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Gluten Withdrawel

DrMom

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DrMom Apprentice
DrMom
Posted

I have been gluten free for nearly a month now, and have had a headache for 5 days. Blood pressure is fine. Could this be a gluten withdrawal? It lasts all day and all night. Any suggestions?

BTW, have noticed that all of my fibromyalgia muscle pain is GONE. I used to blame pains on osteoarthritis, but my bones do not hurt and joints don't ache. This gluten stuff was poisoning me. Right?

DrMom

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Nantzie Collaborator
Nantzie
Posted

I had my pain just disappear after years too. Mind-boggling isn't it?

As far as the headaches go, have you been eating more of something in place of the gluten? It's common to have other foods that don't sit right with you. Sometimes it's just part of the healing process. Your body also becomes more sensitive to gluten after you've been off of it for a while, so you might want to check your personal care products, like haircare products, makeup, and lipsticks / lip balms. Also, are you being careful about cross contamination?

When I discovered celiac, I was having a lot of digestive symptoms. But once I went gluten-free, oddly enough, when I get glutened, I only very rarely have digestive symptoms, but end up with a constant headache, anxiety, and other more psychological symptoms. So your glutened symptoms can change.

Hope you feel better.

Nancy

dionnek Enthusiast
dionnek
Posted

Yes, I've had the same thing. I've been gluten-free for a month and a half, and the headaches started right away (I've never had bad headaches before going gluten-free). They are almost gone now though, but lasted a month.

KaitiUSA Enthusiast
KaitiUSA
Posted

You know what they say...you may get worse before you get better. You will get better though and it sounds like you have already seen some improvement.

BRUMI1968 Collaborator
BRUMI1968
Posted

I wonder if it could be blood sugar issues. I say this because of the way grains are turned to sugar in our bodies. If you have replaced your gluten with other gluten-y stuff, like rice flours and soy flours and whatever, it would probably not change the way you deal with sugars/carbs/insulins. But if you've cut them out entirely, you might be adjusting that way.

Another way to think of headaches that I read once is that they are either expansive or contractive. If you take a bit of something salty, does your headache diminish? If so, it is an expansive headache and you're too expansive (veggies, fruits, etc.) and need more contractive food (meat, grain?, coffee) and the like. If it doesn't respond to salt, then there's no way to test the other one.

Lastly, aspartame causes headaches/migrains in lots of folks. If you're drinking sodas or snackies with aspartame (also called Nutrasweet), you might consider cutting that out.

DrMom Apprentice
DrMom
Posted
  • Author

I do not use salt in cooking, and do not add any at the table. I will try this type of "Salt test" to see if that might be it. I don't think it is a sugar thing as I eat sweet things and that does not change anything. It is beginning to sound, from the replies, that most folks go thru this also. Oh well, somethings just happen. Am feeling much better on this gluten free diet tho. Can't believe all of the aches and pains I used to get that are now gone. (except for this head ache thing) Thanks for your reply.

DrMom

queenofhearts Explorer
queenofhearts
Posted
I do not use salt in cooking, and do not add any at the table. I will try this type of "Salt test" to see if that might be it. I don't think it is a sugar thing as I eat sweet things and that does not change anything. It is beginning to sound, from the replies, that most folks go thru this also. Oh well, somethings just happen. Am feeling much better on this gluten free diet tho. Can't believe all of the aches and pains I used to get that are now gone. (except for this head ache thing) Thanks for your reply.

DrMom

I mentioned this to someone else with a headache, I think-- are you sure you are eating ENOUGH? Just being borderline hungry can give me migraines. When I'm busy & my eating habits are less regular, I'm very prone to this problem. Rather than a sweet though, I find nibbling on nuts helps me most to regulate my blood sugar.

Hope this helps.

Leah

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      Headaches / Migraines and Hypoglycaemia

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      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

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      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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