Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Physical And Emotional Symptoms


ERA's mom

Recommended Posts

ERA's mom Rookie

It has been quite a year since my oldest daughter (20) was diagnosed with Celiac a year ago. She went off her gluten-free diet for a couple of weeks (she felt she had been divinely healed....long story....) about a month ago. She very soon came down with a bad yeast infection; sleeplessness; racing heart; dizziness; over-confidence; over-spending; etc. etc. including almost (angry) manic emotions of which we have never seen. This has been going on for 3 weeks or more. HOW LONG DOES IT TAKE TO RECOVER FROM GLUTEN?...the dr. ran tests and convinced her to go back on her gluten free diet (whew). (a friend says it takes her 1 week to recover; her son, 2 weeks. Now, her counselor, a psychiatric nurse practitioner, feels that she is bipolar, and prescribed .25 mg Risperdal. (This daughter had a high-tech brain scan 2 years ago, to diagnose learning challenges...OCD; GAD; and developmental delays... and bipolar did not show up then...the nurse-practionier said that bipolar can develop / show up later on). Has anyone dealt with bipolar type symptoms, etc.??My husband is wary of another presription for our daughter; she is taking Effexor right now; and is doubting the diagnosis. The survey that the practitioner had me fill out lined up with bipolar. Also, the yeast infection is being stubborn, despite 2 courses of treatment. Thanks so much for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiacgirls Apprentice

I don't know how long it takes to recover from gluten. But I wanted to answer other parts of your post. First of all, bipolar doesn't show up on a brain scan or mri or anything like that. It is usually diagnosed by symptoms and then trial and error of medicines. My depression went away totally after getting off gluten, so I would be hopeful that after she is back on the diet, her "bipolar" could go away. Apparently, gluten can cause mood swings.

Also, SSRI's for depression can cause mania and be mistaken for bipolar. I am not sure if Effexor could also do that.

Most importantly, when I went off gluten, within 2 days, I felt "giddy". I knew about the manic effects of the SSRI's, so I stopped taking my Lexapro. The psychiatrist agreed that it sounded like I no longer needed it. Maybe that is what is happening with your daughter. How long has she been on the Effexor?

celiacgirls Apprentice
I don't know how long it takes to recover from gluten. But I wanted to answer other parts of your post. First of all, bipolar doesn't show up on a brain scan or mri or anything like that. It is usually diagnosed by symptoms and then trial and error of medicines. My depression went away totally after getting off gluten, so I would be hopeful that after she is back on the diet, her "bipolar" could go away. Apparently, gluten can cause mood swings.

Also, SSRI's for depression can cause mania and be mistaken for bipolar. I am not sure if Effexor could also do that.

Most importantly, when I went off gluten, within 2 days, I felt "giddy". I knew about the manic effects of the SSRI's, so I stopped taking my Lexapro. The psychiatrist agreed that it sounded like I no longer needed it. Maybe that is what is happening with your daughter. How long has she been on the Effexor?

I wanted to add I am not a doctor and what I posted is just my understanding after reading a lot on the intenet about children and behaviour problems.

ERA's mom Rookie
I wanted to add I am not a doctor and what I posted is just my understanding after reading a lot on the intenet about children and behaviour problems.

She has been on Effexor for approx. 2 years.

DingoGirl Enthusiast
sleeplessness; racing heart; dizziness; over-confidence; over-spending; etc. etc. including almost (angry) manic emotions of which we have never seen. This has been going on for 3 weeks or more. HOW LONG DOES IT TAKE TO RECOVER FROM GLUTEN

This describes my life to a T for many years. I am diagnosed bipolar type II (more depression than mania, unfortunately) and, sadly, am on disability for it. Also have undiagnosed learning disabilities and have had great trouble maintaining employment. I had 10 years of extreme insomnia and could hardly function, and then at other times, would sleep for weeks, hardly able to rise from the couch and just trying to resist taking my own life, which was all I wanted to do. Only my faith in God and hope for a better future kept me alive.

I have been gluten-free for almost five months and am finally stabilizing, not totally, but have seen amazing improvement. I am still on Effexor, and seroquel, for sleep and mood stabilization. I hope to be off all meds one day, if possible. I am now seeing some mood swings again, BUT - have a very prolonged broken heart with a man that I almost married who continues to fall in and out of love wtih me and jerks me back and forth.....so there is a situation causing much of my distress and I am going to remove him from my life completely. Very sad and difficult situation.

