Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Carrageenan

Mango04

Recommended Posts

Mango04 Enthusiast
Mango04
Posted

I just have to say, that the existence of carrageenan really annoys me! :P Seriously, it's in EVERYTHING at the health food store. I just read that it's the vegetarian eqivalent of casein. I wonder how many of us get sick from it and don't even know it.

I think I've almost eliminated it, except it's almost impossible to find a carrageenan-free, gluten-free, dairy-free, soy-free milk. I know that's asking a lot of a milk..so maybe I will have to start making my own. :) I'm just wondering if anybody knows anythiing about carrageenan, or has problems with it. Here's one article I found:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
I'm just wondering if anybody knows anythiing about carrageenan, or has problems with it. Here's one article I found:

Mango..I have problems with it. Its evil. I hate carageenan.

I posted a list of the worst food additives last night (pg. 34 on that super long thread).

Carageenan was on there. This is what it said.

Carrageenan - stabilizer and thickening agent; linked to toxic hazards, including ulcers and cancer; In addition to suppressing immune function, carrageenan causes intestinal ulcers and inflammatory bowel disease in animals and some research indicates that carrageenan is associated with causing cancer in humans.

Its also got lots of free glutamates in it (msg).

Mango04 Enthusiast
Mango04
Posted
  • Author

It is evil huh? I can't believe how many evil things are put into our food. We don't even know what these things really are or what they actually do to us. It really makes me kind of mad.

I was reading pg. 34 of your thread/book and that's what got me thinking about it. I kind of recognized all of those other additives as being harmful..and then there was carrageenan, which I see ALL the time at ALL "health food" stores. It's hard to find much about what it actually is beyond "it's a seaweed extract" or something like that. Anyway, I started to kind of read about it and now I have no desire to consume it ever ever again. It's hard to avoid though. Grr...

Green12 Enthusiast
Green12
Posted
It is evil huh? I can't believe how many evil things are put into our food. We don't even know what these things really are or what they actually do to us. It really makes me kind of mad.

I was reading pg. 34 of your thread/book and that's what got me thinking about it. I kind of recognized all of those other additives as being harmful..and then there was carrageenan, which I see ALL the time at ALL "health food" stores. It's hard to find much about what it actually is beyond "it's a seaweed extract" or something like that. Anyway, I started to kind of read about it and now I have no desire to consume it ever ever again. It's hard to avoid though. Grr...

It really is so true that carrageenan is in everything, especially like you said products in the health food store.

I was eating a turkey roll up EVERYDAY for lunch for 3 years in my Food For Life Brown Rice Tortillas. I made a conscious helath choice by getting the turkey at the health food store, free of nitrites and nitrates and other chemical additives and fillers- I sure thought wrong. The ingredients were turkey, water, and carrageenan!! So I had the corn derivative xanthan gum from the tortillas and the carrageenan from the turkey, every single day. I really did awesome.

Felidae Enthusiast
Felidae
Posted

I try to limit carageenan too. What a stupid ingredient. Do manufacturers think we would choose to eat a glue-like substance? I wish they didn't have to put it in soy milk.

Mango04 Enthusiast
Mango04
Posted
  • Author
It really is so true that carrageenan is in everything, especially like you said products in the health food store.

I was eating a turkey roll up EVERYDAY for lunch for 3 years in my Food For Life Brown Rice Tortillas. I made a conscious helath choice by getting the turkey at the health food store, free of nitrites and nitrates and other chemical additives and fillers- I sure thought wrong. The ingredients were turkey, water, and carrageenan!! So I had the corn derivative xanthan gum from the tortillas and the carrageenan from the turkey, every single day. I really did awesome.

That's exactly how I feel. I've been making consious, organic, nitrate-free health choices that have been FULL of carageenan...aka poison! Soooo annoying!

  • 7 years later...
Kimbo111 Newbie
Kimbo111
Posted

Hi everyone...I am fairly new to the gluten free life. I went completely gluten free around January of this year. I had been suffering from toxic mold exposure for 4 years that really did a number on my immune system and now I have come to realize I suffer from several food issues, and the list seems to keep growing.

 

When I gave up gluten, there was a huge noticeable improvement. I mostly get skin issues from gluten, which leads me to believe I may have Celiac. I know I carry the DQ2 gene that is found in many Celiac and Mold Illness patients. However, Malt causes so much severe intestinal pain I've almost gone to the emergency room. Now I'm finding soy effects my skin as well, I get small blisters on my neck and between my eyes, and vinegar causes my skin to burn.

 

The other day I went to Froyoyo and got the 8 calorie, gluten free chocolate frozen yogurt. I was fine until about 2 hours later then I had such severe stomach pain that lasted the entire evening. I also got blisters on my skin as well.  I felt out of it for about three days. So I'm wondering what caused this?

 

From what I can tell, there isn't any soy or malt (and since malt is gluten, this was labeled gluten free) in frozen yogurt. I did some research and came across carrageenan! Yikes....don't know WHY they put this stuff in our food. But I'm also wondering if it could be from Whey Protein?

 

Has anyone had this issue? Or can anyone offer some advice?

 

One other thing, I have been seeing an MD who also believes in a holistic approach and has put me on many food supplements, juices, vitamins, etc. and I was getting acupuncture and glutathione pushes, which is glutathione injections into the vein on a weekly basis for about 2 months. This helped me immensely, but just when my skin starts to clear up and I'm feeling pretty good, I end up eating something that sets me back again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

hello, kimbo - 

this is a very old thread (started in 2006) so, many of the original posters may not be around to answer your questions.   welcome to the forum.  :)  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.