Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heaven Through Hell?


Papa-Hen

Recommended Posts

Papa-Hen Rookie

Folks,

I'm new here.

You all seem to do much better immediately upon going gluten free.

Having had mch success especially in losing weight since quitting wheat in November, I recently learned enough to get rid of the next level of gluten from my diet. I have since had a bout of what I hope was my body releasing the many toxins that had collected over the years.

(It has been a very rugged 2+ weeks...I'd really love to learn that it's not just extreme anxiety.)

Doing better, but not yet good--hopefully, very soon.

Any advice?

Thanks,

- Henry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

Hi Henry, welcome on the board!

I did feel better in some ways immediately after going gluten free, but also worse in some others. And the first few months were a rollercoaster of better days and worse days. So your experience sounds quite normal to me. :)

Pauliina

Guest laferriere

Henry,

I am new as well, and the first two months have definitely been up and down. In fact, the first month some of my long-term symptoms were better but I developed new and different symptoms for awhile. I am still having good days and bad days and still not having brilliant nights. Please hang in there; hopefully, things will get better eventually. Good luck!

lisa

DingoGirl Enthusiast

Hi Henry, and welcome.

Ditto to what the above foks said. I felt better - amazingly better - after about a week gluten-free. And then plummetted so deeply I had to go back on an antidepressant. Had ups and downs but now it's pretty stabilzed, five months in.

Keep at it! You'll go through interesting physical and emotional changes, but press on, keep reading and reading here, learn all you can, and make sure you truly have elimnated ALL gluten (toothpaste, chapstick, vitamins, meds, secret ingredients).

Stick wtih it and learn all you can, and things will get better. Also, think about the possibility of giving up dairy, at least for a while, while you heal.

blessings -

MNB Newbie

Hi Henry:

I am in the middle of my 3rd week of gluten-free and it has been anything but stable. The first week- amazing difference and then varying days of good and bad since. Probably mostly bad. I know a few times I tried to order at restaurants (I'm just not a home cooking kind of gal) I must have been exposed to some gluten somehow. But other times I was certain nothing I ate could have been contaminated - but I still got the stomach pains, brain fog ect.

I think it just takes a while for it all to get out of your system - I'm looking forward to having more good than bad, but for now I guess we just cope as best as we can :huh:

Good Luck Henry -

Michelle

TCA Contributor

Thre are a lot of ups a downs in the beginning. I think a lot of this for me was really learning the diet. I made a lot of mistakes in the beginning, which caused a lot of issues for me. Don't mean to state the obvious, but are you sure everything is really gluten-free? I made so many mistakes to start with, I guess I just assume others could too! ;)

Lister Rising Star

yeah, i was amazed by the diffrence in the first 2 weeks of going gluten free, i lost my whole apple belley and everything, but withen another week new symptoms started to apear and some left, its been 3 months now and its still a rollercoaster, i dont know if it just takes a long time to work out all the gluten in your body or if the healing processe itself just sucks, but hopefully you will be better soon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Papa-Hen Rookie

Folks,

Cautious optimism...

I'm becoming more optimistic that this is my body responding to the release of a toxic load that it is sheading quite rapidly, now.

External stressors are quite high, so let's give them and any consequential anxiety their due, however.

I've had a fairly productive day at work despite a good bit of insomnia last night. I started to fade around 10:30AM & broke away to go to the gym. On the exercise bike, I could not believe that I was still aerobic with my heart rate at 150 bpm. 130 - 140 maybe, but 150--I felt good, pumping hard with no pain & unforced breathing. I've spent a lifetime with almost zero "wind", and pushing myself to the point of muscle pain, so this was a treat! To top it off--and this is also scary--after my shower, I stepped on the scale & found that I had lost 8 1/2 lb since Wed. 8 1/2 lb in 5 days!?!? Loss of water weight as inflammation continues to decrease?...Any insights?

(The dark side within wants to put the thought of serious disease into my head, but we'll just wait until we discuss this with doc.)

So, maybe my crisis is was simply due to the high rate of toxic release....it's over, right?

Maybe I would have done better by forcing myself to drink a lot of water to wash things out when I was at my worst. I am doing that now.

Thank you for your best wishes.

- Henry

judy05 Apprentice
Folks,

I'm new here.

You all seem to do much better immediately upon going gluten free.

Having had mch success especially in losing weight since quitting wheat in November, I recently learned enough to get rid of the next level of gluten from my diet. I have since had a bout of what I hope was my body releasing the many toxins that had collected over the years.

(It has been a very rugged 2+ weeks...I'd really love to learn that it's not just extreme anxiety.)

Doing better, but not yet good--hopefully, very soon.

Any advice?

Thanks,

- Henry

You said that you gave up "wheat", do you realize that gluten free means giving up barley, rye and also oats? Just wanted to make sure.

aikiducky Apprentice

Yeah you're probably loosing water weight. And my endurance and also shot up after going gluten free, it was great! Now I've gotten used to it, lol. :rolleyes:

Pauliina

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,055
    • Most Online (within 30 mins)
      7,748

    Amaly
    Newest Member
    Amaly
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.