Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Explanation For Unexplained


Lister

Recommended Posts

Lister Rising Star

So im trying to figure out whats going on but my doctor looked at me like im crazy, basically it keeps feeling and sounding like im passing gas, but instead of coming from my rectum its coming from inside of me like close to the rectum or my left side, it literaly feels like im passing gas but its inside of me, anyone know about this??

also the farther i get into this diet the more i think maybe the doctor missed somethign to test for and maybe the one thing that makes him think im gluten sensative (subsaren folds in small intestine) may be caused by something else, as everything is back to how it was im no longer a 4 on the poop scale and am back down to a 2 with mucus, all the healing i had come along with has reverted, i know you all say it can take time but when there is no evedince of healing anymore it really makes me feel unsertain that this is doing anything for me besides making me depressed. my stomic hurts and i feel like im going to throw up all day long lately. i have isolated anything that may contain gluten and i know for a fact that im doing nothing wrong i wont even go out to eat as much as my girlfriend wants to and i just keep cooking my own meals so i know thats safe, all my house prodcuts are safe and same with persnol care products

also what causes canker sores, i have a white little bump on the inside of my lip and it really hurts


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



odcdinah Contributor

[i've been gluten-free for 2 months, and have had similar ups and then downs...I've had the same "kind of like gas experience). I've finally given up trying to figure it all out and chalking it up to the healing process - it's really helped my peace of mind. My gas production seems to have increased since going gluten-free. Go figure!

quote name='Lister' date='Jun 8 2006, 09:14 AM' post='150274']

So im trying to figure out whats going on but my doctor looked at me like im crazy, basically it keeps feeling and sounding like im passing gas, but instead of coming from my rectum its coming from inside of me like close to the rectum or my left side, it literaly feels like im passing gas but its inside of me, anyone know about this??

also the farther i get into this diet the more i think maybe the doctor missed somethign to test for and maybe the one thing that makes him think im gluten sensative (subsaren folds in small intestine) may be caused by something else, as everything is back to how it was im no longer a 4 on the poop scale and am back down to a 2 with mucus, all the healing i had come along with has reverted, i know you all say it can take time but when there is no evedince of healing anymore it really makes me feel unsertain that this is doing anything for me besides making me depressed. my stomic hurts and i feel like im going to throw up all day long lately. i have isolated anything that may contain gluten and i know for a fact that im doing nothing wrong i wont even go out to eat as much as my girlfriend wants to and i just keep cooking my own meals so i know thats safe, all my house prodcuts are safe and same with persnol care products

also what causes canker sores, i have a white little bump on the inside of my lip and it really hurts

Guhlia Rising Star

Celiac can cause canker sores. And gosh are they painful. I hope it goes away for you quickly.

As far as the gas-like thing you describe. I used to get that all the time. I still do sometimes. I think it's pretty normal.

Has your doctor checked you for other intolerances? Other intolerances can impede your progress immensly.

Lister Rising Star

nope not sure how to check. hes trying to do anything he can without using money as he already racked me up 3k in bills since i dont have insurance, and i dont seem to have a problem with anything besides dairy but from what i read that may go away with time

canker sore acually already went away, only lasted about 7 hours

ravenwoodglass Mentor
So im trying to figure out whats going on but my doctor looked at me like im crazy, basically it keeps feeling and sounding like im passing gas, but instead of coming from my rectum its coming from inside of me like close to the rectum or my left side, it literaly feels like im passing gas but its inside of me, anyone know about this??

also the farther i get into this diet the more i think maybe the doctor missed somethign to test for and maybe the one thing that makes him think im gluten sensative (subsaren folds in small intestine) may be caused by something else, as everything is back to how it was im no longer a 4 on the poop scale and am back down to a 2 with mucus, all the healing i had come along with has reverted, i know you all say it can take time but when there is no evedince of healing anymore it really makes me feel unsertain that this is doing anything for me besides making me depressed. my stomic hurts and i feel like im going to throw up all day long lately. i have isolated anything that may contain gluten and i know for a fact that im doing nothing wrong i wont even go out to eat as much as my girlfriend wants to and i just keep cooking my own meals so i know thats safe, all my house prodcuts are safe and same with persnol care products

also what causes canker sores, i have a white little bump on the inside of my lip and it really hurts

Lister does your girlfreind wear lipsticks or glosses? Does she wear makeup, or use lotions in places you like to get close to?

