 1995 and gluten free since. It was a tough lifestyle to get adjusted to while going through middle and highschool, but I dealt with it because the consequences were too severe. I stay active going to the gym consistently and play sports all the time. I usually have a lot of energy, but recently I've been completely drained even with no activity. I've been eating lots of fruits and veggies and went to my DR. and he gave be a vitamin B shot(for energy), but I still feel tired most of the time. I push myself to go to the gym but I get lightheaded after 10 min and leave. Its tough because I just turned 21 and have played sports my entire life, not to mention that all my friends are out having a good time and I feel like I can only keep my eyes open til 10:00. If anyone can help I would appreciate it. GO HEAT!!!!

-JOHN in Ft. Lauderdale, Fl

I WAS JUST DIAGNOSED LIKE A MONTH AGO AND IM 18 AND ITS SORTA DIFFICULT AT TIMES.

PS- GO PISTONS

Lisa Mentor
Lisa
Posted

Hey John, good to meet you----

We all have alot of ups and down as we travel through Celiacland. Since you have been gluten free for ll years, I would suggest that you get a full blood work-up to see where you are are regards to your nutrients in and out of your body.

And are you taking in as many calories as you are burning. When your body tells you to slow down, it's telling you something. Look into that.

If you have other questions there are a bunch of people her that most likely will have the answer for you.

Lisa

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board....if you have any questions let me know...I am here to help:)

inquirer Newbie
inquirer
Posted

Have you had your thyroid checked?

J-DUB Newbie
J-DUB
Posted
  • Author

I never had that tested...What will it detect and what kind of test is it?

inquirer Newbie
inquirer
Posted

It's a blood test that will check for thyroid hormones. Celiacs suffer from autoimmune diseases and hypothyroid is very common. Some symptoms are lack of energy, intolerance to cold, brittle hair, etc.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Becka85 Newbie
Becka85
Posted

I'm 20 and I've been having the same kind of problem as you. I can sleep for 12-14 hours and still be exhausted a couple of hours after getting up. I have no energy to do anything and no appetite so I have to force myself to eat full meals. I've had this off and on for about a year and I think it may be due to hidden gluten in my diet. I've been rotating my diet to prevent further intolerances from developing but I think there is gluten in one of the new products I tried. I went back to eating food that I knew was 100% safe and I feel much better. It takes a few days to get your energy back though. Have you changed your diet recently? Or are the ingredients different in a product that you've been eating for awhile?

J-DUB Newbie
J-DUB
Posted
  • Author

I'm always lookin for new foods to try or new ways to cook different things so maybe something new I tried had something in it. I'm extremely cautious when I try new foods but have been surprised before. The crazy thing is that I've been gluten free for 11 years and never had a reaction like this (if what I'm experiencing is from gluten).

sandeehier Newbie
sandeehier
Posted

Maybe if the tests don't cost too much, or if your insurance will pay for them, you could get a blood test for hypothyroid AND to check for gliadin antibodies, to see if you've been exposed to hidden gluten.

Good luck and I hope you feel better!

loraleena Contributor
loraleena
Posted

Hi welcome. I suggest you get your thryoid checked also. Make sure they don't just do tsh(it is extremelyinaccurate) There is a whole panel that should include T3, T3 free, T4 free, thyroglobulin antibodies, and thyroperoxidase antibodies (these show hashimotos). Also you should get your adrenals tested as well. Also I would look into hypoglycemia. If you eat lots of carbs your blood sugar could be crashing and causing fatigue. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748
    Butch68
    Newest Member
    Butch68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.