My first manic episode was at age 21 with the first SSRI antidepressant I took - didn't sleep for four days and lost 12 pounds that week....talked a million miles and hour and was higher than a kite. It's embarassing to think back on, really. Bipolar often shows up in the teens or twenties.

Keep your daughter OFF gluten, and on a mood stabilizer for a while. I am not familiar with that drug she is taking, there are all kinds of new, exotic things doctors try to prescribe and some of them - Lamictyl, Abilify, And Tegretol (an older drug) made me absolutely bonkers and crawling out of my skin - did much more harm than good. Seroquel, just 100 mg. a day, works quite well for me and lithium worked well for me also in years past.

but, all that said, the MOST significant improvement I have ever seen in my very frustrating life has been the removal of gluten. I am in a bit of a low ebb just now, but overall, have never felt better and consider it a blessing from God to finally be diagnosed. I was inordinately malnourished and exhausted when the endoscopy revealed that I had not ONE villi left and my TGA level was greater than 100 - and they stop measuring at 100. It is now down to 17 - great progress.

Blessings to you and all hope for a bright future for your daughter - she's young and will make great strides.

kbtoyssni Contributor

I think it could take a month or two to get three weeks' worth of gluten out of her system.

I also suffered from depression. Since going gluten-free I am happier than I've been in years. So if the symptoms of bi-polar have showed up recently - since she started eating gluten again - that could have a lot to do with it. It's possible the drugs might help right now, but I'd wait a month or two and then see how she feels. I was able to go off all the drugs I was taking a few months after being gluten-free. Hope this helps and good luck!

Guest Robbin

My heart goes out to anyone who has bipolar. My dh has bipolar and it started in his late teens. I read Susan's post with tears because I know a little of what she has gone through. You should definitely convince her to stay gluten-free. It sounds kind of like a manic episode is what got her started thinking she would go back to gluten and the whole vicious cycle began. Its like --what came first the chicken or the egg? It has been my understanding that the basic drug for bipolar is lithium. If she is eating gluten, she would not absorb her meds properly either and there you are, back to the beginning. This may take a couple of weeks with everything that is going on. If it is a severe bipolar episode, she should probably be in a hospital or watched closely. The lows sometimes come on fast after the highs. The medicine takes a few weeks sometimes to level things out also. If she lives at home (don't remember as I write this if you said) that will make it so much easier to keep her gluten-free. People in the middle of a bipolar manic episode are unreasonable and do not realize what harm they are doing to themselves and others. You are all in my prayers. Bipolar is as brutal as celiac and both together must be very hard.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

From my perspective the most important thing is to get some base line of how she is doing and if she is medicated how will you do that? Gluten is a powerful poison for Celiacs and it affects us all in different ways and some of how we are affected is emotional. I know at that age I was crazy and I am very grateful that I was able to find a way through it without medication.

Recently I was speaking with a friend who is bipolar about her life and her diet history and she said that when she had been on a diet that didn't include wheat or processed food she had been healthy and felt great. However, she is not so motivated now to change her diet, she has been on medication for many years and it appears to have become a safe place for her. I would hope that wouldn't happen to your daughter.

  • 2 weeks later...
Mongoose Rookie
symptoms, etc.??My husband is wary of another presription for our daughter; she is taking Effexor right now; and is doubting the diagnosis. The survey that the practitioner had me fill out lined up with bipolar. Also, the yeast infection is being stubborn, despite 2 courses of treatment. Thanks so much for any help!

Since going gluten-free and then CF, and discovering how negatively food can affect our health, I've become a believer in using food to gain health too.

For the stubborn yeast infection -- yeast loves sugary, starchy foods, so have your daughter cut out any sweets and go easy on any bread too, until the infection eases up. For me this usually takes about 5 days.

For the bipolar -- do a Google search on "bipolar Omega 3" -- you'll find some interesting material. Maybe try adding Omega 3 supplements to her diet or find a way to reduce Omega 6.

Best of luck in this difficult situation!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    3. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    5. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748

    Nannynet
    Newest Member
    Nannynet
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.