Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seemingly Endless Appitite?


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

Is this a symptom of celiac??? The Dr's have thrown around the idea of testing my 1 year old for celiac but haven't yet. He's only in the 5th percentile for weight but eats NON STOP... more than most school age children it seems!! He's short too, has chronic constipation issues, reflux, very gassy, is very irritable, and is not digesting much of the food he eats (it comes out whole), he was anemic at his 9 month check up too. The Drs told me that children with celiac don't want to eat cause their tummy's are uncomfy so since Matthew has a HUGE appitite he must not have celiac??? I am confused!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast
Is this a symptom of celiac??? The Dr's have thrown around the idea of testing my 1 year old for celiac but haven't yet. He's only in the 5th percentile for weight but eats NON STOP... more than most school age children it seems!! He's short too, has chronic constipation issues, reflux, very gassy, is very irritable, and is not digesting much of the food he eats (it comes out whole), he was anemic at his 9 month check up too. The Drs told me that children with celiac don't want to eat cause their tummy's are uncomfy so since Matthew has a HUGE appitite he must not have celiac??? I am confused!!

All the things you have listed are symptoms for Celiac. If I have been glutened I feel BURNING hunger pains. My daughter was eating more food than I was and she was only 10 months old!

L.

penguin Community Regular

With celiac, you're malnourished. You're not absorbing any food, so your body thinks its starving, ergo-massive appetite.

It's very much a symptom of celiac, or at the very least malnutrition.

Fiddle-Faddle Community Regular

Is your one-year-old still getting any breast milk, or is he already weaned? For some reason, besides for being more easily digested than any other milk (including ALL formulas), the proteins and fats in breast milk go directly to bone and brain growth rather than fat. He may be thirsty, too. One year-olds can't always tell the difference between hunger and thirst--make sure he's washing all that food down!

If his food is coming out the other end whole, then he's not chewing his food and he shouldn't be eating that kind of food. Run it through the blender first with some liquid!

If you've only recently weaned him, you can still probably relacte by pumping. It sounds like an awful pain in the patootie, but I bet you'll see a HUGE diffrence.

penguin Community Regular
If his food is coming out the other end whole, then he's not chewing his food and he shouldn't be eating that kind of food. Run it through the blender first with some liquid!

It's also a sign that food isn't being digested at all, if it's chewed but comes out looking like the chewed state. Any grown up celiac with a full set of teeth that's ever eaten a salad on a bad day can tell you that :ph34r:

sarahelizabeth Contributor

He weaned himself from breastmilk at 9 months. At that time we thought he had a dairy allergy so it turned out for the best. He had allergy testing done and came back negative for everything except peanut (but that is a whole otehr story) He was only Alimentum up until his birthday 2 weeks ago and is now on whole milk.

Our GI Dr said that it **can** be normal for kids his age to have foods come out whole because they lack the teeth for good chewing. He said if his poops still look like that in a year then he would send him for further testing. He told me not to worry about it and not to change his diet. He said the same thing about the reflux... can be "normal" up to age 2 so wanted to wait another year before any testing. So now we just have to sit back and wait a year :(

Fiddle-Faddle Community Regular
So now we just have to sit back and wait a year :(

You don't HAVE to do anything you don't want to do! You are in charge of what goes in your son's mouth, not your doctor!

If he has a problem chewing his food, then it can't possibly be good for his intestinal tract (with or without celiac) to have unchewed food passing through it! His stomach is probably producing extra acid to try to break down the unchewed food. If he has reflux, there ARE measures to lessen it (my daughter had reflux, too). you're probably already doing them, but just in case: keep him upright as much as possible, especially after eating. If he's tired, hold him with his head on your shoulder and rock him, and then just hold him til he wakes up, or else let him sleep in a toddler car seat. Feed him HALF as much--but twice as often.

You might want to go back to the Alimentum and see if he has an easier time digesting it. If you MUST do cow's milk, please get Organic--all the things we nursing moms were told we CAN'T take and still nurse our babies, like antibiotics and hormones are in the diets of America's dairy cows. They are on constant antibiotics and recombinant bovine growth hormone, and they eat pesticide-laden feed, too. Organic milk is ridiculously expensive--but worth it in the long run.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenyonsmommy Rookie

My son is 2, just diagnosed by biopsy last month. He eats non-stop. he wakes me up at 5 am every morning with a go-gurt that he has grabbed from the fridge. he eats it, has some water and goes back to sleep. When he is awake, he is constantly hungry. he's only been gluten free for about 3 weeks, he's gained almost 4 pounds. Before he was Dx, his poop was almost white and smelled horrible, he was getting no nourishment what so ever. I think he may have gotten used to the non stop eating then, and its just continuing now. Not to mention that he feels 10x better.

By the way, I also just trained him to grab a diaper when he comes in with his go-gurt, that way i dont have to get up. 5 am is way too early for me.

e&j0304 Enthusiast

Endless appetite was the main problem that we had with my dd. She would eat ALL the time and was also very tiny. Only 18lbs and 27inches at a year old. She should have been 40lbs at least. She was so malnourished before we figured out that gluten was the problem that her hair was falling out in clumps and she was actually bald in spots on her head. She was about 2.5 years at that point.

She is now almost 3.5 years old and is doing VERY well. Her hair is growing in, she is happy and thriving in every way. She is of normal weight although she is still short. She is still an above average eater, I would say, but I think that as someone else mentioned, she was used to eating such huge amounts of food and I think that stuck with her. What we are not dealing with now is the total obsession about when she could eat next, melt downs about being hungry (after just eating something) and lack of ability to just function in a normal social setting because she was so miserably hungry.

I would advice you to try the diet. It can't hurt and it may be the best thing you could ever do for your child. I thank God every day that we were able to help my dd with the simple dietary change.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.