Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Your Celiac Moments?

MangaMonster

Recommended Posts

MangaMonster Newbie
MangaMonster
Posted

Hello, I'm Philip and I'm knew on this site. :) I read some of the threads and some are really funny! :lol: I just went to a party yesterday and we did an obsticle course. It was AWESOME! Of course, I could not do it because the course involved rolling through glutenated pudding and Flour! <_< Even though I couldn't do it I had lots of fun watching! :P It was awesome untill every one was off the track. The instructors threw flour at everyone; and as if that wasn't enough my freind Daniel gave me a mouth full of Flour! :ph34r: I got glutened.

What are some of your celiac moments? :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Agent Z Newbie
Agent Z
Posted

I'm new to this site too. I just found out in fact that I am a Celiac last week.

I keep hearing about how a Celiac can't even TOUCH wheat? Is that really really true or is it for some or what?

But as for a moment like that? I don't think I have one.

But I'll tell you something else.

There's a Mexican place called Qdoba that I worked at (I even touched the wheat tortillas and served up the food to customers and never really got sick), but when I ATE there sometimes, oh it was wicked. I thought it was because I made my food so spicy.

Once I was with my girlfriend and I had to stay in the bathroom for half an hour with her sitting alone because of something I ate there.

And the day I found out I had it, and went to Qdoba to get something glutten free (since I called earlier and the manager CLAIMED ALL TORTILLAS there were CORN), and I get there and read the menu which specifically says they are WHEAT! Even the CHIPS AND TACO SALAD SHELLS! I was so pissed off that the guy wouldn't take the time to either carefully find out or wanted to lie to me to get my money. :angry: I ended up ordering something and my mom asked after it was done if it was made of flour. It was. So I couldn't eat my nachos (but I did eat them with some corn chips I got later. Just avoided the flour chips). And their corn tacos (or so they claim) are fine.

Ashley Enthusiast
Ashley
Posted

Fluffy!!! XD, sorry

Agent Z- A lot of people won't touch things with gluten in them because it gives them skin reactions, breakouts, ect. Others don't have skin reactions or aren't bothered enough to stop touching gluten.; Yep, you learn ya have to dig deeper than what folks tell you. Double checking labels, lots 'o hours of trying to get information from clueless resturants.

My celiac moment was around after going three weeks of being gluten-free. I woke up one morning, when into the kitchen and saw a doughnut. Blissfully I picked it up and popped into my mouth, completely forgetting I wasn't suppose to have gluten :lol: mom got so mad at me for that. I also had an very close encountered with the flour bags at leadership camp that my JROTC goes to. :ph34r: everyone knew not to throw them at me or I'd punch them.

Anyway, welcome both of you to the boards and if you guys need anything give me a PM or an email! :)

-Ash

Guest nini
Guest nini
Posted

Oh Philip! yikes!

my daughter's school had a field day and they do all kinds of obstacle courses and relays and of course one of them involved rolling a rubber fish in flour and relay racing with it. Fortunately they told me about it ahead of time and I was able to provide enough rice flour for the entire school... (they even paid me back for it...) that way I didn't have to worry about the flour being EVERYWHERE and my daughter was able to have fun with the rest of the kids... (I know I'm not a teenager but your story reminded me of that...) maybe if your friends plan to do something like that again you can get rice flour and that way you could participate.

chrissy Collaborator
chrissy
Posted

i was making tuna fish sandwiches today for the kids----when i called them to get their lunch, molly had to inform me that her sandwich had wheat in it-------i had totally spaced it and made her a sandwich on wheat bread.

aball2006 Newbie
aball2006
Posted

you know how everyone gets different reactions if they ingest gluten? yeah well mine is that exactly two hours after accidentally eating it I begin violently vomiting. well one morning i accidentally grabbed the wrong pack of bluberry waffles and ate them without realizing it. well that morning my choir was going to be singing on the local news channel. as we were driving down there, i puked once, everyone thought it was just nerves. then i puked in the lobby and right before we went on. and the last time it got all over my dress so i couldnt go on. my mom had to come pick me up, and the whole school knew about it by the end of the day. At least everyone at the news channel was really nice about it, and felt bad. that was my most emabrrassing moment due to celiac.

justjane Rookie
justjane
Posted

i used to work at TacoTime and felt horrible every night after I got off of work! Little did I know that even the corn chips had flour on them! I feel ya bud, that is too bad.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.