Lister Rising Star

yeah but she already went to this site and reaserched her makeup and gloss's, everything she uses is either avon or blistex made, and everything is gluten-free

penguin Community Regular
yeah but she already went to this site and reaserched her makeup and gloss's, everything she uses is either avon or blistex made, and everything is gluten-free

Keep in mind that since she isn't gluten-free, her makeup isn't either, especially lip glosses. For example, she eats a big gluteny slice of pizza, and then puts on her blistex and gluten gets into her lip gloss. Just a thought. I had issues with old chapstick after going gluten-free.

The canker sore you had was probably an allergic reaction to something, since it only lasted 7 hours. I'm allergic to tree nuts and get a rash on the inside of my mouth from it that lasts anywhere from a few hours to a few days.

As far as that gassy feeling, I get that too and I normally attribute it to bowel contractions and noises.

I know it sucks so far, but give it time and it will get better! About a month in I felt great, and then I started being worse off than I was before, but I got better again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



schuyler Apprentice

I often experience the same gas stuff :ph34r:

Lister Rising Star

i was wrong about the caker sore, i just happend to pop the head with my teeth and did not notice i still got it, trying not to fiddle it with my tounge

Guhlia Rising Star

Is Orajel gluten free? If so, that may give you temporary relief. I have a prescription from my doctor for some barrier steroid cream. I get ulcers all the time when I get glutened. It's miserable!!!

Lister Rising Star

does the steroid cream also work for caker sores?

Guhlia Rising Star

I'm not sure how big of a difference there actually is between canker sores and ulcers. I always thought they were kind of the same thing. I'm sure it would, but you'd have to ask your doctor. It works really well. It tastes horrible though, so if he prescribes you something, make sure it doesn't touch your tongue until it dries. Eck... I made that mistake once.

Lister Rising Star

i thought a ulcer was a bleeding inside of you???

talked to my doctro about my stomic grumbles that i get if i dont eat every 40 minutes he says im starving myself and my body is going to starvation mode, i explained that i literaly eat every 40 minutes and he said it does not matter your body is going into starvation mode well wtfam i suppsoed to do lol

Guest nini

I guess you might have to snack constantly! It's called "grazing"... just keep picking at snacky stuff all day, if you want to have a meal meal, eat til you are feeling full

Guest Robbin

Lister, I get canker sores, sore throat and mouth rashes from dairy products. My son gets mouth sores from anything he is allergic to. Maybe you should keep a food journal and write down everything you eat including all the ingredients in the food, then record your symptoms. Try not to eat new things until you get to the bottom of it. It could be one of the common allergy- causing foods (nuts, soy, corn, dairy, eggs). I know this sounds like a broken record, but it could also be the healing process or hidden gluten. I was sicker feeling sometimes than before I cut out gluten for the first couple of months. The gluten seems to slowly "work its way out" like some weird alien!!! :blink: Take care and keep us posted.

Lister Rising Star

i think the canker sore was just random, i used to get them alot as a kid have not had one for a very long time, its in the worst spot right infront of my front teeth, so i keep rubbing it with my teeth ripping it open so its gonna take a bit for it to heal, i dont think it had anything to do with a reaction to anything i think it either is part of the healing or just random, this healing is really started to f me up, my hands look like a 80 year old from all the extra wrinkles and cracking thats happening

Lister Rising Star

im acually doing farly better atleast parshaly, can the stomic a grumbls and pain be assoseated with healing because for the past 3 days now the pain and grouble is getting worse and lasts longer i had a groumble today last over a minute of none stop groumboling, also im getten bad bad cramps on my left side, but i know im not glutened because i can still see strait and think proporly

Lister Rising Star

talked to my doctor today, about my stomic grumbles and exactly what they feel like and sound like, he says im starving myself, i told him about the fact that i eat every 40 minutes to keep it calml he says it does not matter i just need to snack like every 30 on something like vegetables and still eat whole meals, for some reason during my healing process my body is going into a starvation mode aparently im not abosorbing as much food as i thought i was :(

i personaly think that the reason it goes away if i eat really often is because, its just what my bowls do if there not busy digesting, so the second im not digesting food my stomic starts to hurt and attacks me, that cant be good i wonder if im doing damage when i sleep??

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.