Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bed Wetting


skipper30

Recommended Posts

skipper30 Enthusiast

Did any of your children have problems with bedwetting...long after being potty trained?? :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

I don't have kids, but I wet the bed until I was nine, and they could never figure out why, said it was "physchological". Fffffft.

Elonwy

manja Apprentice
Did any of your children have problems with bedwetting...long after being potty trained?? :blink:

Yes, my daughter Anna got diagnosed with gluten sensitivity on Monday.

I am sensitive to gluten too.

She is 2 and a half years old and was fully potty trained at 25 months.

Anna is wetting her bed for about 10 days now. She does not have a UTI.

We got it checked twice within the last 10 days.

They also did a negative test for diabetes.

My doctor thinks it is behavioral. I disagree.

She is off gluten since Monday, on Tuesday and Wednesday she did not pee in her bed during nap time. She also has not had an accident at the playground. She still wetts at night though.

skipper30 Enthusiast

Here is my thinking on this...He is 6...has been potty trained since he was 4. Hardly any accidents after that time. Now all of the sudden he had started wetting the bed at night-easily 5 out of the last 7. He isnot our dx'd kid but we have been thinking of things that have happened in past and wondered if it might be in fact celiac. As a toddler, he would get so constipated that he would also throw-up when he had a bm. Then about 2 years ago he started up with these tics. They come and go. They have returned with a vengance and he complains off and on of his tummy hurting, he has lots of anxiety also....We talked at length with him tonight and he agreed to go gluten-free like younger brother for a while and see if things don't get better.

Then boy #3 has broken out with what I THINK is a very similar "rash"(lost's of little bumps) all over the right side of his tummy -that look a lot like what out dx'ed son get when he has been glutened.

I guess what I am wanting to know is do I sound like a fruit loop and wigging out over nothing?? I don't want to assume that they all have celiac everytime something new or odd comes up. :unsure:

2kids4me Contributor

yes! my son was 10 when he was diagnosed with celiac, he had been a chronic bedwetter and the family doc said "oh he'll grow out of it, its common in boys".

Well lo and behold, within 2 months of the diagnosis and eating gluten-free, he was dry every night!! We were all thrilled as there is nothing worse than waking up cold and wet - esp when you are 10.

I then had the opportunity to discuss it with a camp co-ordinator (for a celiac camp) - she said - that it is because of the damaged gut, and the loose molecules (amine and sulfer) that get into the blood stream relaxes the bladder.

Bedwetting has been linked to food allergies too.

The site I will include is one about autism and the high number of autistic children with gluten/casein intolerance (or celiac) and how low enzyme levels can cause behavioral problems. It is of interest because with my son - gluten-free diet stopped the bedwetting and the gluten-free diet dramatically improved my daughter's school performance and social behavior. The information from articles on celiac and autism helped me understand why this occurred.

Open Original Shared Link

skipper30 Enthusiast

Thanks..I will check that site out!!

I REALLY think that there is a connection here!

schuyler Apprentice

That's really interesting; I never thought about there being a connection between celiac and bedwetting. I am going to pass this info along to my cousin because her 2 oldest sons (ages 4 and 3) have been potty trained during the day since they were 18 months old, but they have to wear diapers to bed because they have so many accidents. This is something else to add to the boys' long list of symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prinsessa Contributor

I dont' know about bed wetting, but when I eat something with gluten I have to pee almost every hour. I don't know why. It might be my body trying to rid itself of toxins. I could see kids having the same problem. I had to get up sometimes in the middle of the night to use the bathroom.

  • 1 year later...
RIMom Newbie

we are going to do the enterolab genetic test on our negative blood test daughter for that exact reason. We just want to know. We are going to do it privately (I know it's expensive), so it won't go on her insurance record, or medical record. They give discounts for family members. That way we will know if her weird things are just weird things, or if it's actually possibly the celiac raising its head finally.

Good luck

RIMom Newbie

sometimes it's just bedwetting though. My 5 yr old daughter has been gluten free/symptom free for 9 months now and still wets the bed. We wake her between 10 and 11 when we go to bed and have her pee, it doesn't matter, she still wakes up wet. she is a deep sleeper. We are working on it, but she just may not be ready.

Merika Contributor

Ds will have pee accidents within hours of ingesting soy, which he is also allergic to. it's the first symptom of many including behavior after ingesting the stuff. he's been potty trained for 4 years now and it can still happen.

merika

RIMom Newbie

interesting, she eats very little soy and never has accidents during the day. She is wet every night and always has been. (2 dry nights in her life, not in same week).

gfpaperdoll Rookie

I think bed wetting is associated with dairy - take out the dairy & I think it will go away.

there has been papers published on this - or so it seems I remember from an old brain talk post, or it might have been just some moms that figured it out...

goldyjlox Contributor

My daughter is 3 1/2 and potty trained for about a year but she still wears a pull up to bed and the last couple of months she has been peeing in her pants ,all the time. She and her 12 month old brother have had bloodtests a week and a half ago so we are waitng for the resuls. She is the one that I a more concerned about.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,556
    • Most Online (within 30 mins)
      7,748

    dflorio
    Newest Member
    dflorio
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.