Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation


jsdawson

Recommended Posts

jsdawson Newbie

I have never posted here but read often. My son had a positive blood test for gluten back in January. His nurologist did the test because he was complx partial seizures and we wanted to rule other rhings out and the celiac test came back positve. I put in on the diet right away and he was doing great. He always had constipation since birth and we did not know why. After starting the diet he was having dailey bms. Now we are having problems again. he just went 9 days without a bm. Finally I got him to go last night because I told him if he did not go we were going to the er. I give him fiber pills 2 times a day I do not know what else to do. Has anybody else seen this. We see gi doc on Monday.

Thanks,

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Jennifer, is it a behavioral problem that he won't go, or is he really constipated? I know that some children, especially those who have been painfully constipated in the past, develop behavioral movement holding. Another possibilty is that he is having a hard time processing casein (milk). That can lead to constipation. I hope you get things figured out soon. It sounds like you've had a hard enough time already.

BRUMI1968 Collaborator

My problem was always constipation, and I know how miserable it is. After going gluten-free for about 6 days, I got it back (hadn't had it in a while), and that was really frustrating because it seemed as though i should be getting better, not worse.

I ended up seeing a nutritionist and he put me on a diet that consisted of slow cooked brown rice, lots of cabbagy style veggies, nuts and seeds and fruits, and of course, some supplements. After a couple days, my constipation subsided. I don't know if it was all the fiber-food I was eating, or if it was replenishing my intestinal bacteria or what, but I'm glad that it is over, at least for now.

the other thing I found out through trial and error, is that dairy products constipated me quite badly. When I quit those, I got better.

Good luck. I hope you find the answer.

CarlaB Enthusiast

Is he getting enough water to go with the fiber pills?

Also, you mention that he went when you told him he was going to the er if he didn't. That seems it may be behavioral. Maybe he doesn't understand that going more often is normal. Maybe he's like my son and is so busy with fun things he just doesn't want to take the time to go. I'd try talking with him about it. You don't mention how old he is, but even three year olds can tell you a lot more of when they're thinking than we give them credit for.

jenvan Collaborator

Good questions from Guhlia... I also wonder if he have issues with another food such as dairy? It causes constipation for a good number of us here. Or could he have gotten an accidental glutening?

TCA Contributor

We just figured out that dairy is making our daughter constipated. you might try eliminating this.

key Contributor

Accidental gluttening can cause constipation for me. Also if he was able to go when you said he would have to go to the ER, he may just be afraid to go. My boys are 7 and 4(don't have celiac), but they sometimes hold it all day until evening. I tell them to go if I think they need to, because they are just lazy. Your son may be afraid to go if he associates it with pain.

Monica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

My non-celiac son just admitted to holding it because he was too lazy to go back when he was little. So, it might not be a medial problem.

Nic Collaborator

I can so relate to this. My son was diagnosed last year with Celiac and his primary symptom was constipation. When we went gluten free I assumed that he would feel better. My father is also a celiac but suffered with D and once gluten free for a few weeks, he felt much better. This did not happen for my son. After about a month gluten free, he did have daily bowel movements but at least once a month, he gets hit with another bout of constipation. It always baffles us because he is only 5 and his diet it very controlled and really does not change (I am not a very creative cooker so my meals tend to repeat :P , and I know they are gluten free). I do not believe he is being contaminated as we just recently had his blood tested again and it was negative for antibodies. He takes a stool softener everyday (mirolax) and I give him Yummi Bear Fiber everyday. His bowel movements are usually now soft to loose and very heavy and then out of no where, they just stop. And he will go up to a week without going. He will start with the frequent running to the bathroom saying he has to "poop" and then nothing happens. I feel as though his life revolves around pooping. He missed the beginning of his Pre K graduation this week because he was on the toilet (I don't know why the teacher did not wait for him).

We will be seeing his gastro. ped. next week. He said that he is concerned that he is still not completely well but it could just be that his body is not compleley recovered from when he was so sick. As far as behavioral issues are concerned, my doc also said that children tend to hold back the bowel movement when they feel pain. So if it somewhat hard for the child to go, and as it is passing he or she feels pain, they will kind of close of the muscles not letting it pass. I insisted that it looks like he is pushing not holding back and the doc said it is sometimes hard to tell the difference because they start out pushing and then stop from the discomfort.

Another parent on this forum, once replied to me, saying that his daughters gastro. ped. said that when a person is extremely constipated and backed up, the colon gets stretched. Therefore, once the person is better, the colon then needs to heal and get back to normal. I don't know how true this is, I never asked my doctor.

Nicole

burdee Enthusiast

I suffered with lifelong chronic constipation. Even after my Enterolab celiac disease diagnosis and then milk intolerance test results influenced me to abstain from gluten and dairy, I STILL suffered from constipation. I 'went' everyday, but never had normal soft stools ... UNTIL I learned that untreated celiac disease depletes magnesium, which controls smooth muscle (intestines) contractions. Without adequate magnesium all the fluids and fiber in the world didn't help my constipation. While consuming LOTS of fiber, but inadequate magnesium. I twice experienced impacted stools. However with magnesium supplementation (magnesium aspartate NOT oxide which is not easily absorbed), I FINALLY have normal (soft) stools. Here's a good link about magnesium depletion and supplementation:

Open Original Shared Link

For more info on Magnesium, do a google search or search on this site (where I got that link).

BURDEE

jsdawson Newbie

Thank you all for replying my son is 9 and still constipated. THe GI doc gave us miralax again after I told him that we took it for about a month and a half and it did nothing other than cause leakage.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.