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First Gluten Accident?


ryebaby0

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ryebaby0 Enthusiast

My son started throwing up/dh yesterday afternoon, he was dx 12/03 and we've never had a gluten accident so I'm assuming that's what this is -- he didn't ingest anything non-gluten-free yesterday, and everything was food he had had before, but I don't know what else it could be. (He doesn't seem sick - no temp, etc.) Can you develop a sensitivity to "maybe" foods as you recover? I ask, because I know he had some m&ms at a friends house and while those are technically gluten-free I see lots of people seem to react to them. He never has before, but....

But he even threw up water, so now he's npo for a while. Do we start back on regular gluten-free diet today, or would you suggest treating this more like the flu, and start with clears, then a BRAT-type diet, etc.? He has other conditions that might be the problem, but I've no way to tell what happened. (And THAT is DRIVING me NUTS! I want a little diagnostic panel to pop open on his head that says "by the way, my med levels are too low to control the AE" or "Did I mention I ate off my brother's plate?")

Thanks in advance~

Joanna


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Boojca Apprentice

Are you SURE it's not just a bug? I'm in VT and it's going around here wicked right now. I know 6 kids that are out with vomiting, diarrhea, etc... and it's just a virus that's going around. Can't wait to get it! ;-) hahaha.... This seems to be lasting about a week.

B

mat4mel Apprentice

Yeah, could be a bug... our family just got over a horrible bug. The kids acted fine but would just throw up spontaneously. Sometimes they would keep food down just fine, other times they would throw it up. This happened off and on for a week or so.

Mel

ryebaby0 Enthusiast

No, I'm not sure it isn't a bug -- he's on immunosuppressants, so that's always a possibility (he picks up stuff that other people might carry, but be asymptomatic). But he doesn't have a temp, or any other symptoms, and he hasn't been in school for days. Yeesh. Today is better though-- he kept everything in, so that's good. "Everything" was water, and late in the day he had some chicken and rice. Thanks for the input, it helps...

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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