Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Withdrawel


DrMom

Recommended Posts

DrMom Apprentice

I have been gluten free for nearly a month now, and have had a headache for 5 days. Blood pressure is fine. Could this be a gluten withdrawal? It lasts all day and all night. Any suggestions?

BTW, have noticed that all of my fibromyalgia muscle pain is GONE. I used to blame pains on osteoarthritis, but my bones do not hurt and joints don't ache. This gluten stuff was poisoning me. Right?

DrMom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

I had my pain just disappear after years too. Mind-boggling isn't it?

As far as the headaches go, have you been eating more of something in place of the gluten? It's common to have other foods that don't sit right with you. Sometimes it's just part of the healing process. Your body also becomes more sensitive to gluten after you've been off of it for a while, so you might want to check your personal care products, like haircare products, makeup, and lipsticks / lip balms. Also, are you being careful about cross contamination?

When I discovered celiac, I was having a lot of digestive symptoms. But once I went gluten-free, oddly enough, when I get glutened, I only very rarely have digestive symptoms, but end up with a constant headache, anxiety, and other more psychological symptoms. So your glutened symptoms can change.

Hope you feel better.

Nancy

dionnek Enthusiast

Yes, I've had the same thing. I've been gluten-free for a month and a half, and the headaches started right away (I've never had bad headaches before going gluten-free). They are almost gone now though, but lasted a month.

KaitiUSA Enthusiast

You know what they say...you may get worse before you get better. You will get better though and it sounds like you have already seen some improvement.

BRUMI1968 Collaborator

I wonder if it could be blood sugar issues. I say this because of the way grains are turned to sugar in our bodies. If you have replaced your gluten with other gluten-y stuff, like rice flours and soy flours and whatever, it would probably not change the way you deal with sugars/carbs/insulins. But if you've cut them out entirely, you might be adjusting that way.

Another way to think of headaches that I read once is that they are either expansive or contractive. If you take a bit of something salty, does your headache diminish? If so, it is an expansive headache and you're too expansive (veggies, fruits, etc.) and need more contractive food (meat, grain?, coffee) and the like. If it doesn't respond to salt, then there's no way to test the other one.

Lastly, aspartame causes headaches/migrains in lots of folks. If you're drinking sodas or snackies with aspartame (also called Nutrasweet), you might consider cutting that out.

DrMom Apprentice

I do not use salt in cooking, and do not add any at the table. I will try this type of "Salt test" to see if that might be it. I don't think it is a sugar thing as I eat sweet things and that does not change anything. It is beginning to sound, from the replies, that most folks go thru this also. Oh well, somethings just happen. Am feeling much better on this gluten free diet tho. Can't believe all of the aches and pains I used to get that are now gone. (except for this head ache thing) Thanks for your reply.

DrMom

queenofhearts Explorer
I do not use salt in cooking, and do not add any at the table. I will try this type of "Salt test" to see if that might be it. I don't think it is a sugar thing as I eat sweet things and that does not change anything. It is beginning to sound, from the replies, that most folks go thru this also. Oh well, somethings just happen. Am feeling much better on this gluten free diet tho. Can't believe all of the aches and pains I used to get that are now gone. (except for this head ache thing) Thanks for your reply.

DrMom

I mentioned this to someone else with a headache, I think-- are you sure you are eating ENOUGH? Just being borderline hungry can give me migraines. When I'm busy & my eating habits are less regular, I'm very prone to this problem. Rather than a sweet though, I find nibbling on nuts helps me most to regulate my blood sugar.

Hope this helps.

Leah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,929
    • Most Online (within 30 mins)
      7,748

    Nimsay
    Newest Member
    Nimsay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shining My Light
      @knitty kitty I had an injury from assuming I could do work outs at the gym like I did in my 20s 😏. it didn’t work in my favor. My orthopedic doctor told me to go on 50,000IU /per week for 4-6 weeks for a boost and then do a maintenance. I took 2 and got nervous to take any more, it seemed so high to me. About 7  months later I had a blood test revealing that my Vit D levels are lower than normal. I started taking vit D supplements-4000IU./a day now. (the natural garden of life ones) I had a friend whose levels were low and she was having a mental breakdown.  My B12 levels were right in the middle of the range.     
    • knitty kitty
      @Ginger38, Have you been checked for nutritional deficiencies, besides iron?   Celiac disease causes inflammation which results in nutritional deficiencies.   Iron needs Thiamine and the other B vitamins to make new red blood cells.   Iodine and thiamine deficiencies affect the thyroid.  The thyroid is one organ that uses lots of thiamine.   Vitamin D deficiency leads to hormonal problems, including menstrual problems.  Vitamin D needs Thiamine to activate it.   Heart palpitations and chest pain after gluten exposure can be evidence of poor digestion and a drop in available thiamine.  Consumption of any  foods high in carbohydrates can cause a drop in thiamine.  This is called high calorie malnutrition. Anxiety, numbness, tingling, acne, and brain fog are symptoms of Thiamine and the other B vitamin deficiencies.  There's eight B vitamins that all work together in concert.  They are water soluble.  They can be hard to absorb by inflamed intestines.  Vitamin A can improve acne. I suffered from all the same symptoms which only resolved with B Complex and Thiamine (in the forms TTFD and Benfotiamine) supplements, Vitamins D, A and C.  Magnesium, Thiamine and B6 Pyridoxine will get rid of the nightmares. Replenishing your vitamin and mineral stores will help heal and feel better faster.  Talk to your nutritionist and doctor about supplementing. Think about adopting the Autoimmune Protocol diet to help with SIBO and MCAS to reduce bloating and heal the intestines. @Alibu and I were just discussing diagnosis without obvious villus damage here.   This study followed people who showed no or little villi damage at first....they accrued more damage over time. Outcomes of Seropositive Patients with Marsh 1 Histology in Clinical Practice https://pmc.ncbi.nlm.nih.gov/articles/PMC4980207/ There's a move to be less reliant on endoscopy for diagnosis. Biopsy‐Sparing Diagnosis of Coeliac Disease Based on Endomysial Antibody Testing and Clinical Risk Assessment https://pmc.ncbi.nlm.nih.gov/articles/PMC12074562/
    • Ginger38
      Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise.  I have started having palpitations and chest pain,  both of which seem to be attributed to exposure to gluten. I’ve also been having a lot of nightmares, anxiety, numbness and tingling, brain fog, spotting between cycles and acne. Idk if all those are relatable to gluten / celiac but I’m concerned  I’ve finally tipped my body/ immune system into a bad place. Is there anyway to detox and heal faster or treat these symptoms if related to gluten ? 
    • knitty kitty
      @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin, and improve glucose tolerance in patients with hyperglycemia. High-dose thiamine supplementation may prevent or slow the progression of hyperglycemia toward diabetes mellitus in individuals with impaired glucose regulation." They used 100 mg of thiamine three times a day.  They don't say which kind of thiamine was used.  Benfotiamine is my recommendation because it has been shown to promote intestinal health and helps with leaky gut and SIBO.  Thiamine forms including Benfotiamine and TTFD are safe and nontoxic even in higher doses.   The old "gold standard" diagnosis is changing.  It must be confusing for doctors as well.  I went through all this myself, so I understand the frustration of the vagueness, but set your course and watch as your health improves. Keep us posted on your progress!   P.S. here's another link.... https://pubmed.ncbi.nlm.nih.gov/39642136/
    • Alibu
      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
×
×
  • Create New...