Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hiatal Hernia

minibabe

Recommended Posts

minibabe Contributor
minibabe
Posted

I have been in constant pain for over a month. My mom finally made me make a GI appointment. I am really scared to go. What are the treatment plans for Hiatal hernias? Has anyone had one and had surgery? I know that this is the problem because I was diagnosed with one about two years ago but i has never bothered me like this before. I am really scared :( to see what the doctor is going to say. My appointment is next wednesday.

Thanks everyone :)

Amanda NY

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

more often than not, hiatal hernias in adults are treated with diet and lifestyle changes and medication. are you on a PPI? my 2 1/2 year old was born with a hiatal hernia which caused pretty severe reflux and she had surgery just before she turned 10 months old, but hiatal hernias in infants are different than hiatal hernias in adults.

minibabe Contributor
minibabe
Posted
  • Author

I was on prevacid for 4-1/2 years and it has done nothing for me. I eat antiacids like they are skittles. I live on them. I eat or drink anything and it makes me feel bloated and i feel very fatigued, I am also having some problems breathing (I am not sure if that has anything to do with it?) I will be 21 in about 1 month. When my doctor told me about this 2 years ago, she described it as being "abnormally large" now I dont know what that really means in medical terms and it really was not bothering me then, but now that it is I dont know if they can get worse or not. I am not really familar with it but all i do know is that it is making me feel like cr*p. :(

Thank you :)

Amanda NY

chrissy Collaborator
chrissy
Posted

one of my twins was having shortness of breath for quite a while before we figured out it was caused by reflux----so, yes, your hiatal hernia could be causing your breathing problems. i would like to have the surgery done on my daughter----the meds are so dang expensive. i don't know if she has a hernia or not, but she has a lot of trouble with her reflux. they do the surgery laparoscopically now, so there is minimal scarring and i have heard there is not alot of pain. eating only soft foods for a few months might be a pain, but it might be a lot better than the way you are feeling now.

i forgot to say that hiatal hernias can get worse.

trents Grand Master
trents
Posted

The most common surgery to correct a hiatial hernia is called a lap nissen, a laprascopic proceedure as the name implies. I think it involves taking a muscle from your chest wall or somwhere and wrapping it around your esophagus to create a substitute sphincter valve. This keeps the stomach contents in the stomach - theoretically. It's a lot less traumatic than the old way of repairing those hernias where they used to go in through the back of your neck. Sounds like you might be to the point where surgery is the one option left.

Steve

slpinsd Contributor
slpinsd
Posted

What are the symptoms of a hiatal hernia and how is it diagnosed? My reflux gets so bad that I feel like someone is sitting on my chest and I have difficulty breathing. I also have some kind of esophageal muscle spasms.

trents Grand Master
trents
Posted
What are the symptoms of a hiatal hernia and how is it diagnosed? My reflux gets so bad that I feel like someone is sitting on my chest and I have difficulty breathing. I also have some kind of esophageal muscle spasms.

You gottem'. Diagnosis is made with an upper GI/endoscopy. This is an extremely common medical problem and there is a higher incidence with Celiacs. I have a small one. Caught it pretty early and Protonix keeps my GERD in check.

Steve

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


minibabe Contributor
minibabe
Posted
  • Author

Thank you so much everyone. I really appericate your respones. I have been fighting reflux for over 6 years now. 4 of which i have been on prevacid. It makes me extremly uncomforable. I am really worried about scaring I dont want to have any scars on my stomach. I mean I am only 20 I love going to the beach and I consider myself to have a fit body. I would certaintly hope that it would improve my life style. How long is the healing process, because I commute back and forth to school carring a 25 pound back pack on my shoulders. I commute from Long Island to the city so it is about 2 hours. I go back to school in september. I would have to get it done at least a month before I go back to school right?

I am just extremely scared. Has anyone on this board gotten to this point where you have needed surgery. Also if you have how long did they keep you in the hospital and how long were you out of work. I also just sit at a desk all day so would I be able to go back to work sooner.

Thank you all so much again.

Amanda NY

powderprincess Rookie
powderprincess
Posted

I was recently dx with a hiatal hernia. They found it during my endoscopy for celiac. I am lucky because it rarely bothers me. Sometimes I would get the "heart attack" feeling they say is a symptom and need to take short breaths, but that goes away pretty quickly.

My Dr. told me one way to treat it is to have many small meals rather than 3 bigger ones. I have done that anyway for a long time which may be why I did not know I had an issue. Maybe small meals would help you.

chrissy Collaborator
chrissy
Posted

i can tell you about my daughter's procedure. it was called a nissen fundoplication. the top of the stomach is wrapped around the bottom of the esophagus and stitched in place, creating and artificial valve to keep stomach contents where they belong. a nissen wrap is a full wrap, a toupe wrap is a partial wrap. motility problems would one reason to do a partial wrap.

my daughter has 5 tiny little scars that are hardly visible. one below the sternum for the camera, and 2 on each side below her ribs. one to hold the stomach, one to hold the liver, and the other 2 for the surgical instruments. she went in to surgery around 9:30 in the morning----it took 3-3 1/2 hours. we only stayed one night in the hospital and went home the next evening at about 6:00. her surgery was on a thursday and i took her to church on sunday. she really did not seem to have much pain after the first couple of days.

she had to be on pureed food for about 2 months. she has never had any complications from her surgery. she cannot throw up, but she is able to burp.

there are probably different ways the surgery is done by different doctors---but at least this can give you an idea of what to expect.

minibabe Contributor
minibabe
Posted
  • Author

she can not throw up? why is that, not that I am looking to do that. Even being 20 I would still have to have the pureed food? If that was the case with me I dont know what I would do when I went back to school. Oh I also go tanning I know that it is not very good for you but I love the way it makes me look. I also only go about 1 to 2 times a week if that. Do scars tan? or would tanning make them more noticable?

Thank you so much for sharing your story.

Amanda NY

trents Grand Master
trents
Posted

Here's a link, Amanda, to the surgerical procedure we are talking about:

Open Original Shared Link

It is usual not to be able to vomit after this surgery, I think. The reason might be that vomiting involves the contraction of the stomach, which after this procedure where part of your stomach acts as a valve to close off the esophagus from reflux, would cause the esophagus to be closed off.

Steve

slpinsd Contributor
slpinsd
Posted

i had an endoscopy and nothing was mentioned about a hernia. can i assume i don't have one?

minibabe Contributor
minibabe
Posted
  • Author
i had an endoscopy and nothing was mentioned about a hernia. can i assume i don't have one?

If it was anything serious or anything that your docotor was concerened with she would have mentioned it to you. Or if you are that unsure......just call and ask. I usually dont have a problem with doctors returing my phone calls.

Good Luck

Amanda

Steve.....thank you for the website. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    3. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    5. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.