Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Funny Encounters


wozzy

Recommended Posts

wozzy Apprentice

First off, I'm new to this site, so hi!

I was volunteering at something a few weeks ago. They had lunch for the volunteers, and the woman in charge told me to take a lunch.

I told her I probably can't eat any of it since I'm allergic to wheat (I say wheat first since most people don't know what gluten is).

Then she said "Well, did you bring your epi pen?", implying that I should just inject myself with an epi pen and then eat the sandwich. :rolleyes:

I'm sure some of you have some interesting encounters with people about celiac disease. I find it much easier to laugh about stuff like this than get frustrated. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

What the heck is an epi pen? Still...funny.

I have a friend from Iraq who is a doctor here in the states. She hates it when I come over because in Arab culture, it is absolutely unacceptable not to have food out for your guests. Every time I visit (we're working on a project, so it's plenty), she runs through everything she has in her pantry. No I say. No I say. And she's a doctor. Finally she gets mad and swears she's going to study it (she's in genetic medicine) and find the genes and come up with gene therapy. All of that so that she can give me something to eat when I visit.

Green12 Enthusiast
What the heck is an epi pen? Still...funny.

Hi wozzy, a warm welcome to the board :)

I don't really have a specific encounter to share, mainly what I experience is most people not knowing what gluten even is.

Bully4You, an epi-pen administers a dose of epinephrine when an anaphylactic allergic reaction occurs. So the story is even that much more funny now that you know this, that the lady expected wozzy to have a near death experience eating a sandwich and to just use an epi-pen to take care of it.

Kaycee Collaborator

A colleague knows I am coeliac, and we were planning on going out to a chinese restuarant, and I was ummning and arring, and she came out with, "Just bring your own oil and get them to use it, you will be fine."

And then at a chinese restuarant, after telling them that I can't eat gluten, they want to know if I can has potato starch.

Double duh!!

ebrbetty Rising Star

hi and welcome.

my moms great but she'll say things like lets go out to lunch and get a sandwich then say say oh no, sorry i forgot you can't eat that..then SHE feels bad, its just a habit she has trying to feed me.

Tangerine Rookie

For some reason people always seem to think I'm allergic to glucose, not gluten. " Oh yeah, Lindsay can't eat anything with glucose in it".... hello!!! Some of these people I have to consistently tell GLUTEN! It's GLUTEN!

My mom about hyperventilates when I come to visit. She rushes around the house--- "can you eat this, this?!!! I forget, What can you eat!"

My brothers rub in that when I finally move to Germany I won't be able to indulge in their great beers! What is even worse is I have been to Germany, had their wonderful beer, and now, NEVER again :(. It's like getting one kiss, and never anymore! argh.

My best friend steve labels things as 'gluterific'... this does not just apply to food either. He could call a dog walking down the street gluterific, or ask " Does that come with an extra double dose of Gluten?".

I have been kicked out of a resturant for bringing my own food. The whole table was also kicked out with me. 11 other people, who were all eating food they ordered there!!! That was really lame. Never go to the Lucky Lab family resurants and Pubs in Portland, OR!!!! Super rude!

wozzy Apprentice

One time I went to Perkins and asked them to cook my gluten-free pasta for me the night before a triathlon I was doing in Memphis...

They wouldn't do it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,248
    • Most Online (within 30 mins)
      7,748

    Stephen of the West
    Newest Member
    Stephen of the West
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
    • knitty kitty
      You have one gene for Celiac.  You have a second autoimmune disease, Hashimoto's thyroiditis, which is frequently found at a higher rate with Celiac.  HLA genes carry autoimmune disease genes like Celiac and Hashimoto's and diabetes and others.   You have Celiac symptoms of reacting after gluten.  You said "I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches)."  And your anti-thyroid antibodies increase after gluten exposure.  While tTg IgA does not directly attack the thyroid, gluten exposure does trigger the  immune system to produce antibodies against the thyroid in genetically predisposed individuals.  You did not eat sufficient gluten (10 grams of gluten per day for two weeks minimum) to raise the autoimmune antibodies to the point they can be measured in the blood, so your blood tests may well be inaccurate.  You could choose to continue the gluten challenge of 10 grams a day for at least two weeks and get retested.   At the very least, you know that gluten is harmful to your thyroid, and because you are genetically predisposed to Celiac disease, a strict gluten free diet would be beneficial for your overall health.  
    • Zuma888
      Thanks @Scott Adams! I guess my question now is: do the celiacs who can get away with regular contamination without villi damage as you mentioned have to be strict about cross-contamination ? 
    • Zuma888
      Thank you very much @knitty kitty! I'm glad you brought up the point about histamine. I have been taking an antihistamine after meals where I don't feel so good and never knew why it helped so much. At first I thought I might have a food allergy, but I recently did a food allergy test and I actually have ZERO food allergies. Regarding your last point about the stages of grief, are you saying it's likely that I have celiac? I have Hashimoto's BTW and I know for sure that gluten causes an autoimmune response to my thyroid as my anti-TPO and anti-Tg go up and my throat feels swollen. Could the symptoms be due to that autoimmune response?
    • knitty kitty
      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
×
×
  • Create New...