Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bed Wetting


skipper30

Recommended Posts

skipper30 Enthusiast

Did any of your children have problems with bedwetting...long after being potty trained?? :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

I don't have kids, but I wet the bed until I was nine, and they could never figure out why, said it was "physchological". Fffffft.

Elonwy

manja Apprentice
Did any of your children have problems with bedwetting...long after being potty trained?? :blink:

Yes, my daughter Anna got diagnosed with gluten sensitivity on Monday.

I am sensitive to gluten too.

She is 2 and a half years old and was fully potty trained at 25 months.

Anna is wetting her bed for about 10 days now. She does not have a UTI.

We got it checked twice within the last 10 days.

They also did a negative test for diabetes.

My doctor thinks it is behavioral. I disagree.

She is off gluten since Monday, on Tuesday and Wednesday she did not pee in her bed during nap time. She also has not had an accident at the playground. She still wetts at night though.

skipper30 Enthusiast

Here is my thinking on this...He is 6...has been potty trained since he was 4. Hardly any accidents after that time. Now all of the sudden he had started wetting the bed at night-easily 5 out of the last 7. He isnot our dx'd kid but we have been thinking of things that have happened in past and wondered if it might be in fact celiac. As a toddler, he would get so constipated that he would also throw-up when he had a bm. Then about 2 years ago he started up with these tics. They come and go. They have returned with a vengance and he complains off and on of his tummy hurting, he has lots of anxiety also....We talked at length with him tonight and he agreed to go gluten-free like younger brother for a while and see if things don't get better.

Then boy #3 has broken out with what I THINK is a very similar "rash"(lost's of little bumps) all over the right side of his tummy -that look a lot like what out dx'ed son get when he has been glutened.

I guess what I am wanting to know is do I sound like a fruit loop and wigging out over nothing?? I don't want to assume that they all have celiac everytime something new or odd comes up. :unsure:

2kids4me Contributor

yes! my son was 10 when he was diagnosed with celiac, he had been a chronic bedwetter and the family doc said "oh he'll grow out of it, its common in boys".

Well lo and behold, within 2 months of the diagnosis and eating gluten-free, he was dry every night!! We were all thrilled as there is nothing worse than waking up cold and wet - esp when you are 10.

I then had the opportunity to discuss it with a camp co-ordinator (for a celiac camp) - she said - that it is because of the damaged gut, and the loose molecules (amine and sulfer) that get into the blood stream relaxes the bladder.

Bedwetting has been linked to food allergies too.

The site I will include is one about autism and the high number of autistic children with gluten/casein intolerance (or celiac) and how low enzyme levels can cause behavioral problems. It is of interest because with my son - gluten-free diet stopped the bedwetting and the gluten-free diet dramatically improved my daughter's school performance and social behavior. The information from articles on celiac and autism helped me understand why this occurred.

Open Original Shared Link

skipper30 Enthusiast

Thanks..I will check that site out!!

I REALLY think that there is a connection here!

schuyler Apprentice

That's really interesting; I never thought about there being a connection between celiac and bedwetting. I am going to pass this info along to my cousin because her 2 oldest sons (ages 4 and 3) have been potty trained during the day since they were 18 months old, but they have to wear diapers to bed because they have so many accidents. This is something else to add to the boys' long list of symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prinsessa Contributor

I dont' know about bed wetting, but when I eat something with gluten I have to pee almost every hour. I don't know why. It might be my body trying to rid itself of toxins. I could see kids having the same problem. I had to get up sometimes in the middle of the night to use the bathroom.

  • 1 year later...
RIMom Newbie

we are going to do the enterolab genetic test on our negative blood test daughter for that exact reason. We just want to know. We are going to do it privately (I know it's expensive), so it won't go on her insurance record, or medical record. They give discounts for family members. That way we will know if her weird things are just weird things, or if it's actually possibly the celiac raising its head finally.

Good luck

RIMom Newbie

sometimes it's just bedwetting though. My 5 yr old daughter has been gluten free/symptom free for 9 months now and still wets the bed. We wake her between 10 and 11 when we go to bed and have her pee, it doesn't matter, she still wakes up wet. she is a deep sleeper. We are working on it, but she just may not be ready.

