Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Growth Hormone Shots

oneqtrceliac

Recommended Posts

oneqtrceliac Newbie
oneqtrceliac
Posted

My son was diagnosed with celiac when he was 3 1/2. We've adhered strictly to the diet. However, after leaving the coveted 10% on the growth chart (at age 2) and plunging into the unknown abyss below, he has never recovered to make it back on the chart. Now at 9, his GI recommended he get tested for growth hormone deficiency. After numerous heartwrenching tests, the endo confirmed that he is growth hormone deficient. She mentioned that about half of celiac kids are found to be growth hormone deficient. So, I'm just wondering if everyone else has had their child tested and if they receive shots. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
My son was diagnosed with celiac when he was 3 1/2. We've adhered strictly to the diet. However, after leaving the coveted 10% on the growth chart (at age 2) and plunging into the unknown abyss below, he has never recovered to make it back on the chart. Now at 9, his GI recommended he get tested for growth hormone deficiency. After numerous heartwrenching tests, the endo confirmed that he is growth hormone deficient. She mentioned that about half of celiac kids are found to be growth hormone deficient. So, I'm just wondering if everyone else has had their child tested and if they receive shots. Thanks!

All I can tell you is how very, very much I wish we had pushed even the issue of testing with our pediatrician. If there was anything I could do to help my son achieve even that coveted 10th percentile spot I would. Your doctor has tested and found the deficency. These shots are very effective and could make a real difference in his selfimage and employability in young adulthood.

debmidge Rising Star
debmidge
Posted

would the GH shot work in a weight debilitated celiac (gee, take my husband for example) adult as well?

ravenwoodglass Mentor
ravenwoodglass
Posted
would the GH shot work in a weight debilitated celiac (gee, take my husband for example) adult as well?

You could ask your doctor or an endocrinologist. From my understanding from a growth standpoint it is too late for my DS to benefit from this because his growth plates have fused. I don't know if it is ever given to help someone gain weight or if it would even work for that. My DS and I used gluten-free protein powders and lots of chocolate Instant Breakfast powder, not the readymade. I even put the instant breakfast in my coffee when I was still dairy intolerant.

Guest tracey and emma
Guest tracey and emma
Posted

my friends son has growth hormone. don´t know much about it but this was considered for emma.

silly question we are in the depths below all centile line and will need tabs at the bottom of the page soon!

but at the moment she follow a line under the last centile on the chart.

they told me she will always be small, and probably now never get back on a centile line.

as long as she follow it below thats ok and she is fine in herself then they won´t worry just wondered if per-haps it might be the same for your son?

tracey

oneqtrceliac Newbie
oneqtrceliac
Posted
  • Author

My son always was below the %age line but followed his own curve. The pediatrician always said that was okay since he was parallel to the curve although definetely below. He's nine and 49" now. I haven't started the shots yet - paperwork and insurance but hope to start in the next few weeks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748
    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.