Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Holidays


Kaycee

Recommended Posts

Kaycee Collaborator

I am going awqy this weekend, to stay with my elderly parents, in their seventies, and have not seen them since my diagnosis.

Has anybody got any good hints about going away? Starting to pack my bag, and it is nearly half full off food. There goes that squirrel instinct again! I'm only allowed 20kg, so I should be careful.

I'm a bit more concerned about cc, I guess if I was the ideal daughter, I would get in and do all the cooking! But mum is a fusspot, and there only seems to be one way to do things, and that is her way. Love her dearly, but can see if not handled correctly, I might end up in the firing line, and in the loo more often than not.

This could just be me stressing out as this will be the first time away from home since diagnosed. There is now a definite line drawn between ignorance of coeliac and my diagnosis. There is a before and an after time and I feel I am always comparing the two very distinct stages in my life. Funny how things go.

Cathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kabowman Explorer

I do the same thing - we are planning trips with our three kids and I remember back to what we passed and know that I can't eat at any of those places, we have to plan everything, almost.

I would take tons of food, make sure she knows how sick you get with the CC issue--she won't want you to get sick. My dad is finally getting the hint but he has known for 2 years and just because he understands, a little, doesn't mean it will actually work right. He is a VERY messy eater/cook. I take food everywhere, just in case and I find out if there is a place nearby where I can buy some basic foods that I can eat.

lindalee Enthusiast
I do the same thing - we are planning trips with our three kids and I remember back to what we passed and know that I can't eat at any of those places, we have to plan everything, almost.

I would take tons of food, make sure she knows how sick you get with the CC issue--she won't want you to get sick. My dad is finally getting the hint but he has known for 2 years and just because he understands, a little, doesn't mean it will actually work right. He is a VERY messy eater/cook. I take food everywhere, just in case and I find out if there is a place nearby where I can buy some basic foods that I can eat.

What are yawl taking? I am taking fruits, salads, chicken, nuts, and I don't know what else. I will be gone 4 days. My first long trip. The hotel has a ref. but don't know how big so I am taking coolers. I plan on taking things to eat that do not need to be heated. It is too hot anyway. Oh, and some of those Chocolates from Wallmart. LindaLee :P

jenvan Collaborator

Don't be too hard on yourself! I understand the frustration of having to go to be with your family and have to trouble shoot to make sure you get a *safe* meal. I would definitely bring snacks, cereal if you eat that for breakfast, bread, a little gluten-free dessert (cookie etc) for you. Will their house have anything gluten-free for you? Or could you go to the store and get a few things to supplement what you bring? ie. If they had salad, just bring dressing, if they have gluten-free lunch meat, just bring some bread. To save space, bring only the items you couldn't buy at a local store (ie. fruits, veggies, meat). Any place safe to go out and eat for one meal nearby? Can you encourage your mom to cook some "whole food" meals--ie. some meat, baked potato, veggie, salad, fruit etc? If it is a struggle, don't be afraid to stand your ground, so to speak. Try to state your needs and situation gently but firmly, non apolgetically. Hope the trip is good--not stressful!!

lindalee Enthusiast
I am going awqy this weekend, to stay with my elderly parents, in their seventies, and have not seen them since my diagnosis.

Has anybody got any good hints about going away? Starting to pack my bag, and it is nearly half full off food. There goes that squirrel instinct again! I'm only allowed 20kg, so I should be careful.

I'm a bit more concerned about cc, I guess if I was the ideal daughter, I would get in and do all the cooking! But mum is a fusspot, and there only seems to be one way to do things, and that is her way. Love her dearly, but can see if not handled correctly, I might end up in the firing line, and in the loo more often than not.

This could just be me stressing out as this will be the first time away from home since diagnosed. There is now a definite line drawn between ignorance of coeliac and my diagnosis. There is a before and an after time and I feel I am always comparing the two very distinct stages in my life. Funny how things go.

Cathy

Kaycee, I am new to this traveling thing too and I am going to plan ahead so I have plenty to eat. I do not want to eat anything bad. Just ate something wrong the other night and boy don't want to go there. I'm just going to pack until the car won't hold any more and go and treat it as an adventure. I really do hope you have a good visit with your parents. That is so special you have both of them. I'd love to be able to have a visit with mine. They have passed away. So I hope you have a wonderful time and get to have good talks and good memories. LindaLee :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.