Merika Contributor

Ds will have pee accidents within hours of ingesting soy, which he is also allergic to. it's the first symptom of many including behavior after ingesting the stuff. he's been potty trained for 4 years now and it can still happen.

merika

RIMom Newbie

interesting, she eats very little soy and never has accidents during the day. She is wet every night and always has been. (2 dry nights in her life, not in same week).

gfpaperdoll Rookie

I think bed wetting is associated with dairy - take out the dairy & I think it will go away.

there has been papers published on this - or so it seems I remember from an old brain talk post, or it might have been just some moms that figured it out...

goldyjlox Contributor

My daughter is 3 1/2 and potty trained for about a year but she still wears a pull up to bed and the last couple of months she has been peeing in her pants ,all the time. She and her 12 month old brother have had bloodtests a week and a half ago so we are waitng for the resuls. She is the one that I a more concerned about.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,874
    • Most Online (within 30 mins)
      7,748

    CSam
    Newest Member
    CSam
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ehb
      @knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily 
    • Alibu
      I just had my endoscopy the other day and the doctor took 12 samples because he said if we're going to find something we're going to find it today LOL. But when he got down there, he said everything looked good. So I have it in my head again that it's going to be negative because everyone I've heard of who had a positive biopsy had their endoscopies where the doctor was like yep, I can see the damage. My tissues all look great apparently. So if they come back negative, I'm not sure where to go from here. Could it still be a non-celiac gluten sensitivity even with my blood work? I thought NCGS didn't show up on blood tests. Is it possible that the biopsy still comes back positive even if everything looked healthy on endoscope? I had it done at a big hospital in the state, so I would think they'd have the kind of equipment where they'd be able to see it well. I even have pictures in my report and they don't seem to have the damage that others have seen.
    • trents
      That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we frequently have posters on this forum who were silent celiacs for years and were diagnosed incidentally with celiac disease when their docs were checking for other things. They developed other medical problems such as anemia or vitamin and mineral deficiencies, neurological deficits, Hashimodo's thyroid, osteoporois, etc. - non GI symptoms - but their docs recognized those problems as often connected to celiac disease and had them checked for celiac disease, both blood antibody testing and biopsy, and found damage. A couple of years ago the Mayo Clinic did a large study involving over 300 people. They started with those officially diagnosed with celiac disease and also tested their first degree relatives. They found that almost 50% of  the first degree relatives tested positive for celiac disease and many or most were totally caught by surprise because they were largely asymptomatic. Their diagnosis was confirmed by biopsy. I really don't have anything more to say. You have some decisions to make.
    • knitty kitty
      Blood tests are affected by what you've had to eat in the previous day or two and any vitamin supplements you've taken in the past month or two.   If you have been taking vitamins before the time of the blood test, the vitamins supplements could mask a deficiency.  So get the tests before supplementing, or allow eight to twelve weeks for the supplements to wear off.    The thing with blood tests is that they measure what is in the blood, not what is stored inside organs and tissues where vitamins are actually utilized, and may miss subclinical deficiencies.  In times of shortages, the brain can order cells to release their stored vitamins into the blood stream in order to keep important organs like the brain and heart functioning.   Overall, getting blood tests for deficiencies is a good idea if it's available to you.  If you're deficient in any of the B vitamins, take a B Complex with all the B's in it.  The eight B vitamins work with one another like an orchestra.  Supplementing just one can throw the others off.  
    • Shining My Light
      Thank you @trents! This is all sound advice. In 2022 I did have a biopsy done with the EGD: SPECIMEN: (A) DUODENUM, BIOPSY (B) GASTRIC BIOPSY(C) GASTRIC POLYP, BIOPSY(D) ESOPHAGUS BIOPSY (E) ESOPHAGUS BIOPSY This would have been when the candida was found.  If I understand right it’s the duodenum they take a biopsy of. Nothing was mentioned about Villous atrophy however they were not looking for that particularly.    Something that stumps me is the correlation between symptoms and damage. One seems to equal the other. I have yet to see damage with “silent celiac”. Not saying it doesn’t exist.  Also super curious on other symptoms that would improve based on a gluten free diet. Obviously silent celiac wouldn’t have an improvement in GI symptoms but that is all I have read any data for. No one saying things like my anxiety went away or my headaches and joint pain are gone.    I see why it would be a “gluten challenge” since eating 4-6 slices of bread daily is a challenge to do. 😳 I would replace that with cake 🍰😉 
×
×
  • Create New...