Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Enzymes


kbtoyssni

Recommended Posts

kbtoyssni Contributor

Yesterday my chiropractor suggested that maybe I don't have celiac, and it's a digestive problem instead. He was going to give me some digestive enzymes that you take for two weeks, and then he thought I should try eating gluten again to see if it made any difference. I AM NOT willing to take that risk - I didn't even take the enzymes because they're manufactured in a facility that contains wheat.

The reason why he suggested this is because I don't have an official diagnosis. I did an elimination diet and reacted very badly when I re-introduced wheat and barley. I started eating gluten for about a week to try to get positive blood work, but I don't think it was long enough, and I wasn't willing to keep eating gluten just to get an official diagnosis because at that point I just wanted to get better. And now, nine months after going gluten-free, I feel better than I have in ten years.

So my question is, have any of you tried digestive enzymes? How do they work and why would my chiropractor think they would work for me? What sort of digestive conditions do they help for? Would they help me even if I do stay on a gluten-free diet? I'm wondering if he thought I had mainly digestive symptoms, but my symptoms were mostly fatigue, join pain, brain fog, etc. The stomach pain was minor compared to my other symptoms.

I am not going to start eating gluten again, I'm just curious about why he would suggest this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Digestive enzymes can be very helpful. However, they cannot stop or prevent the autoimmune response that occurs with gluten consumption. Even if you dont have Celiac....you are obviously gluten intolerant so you would still be experiencing an autoimmune reaction from gluten.

The enzymes can aid in breaking down your food for easier digestion. Since most of us with gluten intolerance have impaired intestines the enzymes can help with digestion. Also some of us may lack some of the enzymes needed for breaking down various foods. The more food is broken down and completely digested the less large food molecules are left to possibly create an allergic response. When undigested food particles leave the digestive tract (as is the case with leaky gut) then the immune system may launch an attack on these and create secondary food intolerances.

Hope that makes sense.

plantime Contributor

I tried digestive enzymes. They did absolutely nothing to stop any celiac reactions. They did help food digest better, and I eliminated much easier, but that is all.

loraleena Contributor

I use enzymes and they help me digest in general - less bloating and gas. Not gluten though. You do sound at least gluten intolerant. If you feel terrible on gluten, then that is all you need to know.

Guest cassidy

I take digestive enzymes all the time, but I'm not at all under the impression that they will help with celiac or symptoms when glutened.

I had issues with partially digested food coming out (sorry - gross) and digestive enzymes help your body digest your food. I also have stomach aches from safe food sometimes. I've only been gluten-free for 6 months so I assume that my body is still healing. I feel that the enzymes help make it easier for my body to digest my food and that it probably needs all the help it can get right now.

I had negative blood work but a very positive dietary response. I never tried to reintroduce gluten to see if I had a problem, because I glutened myself on accident enough times. I have no question in my mind that I have celiac.

Also, I have taken the enzymes after being glutened, again just to help my body digest in general and I never noticed an easier time with my symptoms from being glutened.

A lot of doctors don't like to believe that someone has celiac, so maybe your doctor is hopeful. I wouldn't take them if they are produced in a facility that contains wheat, and I certainly wouldn't try gluten again.

kbtoyssni Contributor

Thanks for the info everyone! Sounds like it might be worth try as a general digestive aid. I do take acidopholis which seems to help me, and this sounds like it might be similar.

But there's no way I'm eating gluten again. I've been accidently glutened enough times to know I don't want to eat gluten on purpose.

  • 2 weeks later...
Carolita Rookie

Which enzymes do you recommend?

I'm still new at this and would like to buy some b/c I feel like I'm not digesting food very well. I'm already on a gluten free diet but I some times feel sick of my stomach mainly from gas.

Your help is appreciated,

Carol :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

I take DigestGold, but they are enormously expensive. They are about 25.00 a bottle, and that bottle only lasts three weeks or so. I've bought cheaper ones, and find they work not quite as well, but nearly so. I probably only need to take one at this point, and I'm still swallowing two - so that might make more sense. Anyway, they are gluten-free, and potent, and cover all the bases. It has twice as many enzymes as another brand I've taken.

The other thing I take is Betain-HCI. It is "supposed" to increase your stomach acid, though I've read things that say it doesn't. I don't know if it helps. But I'm doing the regimine my nutritionist put me on.

It certainly improved the quality of my stool, and, I imagine, how much I am getting out of my foods.

I plan to wean off them in another four months - see if I can make all the good stuff on my own.

Carolita Rookie
I take DigestGold, but they are enormously expensive. They are about 25.00 a bottle, and that bottle only lasts three weeks or so. I've bought cheaper ones, and find they work not quite as well, but nearly so. I probably only need to take one at this point, and I'm still swallowing two - so that might make more sense. Anyway, they are gluten-free, and potent, and cover all the bases. It has twice as many enzymes as another brand I've taken.

The other thing I take is Betain-HCI. It is "supposed" to increase your stomach acid, though I've read things that say it doesn't. I don't know if it helps. But I'm doing the regimine my nutritionist put me on.

It certainly improved the quality of my stool, and, I imagine, how much I am getting out of my foods.

I plan to wean off them in another four months - see if I can make all the good stuff on my own.

Thank you for the information. Where do you buy them? Do you get them on line or a local store? I'm planning to go look for them tomorrow. Hopefully I can find them.

Thanks again,

Carol :)

  • 3 weeks later...
Super Bellybutton Rookie

How fast did it take for you guys to get results?

I'm taking some right now that are gluten-free (namely those without the malt diastase). They seem to help with my blood sugar a little though.

BRUMI1968 Collaborator

What I noticed right away was that my stool was no longer accompanied by undigested food bits. Yuck, I know, but that's what I noticed right away.

I buy the Digest Gold at the food co-op, but I think "super Supplements" carries them as well. Enzymedica also has a website.

Good luck.

Lymetoo Contributor
Which enzymes do you recommend?

NOW brand is gluten free! good quality and NOT expensive. Available at any good health food store and probably online.

Maybe www.Lame Advertisement.com ?? My favorite place is vitacost, but they don't carry it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.