Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Else Can Cause Lactose Intolerance Besides Celiac?


Sarah8793

Recommended Posts

Sarah8793 Enthusiast

On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

Lactose intolerance is quite common among many populations, and actually, the ability to digest lactose is a - evolutionarily speaking - recent change in some human populations. Humans don't generally (in the grand scheme of things) consume milk after weaning - milk is designed as a food for babies. Even in populations that can handle lactose, the ability to handle it (the quanitity of lactase, the enzyme that digests lactose) declines with age.

MySuicidalTurtle Enthusiast

I always thught it gets worse as you get older. When I was younger I could have milk- now I can't even cook with it.

Nancym Enthusiast
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

That probably isn't lactose intolerance then, probably casein intolerance.

Sarah8793 Enthusiast
That probably isn't lactose intolerance then, probably casein intolerance.

Forgive me if this is a silly question. What is the difference between lactose and casein? And can you have a casein intolerance and not a lactose intolerance or vice versa? confused :unsure:

tarnalberry Community Regular
Forgive me if this is a silly question. What is the difference between lactose and casein? And can you have a casein intolerance and not a lactose intolerance or vice versa? confused :unsure:

Lactose is a milk sugar, casein is a milk protein. You can have one, but not the other, or both.

Lactose intolerance occurs when you don't produce enough lactase, the enzyme which breaks down the milk sugar, and the lactose passes into the lower intestine where bacteria in the gut break it down instead, releasing gas as a byproduct. It won't harm you, but it can produce very uncomfortable symptoms. The production of lactase is genetically regulated, and declines overtime, and varies by ethnic group.

Casein intolerance occurs when your body reacts, via an IgG mediated immune response, to the casein milk protein. It is not a milk allergy, which is an IgE mediated immune response that releases histamine. Casein intolerance is less well understood than a casein allergy, which is in-turn less well understood than lactose intolerance.

If you are lactose intolerant, you can tact Lactaid, or another over-the-counter lactase supplement, which will supply you with the enzyme to break down the milk sugar. This will do nothing at all for a casein intolerance or allergy.

Sarah8793 Enthusiast

Are the symptoms of casein and lactose intolerance the same? For years I could take a lactose enzyme but now since I became more sensitive, they don't work. AND interestingly, when I became more sensitive, the symptoms changed. Now when I have had milk or milk product, the pain is in a different place and affects my upper digestive tract. I'm wondering if I started out lactose intolerant and then have now become casein intolerant additionally. Thanks for the info.! I can't believe I never distinquished between the two.

Sarah

Lactose is a milk sugar, casein is a milk protein. You can have one, but not the other, or both.

Lactose intolerance occurs when you don't produce enough lactase, the enzyme which breaks down the milk sugar, and the lactose passes into the lower intestine where bacteria in the gut break it down instead, releasing gas as a byproduct. It won't harm you, but it can produce very uncomfortable symptoms. The production of lactase is genetically regulated, and declines overtime, and varies by ethnic group.

Casein intolerance occurs when your body reacts, via an IgG mediated immune response, to the casein milk protein. It is not a milk allergy, which is an IgE mediated immune response that releases histamine. Casein intolerance is less well understood than a casein allergy, which is in-turn less well understood than lactose intolerance.

If you are lactose intolerant, you can tact Lactaid, or another over-the-counter lactase supplement, which will supply you with the enzyme to break down the milk sugar. This will do nothing at all for a casein intolerance or allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

My MIL is from Germany, with family and friends still there. She says that over there they don't drink milk. They put cream in their coffee, and cook with it, and use other dairy products of course, but they would never just drink a glass of milk. Kids don't drink milk after their weaned. They drink weak tea.

Nancy

eKatherine Apprentice

I've been lactose intolerant my whole adult life. When I first noticed it the symptom was abdominal bloating and gas. After being essentially gluten-free for a few years, I decided to try a 'challenge'. I drank a tall hot, flavored milk. Within half an hour I had diarrhea, then again about 6 hours later - classic lactose intolerance. At the six hour point, my feet and ankles were swollen so I couldn't see any shape at all - a sensitivity reaction which took about a week to go away.

ravenwoodglass Mentor
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

With your pattern of excaberating symptoms after the birth of each child I feel your problem may be the gluten. I would totally eliminate the gluten and dairy both for a while and then do a challenge with them. I was told I was lactoese intolerant for years but after 6 months gluten-free could even drink a cold glass of milk with no ill effects.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748

    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.