Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shampoos/conditioners

Donna F

Recommended Posts

Donna F Enthusiast
Donna F
Posted

Okay, I've heard someone here say that L'Oreal shampoo is okay.

Today I bought Vive - Smooth-Intense Shampoo and Conditioner (seperate bottles)

There is no contact info on the bottle - only a website with no way to contact them or FAQs.

Is this stuff okay? The longer I've been on the diet, the more sensative I've become.

Otherwise, I need some names of manufacturers of gluten-free shampoos and conditioner - especially conditioner. My product listing has NONE! I won't be able to comb my hair anymore (it's getting longer) - and it's growing (NO, i will NOT cut it!)so it'll only get worse.

thanks!

donna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lisabarella Apprentice
lisabarella
Posted

This is what they told me...

Basically NOTHING. Doesn't help. But here is the number. Stick with Nutrogena.

June 15, 2004

Thank you for visiting L'Or

Donna F Enthusiast
Donna F
Posted
  • Author

Thanks Lisa,

I'll call them on Monday.

There is something wrong with the Neutrogena for me - I can't use it.

Neutrogena also put out a statement that they don't guarantee their products are gluten-free any more and to use with caution. Since they give me a reaction - I don't use them anymore.

Guess I'm stuck with Toms (yuck! - smelly!)

-donna

terri Contributor
terri
Posted

I went round and round with them and finally they said that the Color Vive was gluten-free but not necessarily the other Vive shampoos. So, be sure to double check. I talked to Garnier Fructus and they said ALL their products are gluten free. So, they are a pretty safe bet. I think the Dove Products are okay. At least the color treated ones are. Someone said Pantene is also gluten free but I haven't personally checked them.

Terri

dana-g Newbie
dana-g
Posted

I am ultra-sensitive to gluten in shampoo and I use Pantene with no trouble.

Donna F Enthusiast
Donna F
Posted
  • Author

That's a relief. I didn't know there were so many gluten-free ones out there.

I'm glad I won't have to shave my head :o

Thanks!

:D donna

  • 2 weeks later...
terri Contributor
terri
Posted

Here is the response I got from Pantene. I think it should be fine, don't you?

(My question)

Are your products gluten and wheat free? I need to know before I purchase any...

Discussion Thread

---------------------------------------------------------------

Response (Monika) - 07/02/2004 02:21 PM

Thanks for contacting Pantene, Terri.

We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

I hope this response has been helpful to you. For more information about Celiac, you may want to check out Open Original Shared Link and Open Original Shared Link

Thanks for getting in touch with us.

Monika

Beauty Care Team

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dana-g Newbie
dana-g
Posted

It's called "Passing the Buck". If Pantene adds a fragrance that contains gluten to its product, I think they are morally bound to inform their consumers. It shouldn't matter if they are the source of the gluten-containing ingredient or not! I personally react quite violently to "hydrolyzed wheat protein" applied to my scalp--burning, itching, etc. I'm not so much worried about ingesting the shampoo since I don't shower with my mouth open! I don't want to take a chance that an undeclared source of gluten will spark a reaction. I do, however, use Pantene with no trouble.

Donna F Enthusiast
Donna F
Posted
  • Author

I agree, it does sound like passing the buck.

I've been using Pantene for a few weeks now and I've not had a problem. No more Neutrogena for me! I'm fairly certain Pantene IS okay since I seem to be really sensitive now and I have no problem with it.

thanks for telling me!

-donna

Guest Lindam
Guest Lindam
Posted

:) I have not had any problems using Dove shampoo and conditioners. I have had excellent luck with Johnson's Baby shampoo also. I can't believe how many items out there have gluten in them. I just went to the beauty salon yesterday and they only had one shampoo that they could use on me. All the salon products have some sort of wheat and/or oats in them.

Good Luck

Linda

terri Contributor
terri
Posted

Lindam I called Dove and they told me over the phone that it was fine. I use Dove, Garnier Fructus and Pantene ( I like variety) and bring my own when going to the salon. I use Lever 2000 bodywash. I read the label and it looks okay, Keri Lotion or Suave ( which are gluten-free (Suave read label first) ). Hang in there!

Terri

hapi2bgf Contributor
hapi2bgf
Posted

You may want to rethinck the Lever soap. I loved Lever soap, but when I called Unalever (the parent company) they said Lever is not gluten-free. I use Dove now.

Suave product line is generally ok. Read the labels.

flagbabyds Collaborator
flagbabyds
Posted

I use panteen and toms of maine

terri Contributor
terri
Posted

Thanks for the warning about the Lever. I guess that goes to my husband too, along with all the expensive shampoos and conditioners! Will use Dove or is TONE liquid okay, do you know? Thanks!

terri Contributor
terri
Posted

I just got off the phone with Lever 2000 bodywash. They are a Unilever company and follows the guidelines where if there is any oat, barley, wheat or rye present in any of their products, it would be clearly listed on the label as such. It would not be hidden under some chemical sounding name. Unilever also owns Lipton and Ragu and the same applies to them. So, I can use my Morning Sky bodywash again as it does not have any wheat, barley, oats or rye listed. :) Now if every company could be like that!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      Recently launched Daura Non-Alcoholic Named One of the Best in the World by Forbes

    2. Iam
      - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Yes. I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy. Numerous dental visits and several professionally made bite plates did very little to help with symptoms
    3. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    4. Scott Adams
      0

      New Research Reveals Why the Gut May Stay Sensitive Even After a Gluten-Free Diet

    5. bobadigilatis
      - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm. Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748
    Hcon74
    Newest Member
    Hcon74
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Feel like I’m starting over

      By trents · Posted

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By bobadigilatis · Posted

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.