Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Baby Born With Active Celiac?

Satori

Recommended Posts

Satori Newbie
Satori
Posted

I am totally kicking myself right now :( My 5 yr old was born with that nasty stinky OMG I'm gonna puke diarrhea and around 4 months of age was dx'd as failure to thrive and we quickly traced the problem to gluten. Around a year of age we found out Celiac was in the family and not only did she have it but so did I. I just had my 2nd child 2 weeks ago and she's got the same nasty diapers along with signs of malabsorption (looks like someone mixed her poop with 50% oil). I'm sitting here thinking, "but she hasn't been exposed to gluten so how can the disease be active in her? She must have food allergies to what I'm eating" I was just looking at clan thompsons list of what's no longer gluten-free and I'm really kicking myself! I've been gluten-free for 5 years and felt I knew what was safe. I found at least 3 products I eat are not gluten-free :( That would explain the occasional GI problems I have and how my newborn could have gotten exposed to gluten:( I feel bad for exposing her so early, I was hoping she would escape celiac:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
I am totally kicking myself right now :( My 5 yr old was born with that nasty stinky OMG I'm gonna puke diarrhea and around 4 months of age was dx'd as failure to thrive and we quickly traced the problem to gluten. Around a year of age we found out Celiac was in the family and not only did she have it but so did I. I just had my 2nd child 2 weeks ago and she's got the same nasty diapers along with signs of malabsorption (looks like someone mixed her poop with 50% oil). I'm sitting here thinking, "but she hasn't been exposed to gluten so how can the disease be active in her? She must have food allergies to what I'm eating" I was just looking at clan thompsons list of what's no longer gluten-free and I'm really kicking myself! I've been gluten-free for 5 years and felt I knew what was safe. I found at least 3 products I eat are not gluten-free :( That would explain the occasional GI problems I have and how my newborn could have gotten exposed to gluten:( I feel bad for exposing her so early, I was hoping she would escape celiac:(

First congratulations on the new addition to your family. Please don't feel guilty about the gluten exposure. It wasn't like you stopped at Dunkin Donuts. You caught everything quickly and all will be fine. You are so lucky the cause of your childs failure to thrive was found at a young age. And with the new baby showing signs you have once again done a great job of catching it early. In the long run, IMHO it is not a bad thing that both kids need to be gluten-free. I think it is harder when there is both gluten and non gluten foods around.

TCA Contributor
TCA
Posted

Satori,

You and I are in close to the same shoes, except I wasn't smart enough to figure it out with the first child (finally diagnosed a 3). Finally figured it out with my daughter and she is doing much better nursing gluten free. I also discovered I have issues with gluten after going on the diet for her. Never would have guessed it otherwise.

Please don't beat yourself up. I make mistakes all the time and I kick myself constantly. I know how guilty you feel, but on the positive side, at least you KNOW she can't handle gluten. Otherwise, you might have always wondered. I'm so glad you figured it out, though.

Welcome to the board and I hope everyone feels better soon. Feel free to PM me if you need to VENT!!!!!

KayJay Enthusiast
KayJay
Posted

Aww don't feel bad it isn't your fault. Out of curiosity what were you eating that had gluten in it? It took me 5 months to figure out that my ds was allergic to milk and soy.

Welcome to the board. :)

Satori Newbie
Satori
Posted
  • Author
Aww don't feel bad it isn't your fault. Out of curiosity what were you eating that had gluten in it? It took me 5 months to figure out that my ds was allergic to milk and soy.

Welcome to the board. :)

Mrs Butterwoths syrup, chocolate fudge frosting, McDonalds hash browns:( I thought it was just my body acting crazy after giving birth, guess it was the gluten..

KayJay Enthusiast
KayJay
Posted
Mrs Butterwoths syrup, chocolate fudge frosting, McDonalds hash browns:( I thought it was just my body acting crazy after giving birth, guess it was the gluten..

Thanks I am going to go and check what kind of surup we have. :blink: I hope you can all get better quickly now that you know :)

mmaccartney Explorer
mmaccartney
Posted

Don't feel bad! You did everything you could. There are so many things out of our control with this disease, particularly what will or won't activate celiac in our offspring.

I understand though. My children don't have active celiac, but did inherit the genes for it. Now it is just a matter of time...

But, if you still want good chocolate frosting, check this topic!

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest tracey and emma
Guest tracey and emma
Posted

All i can do is just repeat what the others have said. my daughter is almost 3 and we only came down with gluten as a possiblity 5mths ago. She has been failer to thrive all her life.

Well done to you all, i wish we had been so quick. so really don´t feel bad and making mistakes is so easy :)

take care

tracey

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.