Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Carrageenan

Mango04

Recommended Posts

Mango04 Enthusiast
Mango04
Posted

I just have to say, that the existence of carrageenan really annoys me! :P Seriously, it's in EVERYTHING at the health food store. I just read that it's the vegetarian eqivalent of casein. I wonder how many of us get sick from it and don't even know it.

I think I've almost eliminated it, except it's almost impossible to find a carrageenan-free, gluten-free, dairy-free, soy-free milk. I know that's asking a lot of a milk..so maybe I will have to start making my own. :) I'm just wondering if anybody knows anythiing about carrageenan, or has problems with it. Here's one article I found:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
I'm just wondering if anybody knows anythiing about carrageenan, or has problems with it. Here's one article I found:

Mango..I have problems with it. Its evil. I hate carageenan.

I posted a list of the worst food additives last night (pg. 34 on that super long thread).

Carageenan was on there. This is what it said.

Carrageenan - stabilizer and thickening agent; linked to toxic hazards, including ulcers and cancer; In addition to suppressing immune function, carrageenan causes intestinal ulcers and inflammatory bowel disease in animals and some research indicates that carrageenan is associated with causing cancer in humans.

Its also got lots of free glutamates in it (msg).

Mango04 Enthusiast
Mango04
Posted
  • Author

It is evil huh? I can't believe how many evil things are put into our food. We don't even know what these things really are or what they actually do to us. It really makes me kind of mad.

I was reading pg. 34 of your thread/book and that's what got me thinking about it. I kind of recognized all of those other additives as being harmful..and then there was carrageenan, which I see ALL the time at ALL "health food" stores. It's hard to find much about what it actually is beyond "it's a seaweed extract" or something like that. Anyway, I started to kind of read about it and now I have no desire to consume it ever ever again. It's hard to avoid though. Grr...

Green12 Enthusiast
Green12
Posted
It is evil huh? I can't believe how many evil things are put into our food. We don't even know what these things really are or what they actually do to us. It really makes me kind of mad.

I was reading pg. 34 of your thread/book and that's what got me thinking about it. I kind of recognized all of those other additives as being harmful..and then there was carrageenan, which I see ALL the time at ALL "health food" stores. It's hard to find much about what it actually is beyond "it's a seaweed extract" or something like that. Anyway, I started to kind of read about it and now I have no desire to consume it ever ever again. It's hard to avoid though. Grr...

It really is so true that carrageenan is in everything, especially like you said products in the health food store.

I was eating a turkey roll up EVERYDAY for lunch for 3 years in my Food For Life Brown Rice Tortillas. I made a conscious helath choice by getting the turkey at the health food store, free of nitrites and nitrates and other chemical additives and fillers- I sure thought wrong. The ingredients were turkey, water, and carrageenan!! So I had the corn derivative xanthan gum from the tortillas and the carrageenan from the turkey, every single day. I really did awesome.

Felidae Enthusiast
Felidae
Posted

I try to limit carageenan too. What a stupid ingredient. Do manufacturers think we would choose to eat a glue-like substance? I wish they didn't have to put it in soy milk.

Mango04 Enthusiast
Mango04
Posted
  • Author
It really is so true that carrageenan is in everything, especially like you said products in the health food store.

I was eating a turkey roll up EVERYDAY for lunch for 3 years in my Food For Life Brown Rice Tortillas. I made a conscious helath choice by getting the turkey at the health food store, free of nitrites and nitrates and other chemical additives and fillers- I sure thought wrong. The ingredients were turkey, water, and carrageenan!! So I had the corn derivative xanthan gum from the tortillas and the carrageenan from the turkey, every single day. I really did awesome.

That's exactly how I feel. I've been making consious, organic, nitrate-free health choices that have been FULL of carageenan...aka poison! Soooo annoying!

  • 7 years later...
Kimbo111 Newbie
Kimbo111
Posted

Hi everyone...I am fairly new to the gluten free life. I went completely gluten free around January of this year. I had been suffering from toxic mold exposure for 4 years that really did a number on my immune system and now I have come to realize I suffer from several food issues, and the list seems to keep growing.

 

When I gave up gluten, there was a huge noticeable improvement. I mostly get skin issues from gluten, which leads me to believe I may have Celiac. I know I carry the DQ2 gene that is found in many Celiac and Mold Illness patients. However, Malt causes so much severe intestinal pain I've almost gone to the emergency room. Now I'm finding soy effects my skin as well, I get small blisters on my neck and between my eyes, and vinegar causes my skin to burn.

 

The other day I went to Froyoyo and got the 8 calorie, gluten free chocolate frozen yogurt. I was fine until about 2 hours later then I had such severe stomach pain that lasted the entire evening. I also got blisters on my skin as well.  I felt out of it for about three days. So I'm wondering what caused this?

 

From what I can tell, there isn't any soy or malt (and since malt is gluten, this was labeled gluten free) in frozen yogurt. I did some research and came across carrageenan! Yikes....don't know WHY they put this stuff in our food. But I'm also wondering if it could be from Whey Protein?

 

Has anyone had this issue? Or can anyone offer some advice?

 

One other thing, I have been seeing an MD who also believes in a holistic approach and has put me on many food supplements, juices, vitamins, etc. and I was getting acupuncture and glutathione pushes, which is glutathione injections into the vein on a weekly basis for about 2 months. This helped me immensely, but just when my skin starts to clear up and I'm feeling pretty good, I end up eating something that sets me back again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

hello, kimbo - 

this is a very old thread (started in 2006) so, many of the original posters may not be around to answer your questions.   welcome to the forum.  :)  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748
    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.