Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Going Gluten Free Affect Mood?


Alexolua

Recommended Posts

Alexolua Explorer

So just finished day 4 of not eating anything with Gluten and Casein in it. I tried searching the board, but only found people saying Gluten could cause depression.

But can going gluten free (or casein) cause it too? Maybe makes some brain chemicals or something go wonky for a bit? Have changed my diet by quite a bit.

I dunno, could just be me, but feeling it a bit now, a lot more than I've felt it in quite awhile, so just curious. And no, not upset with being on the diet, or being diagnosised, been hoping I've had Celiac Disease, or a Gluten intolerance since last fall.. so more happy about that, lol.

Any thoughts or comments would be nice, if it could be the diet change, then I can deal. If it's just me, well then, I can deal too, lol.

Thanks. =)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

This is my UNOFFICIAL take on depression and celiac disease. :o BTW I do have training and experience with counselling depressed, suicidal, or anxious clients as well as experience with SSRIs and other psychotropic drugs. ;)

Since the 90s were the decade of 'brain chemistry' and SSRIs, 'depression' became such a common buzzword that was overused almost to the point of meaninglessness. People use the term 'depressed' to describe feeling overwhelmed, sad, frustrated, regretful and many other moods much milder than true clinical depression. Furthermore people forgot that negative moods are influenced by our beliefs and circumstances, as well as brain chemistry (in true clinical depression and other true mental disorders). So now people quickly consider brain chemical causes for unpleasant negative moods, rather than considering their beliefs and/or circumstances.

I consider undiagnosed celiac disease, esp. years of confusing or painful symptoms which doctors either discount or misdiagnose with worthless labels like "IBS" VERY depressing (using that word VERY loosely). The frustration from constant symptoms and no help from doctors (whom we assume should know) can make people feel very hopeless about ever understanding their symtoms or ever recovering from them. Chronic pain itself can make people feel hopeless enough about life to consider suicide to end a life of unending pain. I'm not sure whether celiac affects brain chemistry enough to effect true clinical depression, but the prediagnostic struggles of the average celiac (who waits an average 11 years for correct diagnosis) could influence feelings of frustration, sadness and hopelessness as well as chronic fatigue from malabsorption syndrome associated with celiac damage. All of those feelings and fatigue are similar to symptoms of clinical depression.

On the contrary, going gluten free (as well as avoiding lactose or caseine) can seem like a burden or blessing according to what people believe about dietary restriction. I suffered many years of pain before learning I had celiac disease, so I consider the effort involved in making gluten free substitutions for former gluten containing foods well worth the effort. I try to focus on substitution, not deprivation. However celiacs who suffered very little actual pain or discomfort before diagnosis may view the gluten-free diet as one huge burden, even though they know about the possible physical damage from consuming gluten. So again avoiding gluten, lactose or caseine (or possibly other allergens) may make people feel frustrated (it IS difficult to successfully gluten sleuth and the gluten free diet has a high initial learning curve) or even hopeless (the gluten-free diet is a lifelong requirement without hope of ever feeling safe consuming gluten). However, I don't think those hopeless or frustrated feelings resulting from following a gluten free diet are symptoms of true clinical depression.

Alexolua Explorer

Okay, thanks for the nice long reply. =)

I'm in the real bad symptons boat, so going knowing there is a cause and a cure is a blessing and not a burden for me. Also have been in the hopeless boat, while doctors would tell me nothing was wrong, or it's in my heads, lol. Oh, I loved how they'd say, oh.. you're sick cuz yer depressed. The concept that I was depressed cuz I was sick, was too much for them to grasp. But haven't felt that bad in a long while. =)

I wasn't really asking about Clinical Depression, sorry if my labelling of things was wrong. Just curious if going gluten-free or CF, can affect mood and make one feel sad, or depressed as in just feeling down..

It's just easier to cope and deal, if I have a better idea of what the cause of the feelings I'm feeling is, ya know?

And thanks again for the nice reply.

MySuicidalTurtle Enthusiast

Going glutenfree does cause lots of emotional twists from me personally. Depending on what I eat and all I can feel real down and all. Though, usually once I balance eberything out on my diet I do pretty good. If I think about it I do get more pissy and down when I have a lot of dairy. I think it just depends on you. I know at first I was real down and didn't have much to eat and was just so waw. So, yes I do think the change in diet plays with our emotions. I hope I am making some sense!

Kristina

Alexolua Explorer

Yeah you were, and oddly, or maybe happily, I'm feeling fine now. Was just feeling down for no real reason I guess, lol.

Maybe my body is getting use to diet change? Think I had been eating fairly high carb diet, now real low too. Since mainly just fruits, veggies, and meat.

Though have had a fairly bad headache for the past 2 days, now.. maybe the stages of withdrawal from something? Who knows. =)

plantime Contributor

Could it have been something like withdrawal? I read somewhere that gluten has an almost addictive quality, which would mean withdrawal symptoms when going gluten-free. That would certainly explain the "feeling worse before better" thing that happened to me when I went gluten-free.

Alexolua Explorer

I dun know.. my dad said, "Hey, member you're going threw withdrawal" the other day. I tried searching with yahoo, and couldn't find a thing about gluten withdrawal, besides withdrawaling it from your diet.. so, I dunno. Maybe possible?

I have no real clue, still have the headache though, LOL.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.