Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hiatal Hernia


minibabe

Recommended Posts

minibabe Contributor

I have been in constant pain for over a month. My mom finally made me make a GI appointment. I am really scared to go. What are the treatment plans for Hiatal hernias? Has anyone had one and had surgery? I know that this is the problem because I was diagnosed with one about two years ago but i has never bothered me like this before. I am really scared :( to see what the doctor is going to say. My appointment is next wednesday.

Thanks everyone :)

Amanda NY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

more often than not, hiatal hernias in adults are treated with diet and lifestyle changes and medication. are you on a PPI? my 2 1/2 year old was born with a hiatal hernia which caused pretty severe reflux and she had surgery just before she turned 10 months old, but hiatal hernias in infants are different than hiatal hernias in adults.

minibabe Contributor

I was on prevacid for 4-1/2 years and it has done nothing for me. I eat antiacids like they are skittles. I live on them. I eat or drink anything and it makes me feel bloated and i feel very fatigued, I am also having some problems breathing (I am not sure if that has anything to do with it?) I will be 21 in about 1 month. When my doctor told me about this 2 years ago, she described it as being "abnormally large" now I dont know what that really means in medical terms and it really was not bothering me then, but now that it is I dont know if they can get worse or not. I am not really familar with it but all i do know is that it is making me feel like cr*p. :(

Thank you :)

Amanda NY

chrissy Collaborator

one of my twins was having shortness of breath for quite a while before we figured out it was caused by reflux----so, yes, your hiatal hernia could be causing your breathing problems. i would like to have the surgery done on my daughter----the meds are so dang expensive. i don't know if she has a hernia or not, but she has a lot of trouble with her reflux. they do the surgery laparoscopically now, so there is minimal scarring and i have heard there is not alot of pain. eating only soft foods for a few months might be a pain, but it might be a lot better than the way you are feeling now.

i forgot to say that hiatal hernias can get worse.

trents Grand Master

The most common surgery to correct a hiatial hernia is called a lap nissen, a laprascopic proceedure as the name implies. I think it involves taking a muscle from your chest wall or somwhere and wrapping it around your esophagus to create a substitute sphincter valve. This keeps the stomach contents in the stomach - theoretically. It's a lot less traumatic than the old way of repairing those hernias where they used to go in through the back of your neck. Sounds like you might be to the point where surgery is the one option left.

Steve

slpinsd Contributor

What are the symptoms of a hiatal hernia and how is it diagnosed? My reflux gets so bad that I feel like someone is sitting on my chest and I have difficulty breathing. I also have some kind of esophageal muscle spasms.

trents Grand Master
What are the symptoms of a hiatal hernia and how is it diagnosed? My reflux gets so bad that I feel like someone is sitting on my chest and I have difficulty breathing. I also have some kind of esophageal muscle spasms.

You gottem'. Diagnosis is made with an upper GI/endoscopy. This is an extremely common medical problem and there is a higher incidence with Celiacs. I have a small one. Caught it pretty early and Protonix keeps my GERD in check.

Steve


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor

Thank you so much everyone. I really appericate your respones. I have been fighting reflux for over 6 years now. 4 of which i have been on prevacid. It makes me extremly uncomforable. I am really worried about scaring I dont want to have any scars on my stomach. I mean I am only 20 I love going to the beach and I consider myself to have a fit body. I would certaintly hope that it would improve my life style. How long is the healing process, because I commute back and forth to school carring a 25 pound back pack on my shoulders. I commute from Long Island to the city so it is about 2 hours. I go back to school in september. I would have to get it done at least a month before I go back to school right?

I am just extremely scared. Has anyone on this board gotten to this point where you have needed surgery. Also if you have how long did they keep you in the hospital and how long were you out of work. I also just sit at a desk all day so would I be able to go back to work sooner.

Thank you all so much again.

Amanda NY

powderprincess Rookie

I was recently dx with a hiatal hernia. They found it during my endoscopy for celiac. I am lucky because it rarely bothers me. Sometimes I would get the "heart attack" feeling they say is a symptom and need to take short breaths, but that goes away pretty quickly.

My Dr. told me one way to treat it is to have many small meals rather than 3 bigger ones. I have done that anyway for a long time which may be why I did not know I had an issue. Maybe small meals would help you.

chrissy Collaborator

i can tell you about my daughter's procedure. it was called a nissen fundoplication. the top of the stomach is wrapped around the bottom of the esophagus and stitched in place, creating and artificial valve to keep stomach contents where they belong. a nissen wrap is a full wrap, a toupe wrap is a partial wrap. motility problems would one reason to do a partial wrap.

my daughter has 5 tiny little scars that are hardly visible. one below the sternum for the camera, and 2 on each side below her ribs. one to hold the stomach, one to hold the liver, and the other 2 for the surgical instruments. she went in to surgery around 9:30 in the morning----it took 3-3 1/2 hours. we only stayed one night in the hospital and went home the next evening at about 6:00. her surgery was on a thursday and i took her to church on sunday. she really did not seem to have much pain after the first couple of days.

she had to be on pureed food for about 2 months. she has never had any complications from her surgery. she cannot throw up, but she is able to burp.

there are probably different ways the surgery is done by different doctors---but at least this can give you an idea of what to expect.

minibabe Contributor

she can not throw up? why is that, not that I am looking to do that. Even being 20 I would still have to have the pureed food? If that was the case with me I dont know what I would do when I went back to school. Oh I also go tanning I know that it is not very good for you but I love the way it makes me look. I also only go about 1 to 2 times a week if that. Do scars tan? or would tanning make them more noticable?

Thank you so much for sharing your story.

Amanda NY

trents Grand Master

Here's a link, Amanda, to the surgerical procedure we are talking about:

Open Original Shared Link

It is usual not to be able to vomit after this surgery, I think. The reason might be that vomiting involves the contraction of the stomach, which after this procedure where part of your stomach acts as a valve to close off the esophagus from reflux, would cause the esophagus to be closed off.

Steve

slpinsd Contributor

i had an endoscopy and nothing was mentioned about a hernia. can i assume i don't have one?

minibabe Contributor
i had an endoscopy and nothing was mentioned about a hernia. can i assume i don't have one?

If it was anything serious or anything that your docotor was concerened with she would have mentioned it to you. Or if you are that unsure......just call and ask. I usually dont have a problem with doctors returing my phone calls.

Good Luck

Amanda

Steve.....thank you for the website. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,186
    • Most Online (within 30 mins)
      7,748

    Kris46
    Newest Member
    Kris46
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...